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Outside the USA: International Celiac Support Groups
This category contains international celiac disease support group information for groups that are located outside the United States of America, and includes national and regional organizations and their contacts.44 articles in this category
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Recent Activity
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- mermaidluver22 replied to mermaidluver22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2Some inflammation in ileum with celiac?
@Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am ...- 1
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- nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Help needed
Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle ,... -
- Scott Adams replied to mermaidluver22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2Some inflammation in ileum with celiac?
It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains ele...- 1
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- mermaidluver22 replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
Help needed
hi, how are u now? any answers? -
- mermaidluver22 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2
Some inflammation in ileum with celiac?
I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-...
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