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  • Jefferson Adams
    Jefferson Adams

    Patients With Celiac and Overlap Inflammatory Bowel Disease Often Skip Out on Gluten-Free Diets

    Reviewed and edited by a celiac disease expert.

    This study highlights the challenges of managing celiac disease and IBD, particularly in terms of adherence to a gluten-free diet. 

    Patients With Celiac and Overlap Inflammatory Bowel Disease Often Skip Out on Gluten-Free Diets - A man is going to eat a burger. Image: CC BY 2.0--wuestenigel
    Caption: A man is going to eat a burger. Image: CC BY 2.0--wuestenigel

    Celiac.com 03/15/2023 - A recent study by Indiana University School of Medicine's Jonathan Montrose, DO, found that only one out of 36 patients with both celiac disease and inflammatory bowel disease (IBD) adhered to a gluten-free diet long-term. That's less than 3% of those patients following a gluten-free diet. 

    According to Montrose, the lack of formal education on gluten-free diets is a factor, as only six of the 36 patients had received dietary education from a celiac dietitian. 

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    The majority of patients in the study were white women, and 50% of patients required escalation of IBD medication despite adhering to a gluten-free diet. 

    "Overall, our study showed that there was suboptimal adherence to gluten-free diets." Montrose and his colleagues suggested that the establishment of celiac disease centers at tertiary hospitals could be one way to address the lack of formal gluten-free diet education. 

    Montrose and colleagues suggest establishing celiac disease centers at tertiary hospitals to provide adequate clinical guidance. 

    Perseus Patel, MD, of the University of California San Francisco, agreed that getting adults to stick to a gluten-free diet is challenging and that more education is needed in this area. He noted that "If you go out to eat, you often don't have many choices, so it is not always the easiest thing to do."

    The fact that only 3% of patients in the study followed a gluten-free diet long-term is concerning because it suggests that many patients with celiac disease and IBD may not be getting the optimal treatment they need. Furthermore, the study found that 50% of patients required escalation of IBD medication despite adhering to a gluten-free diet, indicating that there may be other factors contributing to the management of these conditions.

    The recommendation to establish celiac disease centers at tertiary hospitals is a practical solution that could improve patient outcomes by providing adequate clinical guidance and support. 

    In conclusion, this study highlights the challenges of managing celiac disease and IBD, particularly in terms of adherence to a gluten-free diet. 

    Healthcare professionals need to be more proactive in educating patients about the importance of a gluten-free diet. There's also a need for more resources and support for patients with these conditions. 

    The establishment of celiac disease centers could be an effective way to address this issue and improve patient outcomes.

    Read more at: Metpagetoday.com


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    Guest Lack of

    Posted

    Good evenimg to all. All sounds great, however what if you can't afford it? I didn't have a choice, especially a senior as myself. Thank you all. 

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    Wheatwacked

    Even with the recent inflation I spend less on food now than I did before GFD (2014). Most fruits, vegetables and meats are gluten free until some company "adds value" and puts it in a box or bag. Glten free facsimile gluten foods are no better than gluten foods, despite the millions spent to convince us otherwise.

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    trents

    Yes, you don't have to buy dedicated gluten free prepared foods in order to eat gluten free. Many mainstream foods are naturally gluten free. But it does mean focusing on fresh meats, vegetables and fruits and cooking for yourself. It is the pre-packaged dedicated gluten free foods that make eating more expensive for those with celiac disease and NCGS.

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    imdoodah331

    I can agree to a point that focusing our food choices on whole, naturally gluten free foods is best, but no, it is not really less expensive.  At least not where I live.  I don’t have to look much further than the sale flyers for most grocery stores to see that.  Probably 90% of grocery items in sale flyers are gluten filled, pre-packaged garbage.  Meat prices are outrageous, even “on sale”.  The same is true for fresh fruits and vegetables.  And even with those - how many more times do we need to learn about recalls on romaine lettuce or tomatoes, or chicken or etc…before we understand that our food supply is not safe or healthy?  It’s like playing Russian Roulette everyday.  But, we have to eat, don’t we.  Whenever I can, I buy fresh meat, fruit, and vegetables locally grown and harvested,  and processed.  The less food had to be handled, the less it has to travel to reach my table, the better.  I have started an indoor herb garden, and am preparing for a small outdoor garden to keep myself in fresh vegetables this summer.  I have budgeted grocery money that will be spent exclusively at local farm markets and U-pick farms.  I will buy in bulk and preserve it myself with ingredients that I know are safe and healthy for me.  Over the last 2 years, I have managed to stock my pantry, refrigerator, and freezer with less and less processed pre-packaged garbage.  It’s not perfect yet, but I am not starving and I haven’t been nearly as sick.  So that’s improvement.  But, it wasn’t inexpensive either.  I won’t really get to realize the true savings until I am able to rely only on the food I have preserved at this year’s and last year’s prices, and not today’s and next year’s inflated prices.  

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    trents
    1 hour ago, imdoodah331 said:

    I can agree to a point that focusing our food choices on whole, naturally gluten free foods is best, but no, it is not really less expensive.  At least not where I live.  I don’t have to look much further than the sale flyers for most grocery stores to see that.  Probably 90% of grocery items in sale flyers are gluten filled, pre-packaged garbage.  Meat prices are outrageous, even “on sale”.  The same is true for fresh fruits and vegetables.  And even with those - how many more times do we need to learn about recalls on romaine lettuce or tomatoes, or chicken or etc…before we understand that our food supply is not safe or healthy?  It’s like playing Russian Roulette everyday.  But, we have to eat, don’t we.  Whenever I can, I buy fresh meat, fruit, and vegetables locally grown and harvested,  and processed.  The less food had to be handled, the less it has to travel to reach my table, the better.  I have started an indoor herb garden, and am preparing for a small outdoor garden to keep myself in fresh vegetables this summer.  I have budgeted grocery money that will be spent exclusively at local farm markets and U-pick farms.  I will buy in bulk and preserve it myself with ingredients that I know are safe and healthy for me.  Over the last 2 years, I have managed to stock my pantry, refrigerator, and freezer with less and less processed pre-packaged garbage.  It’s not perfect yet, but I am not starving and I haven’t been nearly as sick.  So that’s improvement.  But, it wasn’t inexpensive either.  I won’t really get to realize the true savings until I am able to rely only on the food I have preserved at this year’s and last year’s prices, and not today’s and next year’s inflated prices.  

    Yes, grocery prices in general have gone up dramatically in the wake of the pandemic but my observation is that gluten-free groceries price in creases have outstripped mainstream grocery prices.

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  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

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