Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Jefferson Adams
    Jefferson Adams

    Casey Wilson Blamed Herself for Son's Celiac Diagnosis: 'It Was My Fault'

    Reviewed and edited by a celiac disease expert.

    Actress Casey Wilson shares her struggles with her son's celiac diagnosis.

    Casey Wilson Blamed Herself for Son's Celiac Diagnosis: 'It Was My Fault' - Image: CC BY-ND 4.0--Alex Thomson
    Caption: Image: CC BY-ND 4.0--Alex Thomson

    Celiac.com 12/10/2019 - Any mother of children with celiac disease can likely empathize with actress Casey Wilson. The Mrs. Fletcher star confesses that she was at wit's end when testing confirmed that her son, Max had celiac disease — a genetic, auto-immune condition triggered by gluten consumption.

    At first, she said, she was convinced the sky was falling, that the situation was "absolutely dire and it was my fault, that what needed fixing was me."

    Celiac.com Sponsor (A12):
    While Wilson was happy to finally have an answer, the star also emphasized how the experience made her reflect on the ways she viewed herself as a mother.

    With time, and some support from husband, David Caspe, Wilson began to calm down and get a handle on her feelings, and a perspective on the situation. 

    “It was a shock, followed by unimaginable relief," she said. "We finally had a diagnosis, and in the grand scheme of things it was a very manageable one,” the actress shared of learning her son’s condition. “We felt lucky it was not something worse.”

    As is not unprecedented, Max got tested, and thus diagnosed, by accident. It was only after suffering a broken leg, and a later seizure that doctors ordered a battery of blood tests, including a screen for celiac antibodies, which revealed the celiac disease.

    For all his early challenges, after six months on a gluten-free diet, Max saw major improvements in behavior and mood.

    “In six months, almost to the day, his truer self emerged...he is now an outwardly thriving, happy 4-year-old who is exploding with creativity and bursting with life,” she proudly shared.

    Like so many moms, Wilson came to learn that  “It wasn’t about me! It wasn’t about my failure as a mother. And that’s something I have had to reckon with,” she explained. “Why was I so hard on myself? Why are we mothers all so hard on ourselves? With each passing day as his health improves, so too does my mental health.”

    For any parent, having children become sick, or get diagnosed with an auto-immune condition like celiac disease, can be a serious blow, and offer strong invitations toward guilt, and self-blame. Casey Wilson's experience shows a very human aspect of the very human struggle to deal with such a reality.  

    Hopefully, her story will help others struggling with similar scenarios. We wish her the best.

    Do you have a story of struggling through a child's diagnosis with celiac disease? Share your story in our comments section below.

    Read more at: people.com


    User Feedback

    Recommended Comments

    Guest momof3

    Posted

    is 3 weeks since our son got celiac diagnosis and still I cannot stop blaming myself everyday...I lost sleep and 5 kilos...I know is not healthy and is so hard to stop the blaming, i feel horrible. In time maybe it will get better. It was my fault, i gave him the bad food, the bad genes, did not insist earlier for a diagnosis. A positive attitude during the day, to support the child and ensure proper regime, without contamination, but at night the demons are making me cry. This article is good, we need to stay strong for them and sometimes just have a good cry to wash it all out...Maybe in time I will feel better, now is too soon..

    Link to comment
    Share on other sites
    Scott Adams

    The important thing is that you have an answer now, and can get him on the road to good health. Don't beat yourself up about it!

    Link to comment
    Share on other sites


    Create an account or sign in to comment

    You need to be a member in order to leave a comment

    Create an account

    Sign up for a new account in our community. It's easy!

    Register a new account

    Sign in

    Already have an account? Sign in here.

    Sign In Now

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Jefferson Adams
    Kourtney Kardashian Makes Peace with Gluten
    Celiac.com 10/31/2018 - It’s official. Twitter official. Kourtney Kardashian has made peace with wheat and dairy, and called off her highly touted gluten-free, dairy-free diet.
    After several years of avoiding them like the plague, the celebrity is now on good terms with both gluten and dairy and is ready to accept them back into her diet. In a new post on her website, the ever busy Kardashian says she’s relaxing a bit, and allowing for dietary deviation and occasional indulgences "in moderation." 
    Kardashian and gluten are not exactly new besties. For now, Kardashian says, she plans to remain gluten-free and dairy-free at home, but more flexible when traveling and dining out.
    "Lately, I've been less strict about avoiding gluten and dairy…Everything in my pantry is still...


    Jefferson Adams
    How Gwyneth Paltrow Single-Handedly Started the Gluten-Free Diet Craze
    Celiac.com 04/08/2019 - In case we’re not clear, if you’re gluten-free, you can thank film star Gwyneth Paltrow. And, according to the Shakespeare In Love star, you can also thank her if you practice yoga.
    That’s because, after being pilloried and even called a "witch" for her advocacy of the centuries old meditation practice, she persisted, and Westerners came to embrace yoga, all thanks to Paltrow. 
    The same for the popularity of the gluten-free diet. In a recent interview with the New York Times, the Goop CEO recounted how her 2015 gluten-free cookbook was the spark that set off the gluten-free diet explosion. The book, IT'S ALL GOOD: Delicious, Easy Recipes That Will Make You Look Good and Feel Great, enjoyed brisk sales, and garnered positive reviews.
    Forgetting for a mo...


    Jefferson Adams
    The Good Place Star Kristen Bell Sees Bright Side of Celiac Disease
    Celiac.com 10/15/2019 - The Good Place star Kristen Bell got some bad news earlier this year when her doctor revealed that she has a genetic marker for celiac disease. She had already started an elimination diet to clear gluten from her system and suss out other problematic food groups, when she got the word.
     "I was like come again? All I eat is bagels," Bell tells Women's Health.
    Bell said she needs carbs, "because I have to memorize 11 pages of dialogue a day...I can’t do that eating spinach and chicken." That's why even a glimmer of possible celiac disease, "...made me really nervous," she says.
    Still, nervousness aside, Bell seems to be taking the news in stride. Her husband, Dax Shepard, suffers from psoriatic arthritis, another autoimmune disease, that is kno...


    Jefferson Adams
    Justin Bieber Ditches Corona Beer for Omission in Response to Gluten Intolerance
    Celiac.com 10/29/2019 - It's a busy time for Just Bieber. Within a couple of weeks, the pop recording sensation got married, suffered a minor car accident, and revealed that he'll be giving up his favorite beer, Corona, in favor of gluten-removed beers, like Omission. The reason? Bieber just learned that he is "allergic" to gluten. 
    "Worst news ever I'm officially allergic to gluten," Bieber revealed via Instagram Story, "No more Coronas unless they make gluten free beer like this! Sad day."
    Speaking favorably about his newest favorite brew, the "I Don't Care" singer said the the gluten-free pale ale from Omission Brewing is "actually fire."
    It's not clear whether Bieber actually has celiac disease, or whether he has a non-celiac gluten sensitivity.
    Just in ...


  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      New here help needed

    2. - Woodster991 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Is it gluten?

    3. - nanny marley replied to Mantooth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Anyone Else Experiencing These Symptoms?

    4. - trents replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      New here help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,569
    • Most Online (within 30 mins)
      7,748

    Chezlindsay
    Newest Member
    Chezlindsay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • nanny marley
      9
    • alimb
      5
    • Whyz
      6
    • Art Maltman
      6
    • JA917
      13
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...