Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Amanda Rosenkoetter, Ph.D.
    Amanda Rosenkoetter, Ph.D.

    Celiac Disease Helps You Cope With COVID-19 Panic Buying

    Reviewed and edited by a celiac disease expert.

    It is the strictness of the gluten-free diet in the life of a celiac that makes food so central in our lives.

    Celiac Disease Helps You Cope With COVID-19 Panic Buying - Empty store shelves. Image: CC BY-SA 2.0--tvanhoosear
    Caption: Empty store shelves. Image: CC BY-SA 2.0--tvanhoosear

    Celiac.com 03/20/2020 - Food hardly ever entered my mind. In the past, I practiced intuitive eating. If I was hungry for a burger, I had a burger. Pasta, then I had pasta. I felt what I wanted and I got it. Simple as that, without stress or worry. Most people are accustom to eating this way, but things changed dramatically this past week, with rapid rise of COVID-19 cases. Intense emotions are swirling around buying food. Shelves are empty and people fear they won’t be able to buy the essentials, let alone their favorites. Please stop worrying, I have you covered. You see, I am a celiac. 

    Life changes with the onset of disease. Celiac disease was my game changer because it thrust me into a life of food preoccupation. Celiac disease is an autoimmune disease triggered when people eat gluten (a protein found in wheat, rye and barley). Ingestion of gluten causes an immune response. In essence, the body begins an attack on its small intestine and prevents nutrients from being absorbed. If left untreated, the symptoms are terrible, but if a gluten-free diet is strictly followed, those same awful symptoms go away. Notice the word strictly. Without strict adherence, the symptoms come right back. 

    Celiac.com Sponsor (A12):
    It is the strictness of the gluten-free diet in the life of a celiac that makes food so central in our lives. Running errands and grabbing quick fast food is out of the question. Grocery shopping requires an hour reading every label because gluten hides in everything. With celiac disease, food goes from a thoughtless pleasure to a chronic worry. When you leave your home, there might not be food available that you can eat.  

    Herein lies the overlap with COVID-19. You have to think strategically about food rather than relying on it being available. People with celiac cannot assume restaurants or dinner parties will have food free of gluten, nor should we. It is our responsibility to feed ourselves in a way that does not harm our bodies. I regularly bring my own food to the mall or to a potluck. Popping my own popcorn and smuggling it into the movie theater is my move. All of this gluten-free preparation takes time and necessitates the sacrifice of other activities. Sundays involve hours of food prep for the week. I think about my upcoming plans and I strategize. On the go means tuna pouches, dried fruit and protein bars. Time at home allows for fresh fruit and vegetables. I think about where I am, what I have, and how to eat in the healthiest way given the combination of the two. The point is, I think about it. 

    What I have learned as a celiac is that food is not easy and it certainly is not automatic. There are even times when it is unavailable. To cope, I am flexible and make adjustments within the confines of my dietary requirements. It seems hard at first. It is normal to be angry or despairing when what you want to eat is no longer an option. But the mind’s greatest achievement is to accept what cannot be changed. It seems we are destined to live under these strange circumstances for the foreseeable future. In this new world, restaurants might close and the grocery store might not be stocked. It’s okay. Embrace the world of canned and frozen goods, experiment with sauces and spices, and spend time thinking about how your food can be different and healthy. It’s a challenge flung your way. Treat it as such and you will learn to be grateful for what you have rather than sad about what you have lost. I coped with the loss of gluten in my delicious Chicago-style pizzas but discovered the joy of avocado on just about anything. You too will cope with what you are losing now, but maybe you will remember the deliciousness of canned peaches.



    User Feedback

    Recommended Comments

    Guest Laura

    Posted

    Celiac is difficult to manage in times of situational stress e.g. hurricane shelters or empty store shelves. Three years ago I purchased a freezer and have kept it stocked with fresh meats, packaged vegetables and Gluten & Yeast Free breads.  Unable to eat at restaurants due to cross-contamination and/or gluten cross-reactors, cooking throughout the Covid-19 crisis presents no problems. I moved out of states that had natural disasters. Finding foods free of "yeast, heat-processed oils, preservatives, flavorings" and the like has always presented a challenge. I hope it will never be necessary to be out of the house because the kind people who give away food do not realize the difficulty celiac people go through.  

    Link to comment
    Share on other sites


    Create an account or sign in to comment

    You need to be a member in order to leave a comment

    Create an account

    Sign up for a new account in our community. It's easy!

    Register a new account

    Sign in

    Already have an account? Sign in here.

    Sign In Now

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Amanda Rosenkoetter, Ph.D.

