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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Jmartes71 replied to Inkie's topic in Gluten-Free Foods, Products, Shopping & Medications5
Tea Bags and Gluten
Wow Im a tea drinker and didn't know, perhaps this is why im having issues with my ghost disease. -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
She used to take supplements, but her abdominal pain is so debilitating that she hasn't been able to continue. Her primary care team has been suggesting liquid supplements rather than pill form to help. They just drew a lot of blood Friday and we are slowly getting all that work back. I will definitely check into thiamine! Thanks! -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
They have not done that yet. We are looking at some other treatments to help. And you are correct. The tickborne illness has been a wild ride. Our whole family has been battling different tickborne illnesses. Its expensive and exhausting. -
- cristiana replied to Colleen H's topic in Coping with Celiac Disease3
Ibuprofen
I cannot tolerate it at all - triggers burning and nausea, ditto aspirin. Here in the UK I take Paracetamol. -
- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease3
Ibuprofen
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help...
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