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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to Tedro's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Newly diagnosed and maybe some type of protein intolerance.
Thanks for the clarification on the scope. This is what confused me, "gastro doc said from the biopsy there was mild atrophied villi but I know that could be from where the sample was taken and they could be gone not far away." I interpreted that to mean when the scope was done they didn't do a thorough job of checking the area that would be affected by celiac... -
- Tedro replied to Tedro's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Newly diagnosed and maybe some type of protein intolerance.
I already had a scope done and he said there were damaged villi. This follow up is to go over the bloodwork I already know the results to and the gastric emptying study I had done. I won't say the burgers were not greasy but not bad. It even happens with chicken breast or tenderloin in the air fryer and that's not very fatty at all. -
- trents replied to Tedro's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Newly diagnosed and maybe some type of protein intolerance.
You might be having trouble digesting meat because of the damage to your villi. But what about gallbladder problems? Were those burgers, even the turkey ones, greasy? The odd thing is the "peeing like a racehorse" after consumption. You say you have follow up GI appointment coming up. Please be aware if the GI doc wants to do an upper GI to specifically... -
- Tedro posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Newly diagnosed and maybe some type of protein intolerance.
Had noticeable issues for 7 months including 3 trips to the ER for extreme discomfort. Every doc just said I had gastritis, take pepcid. This never changed a thing. Finally talked a doc into a referral to a gastroenterologist who I had to convince to do a scope and bloodwork to test for celiac among other things. It's like nobody believed me when I said I... -
- Scott Adams replied to Nita hearn's topic in Related Issues & Disorders4
Rosacea
You may want to go to a dermatologist to see if it might instead be dermatitis herpetiformis, which is the skin version of celiac disease. Here are some articles on Rosacea and CD:
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