    Dr. Rosenkoetter graduated with a double major in psychology and sociology from the University of Michigan, Ann Arbor.  In 2001, she earned her Ph.D. from the University of Detroit Mercy.  She completed her APA-approved doctoral internship at Henry Ford Wyandotte Hospital, during which time she specialized in emergency interventions and inpatient psychiatric care.  Upon graduating, Dr. Rosenkoetter worked in a government-based non-profit mental health clinic for at-risk youth, where her work primarily focused on assessing and providing recommendations to the Sixteenth Judicial Circuit Court of Illinois.  She also served as a contractor for the Illinois Department of Child and Family Services:  Dr. Rosenkoetter provided psychological assessment of children, adolescents and adults for diagnostic evaluation and treatment planning. Dr. Rosenkoetter also has performed pre-employment psychological screening of public safety applicants to Chicago Police Department.  Rounding out her evaluation experience, Dr. Rosenkoetter worked as a Washington State Department of Social and Health Services psychological disability evaluator. Her site is: rainiercompassionatecounseling.com

     


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Melody Stiles, MSW, LCSW, MAC, LCAC
    You're Not Crazy: Coping with Celiac Disease & Gluten Sensitivity
    Celiac.com 12/29/2017 - Do you remember the moment when you were diagnosed with celiac disease or gluten sensitivity? Most people I talk to have it etched in their memory. After all, the information is life transforming. Yet, I doubt if most of us understood the enormity of the information until time passed and we had the opportunity to actually fully understand what it meant besides the gluten free diet (GFD).
    Along with having to learn that gluten is everywhere, we also learn that having to eat differently is, to put it mildly, upsetting. In fact, the psychological impact of living with celiac disease or gluten sensitivity usually involves depression and anxiety. There are other emotional responses as well; these include grief and, for some, trauma (depending upon how long it took...


    Jefferson Adams
    Being Too Vigilant About Gluten-Free Diet Causes Stress in Teens and Adults with Celiac Disease
    Celiac.com 02/19/2018 - It's very important that people with celiac disease maintain a gluten-free diet. Still, there has been some data to suggest that some people with celiac disease may be "hyper vigilant" in their approach to a gluten-free diet, and that such extreme vigilance can cause them stress and reduce their overall quality of life. Can a more relaxed approach improve quality of life for some people with the disease?
    A team of researchers recently set out to determine whether "extreme vigilance" to a strict gluten-free diet may increase symptoms such as anxiety and fatigue, and therefore, lower quality of life (QOL). The research team included Randi L. Wolf, Benjamin Lebwohl, Anne R. Lee, Patricia Zybert, Norelle R. Reilly, Jennifer Cadenhead, Chelsea Amengual, and Peter H...


    Jefferson Adams
    Stress-Related Disorders Associated with Higher Risk for Autoimmune Disease
    Celiac.com 08/13/2018 - It’s not uncommon for people to have psychiatric reactions to stressful life events, and these reactions may trigger some immune dysfunction. Researchers don’t yet know whether such reactions increase overall risk of autoimmune disease.
    Are psychiatric reactions induced by trauma or other life stressors associated with subsequent risk of autoimmune disease? Are stress-related disorders significantly associated with risk of subsequent autoimmune disease?
    A team of researchers recently set out to determine whether there is an association between stress-related disorders and subsequent autoimmune disease. The research team included Huan Song, MD, PhD; Fang Fang, MD, PhD; Gunnar Tomasson, MD, PhD; Filip K. Arnberg, PhD; David Mataix-Cols, PhD; Lorena Fern...


    Jefferson Adams
    Food Knowledge and Mental Stress Are Big Predictors of Gluten‐Free Diet Success
    Celiac.com 08/20/2018 - Following a gluten-free diet is critical for people with celiac disease. However, the factors that influence gluten-free diet success for people with celiac disease are not well understood on a population-wide scale.
    A team of researchers recently set out to assess the factors that influence gluten‐free diet adherence in patients with celiac disease. The research team included E. P. Halmos, M. Deng, S. R. Knowles, K. Sainsbury, B. Mullan, and J. A. Tye‐Din.
    The team asked celiac patients to complete an online survey that included the validated Celiac Dietary Adherence Test, along with questions on demographics, details of diagnosis and management and assessment of diet knowledge, quality of life and psychological distress. The team then reviewed the ...


  • Recent Activity

    1. - JA917 replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      A year and a half of test confusion...

    2. - knitty kitty replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      A year and a half of test confusion...

    3. - cristiana posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Christmas Cake

    4. - trents replied to Art Maltman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      My 5 months of Struggle


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,494
    • Most Online (within 30 mins)
      7,748

    DeniseC2219
    Newest Member
    DeniseC2219
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Popular Now

    • JA917
      13
    • Dana Gilcrease
      4
    • marion wheaton
      6
    • Jula
    • GardeningForHealth
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...