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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14Help needed
Thankyou I will definitely have a look your very insightful and a lot is making sence 👍 -
- Idnam replied to Jhona's topic in Introduce Yourself / Share Stuff21Does anyone here also have Afib
Oh my, I have always had the symptoms for B12 deficiency, which is why I had the blood test that led to my celiac disease diagnosis I had been taking B vits have been always been amazed that all ,my bloods were perfectly normal! I queried this many times with my doctor as to whether the B12 was active and being absorbed or whether it was just in my...- 1
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- knitty kitty replied to SB04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4False tTG3 Test?
@SB04, Have you been checked for B12 deficiency? A deficiency in Vitamin B12 will cause hives and also raise the tTg 3 IgG level, even in people without Celiac Disease. You can have B12 deficiency without having Celiac Disease. All eight B vitamins work together. Do not supplement just a single B vitamin. Best wishes. -
- Idnam replied to cristiana's topic in Related Issues & Disorders24
Ectopic heartbeats - any relation to digestive issues?
I've just had 24 hr ECG monitoring but I am convinced the problem with my heart arythma is due to Histamine intolerance. I was making and loving L reuteri yogurt, supposed to get rid of sibo, I was also having, on a daily basis, kefir, sauerkraut and loads of spinach plus Avacado. Bananas and cheese have long been off my list of safe foods as... -
- Russ H replied to SB04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4False tTG3 Test?
The problem with a a multiple screening test like this is that it is likely to generate at least one result that is outside the normal range in a healthy person leading to futile investigations. The pathogenesis of dermatitis herpetiformis makes it unlikely that someone would have raised IgA-tTG3 but not raised IgA-tTG2. Suspected dermatitis herpetiformis...
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By nanny marley · Posted
Thankyou I will definitely have a look your very insightful and a lot is making sence 👍 -
Oh my, I have always had the symptoms for B12 deficiency, which is why I had the blood test that led to my celiac disease diagnosis I had been taking B vits have been always been amazed that all ,my bloods were perfectly normal! I queried this many times with my doctor as to whether the B12 was active and being absorbed or whether it was just in my bloodstream. They dismissed this idea. And of course I still take them. Thank you so much, what a revelation and really quite understandable, I am about due for my annual full blood test so maybe I will just stop taking them?
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By knitty kitty · Posted
@SB04, Have you been checked for B12 deficiency? A deficiency in Vitamin B12 will cause hives and also raise the tTg 3 IgG level, even in people without Celiac Disease. You can have B12 deficiency without having Celiac Disease. All eight B vitamins work together. Do not supplement just a single B vitamin. Best wishes. -
I've just had 24 hr ECG monitoring but I am convinced the problem with my heart arythma is due to Histamine intolerance. I was making and loving L reuteri yogurt, supposed to get rid of sibo, I was also having, on a daily basis, kefir, sauerkraut and loads of spinach plus Avacado. Bananas and cheese have long been off my list of safe foods as I was having a sort of allergic reaction after eating them and my accupuncturist said I had a heart arrythma. After the yogurt fest mentioned above, I had a racing heart rate and think I must have had far too many Histamine producing foods. Apparently celiacs have too much histamine in their system anyway and I was, on a daily basis, eating very high histamine foods. I have cut them out of my diet and now eat only low histamine foods and I take quercin so the heart rate has slowed and the thudding I was getting at 4am has gone so I think I am right. The only symptom I had for celiac disease (3yrs since diagnosed) was acid reflux and the only thing that stopped the chest pain it gave me was the PPi Rinitidine an H2 antagonist, to reduce stomach acid, (which high histamine causes) because it nuetralised the histamine!! I told my doctor this and he agreed with me and was delightfully shocked by my research, (btw what would we celiacs do without google?) so I took a Famotadine, amore up to date H2 ppi for a couple of nights and then reduced my histamine intake, now awaiting results re the ECG..............I seem to have lost my ability to spell, sorry...............
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The problem with a a multiple screening test like this is that it is likely to generate at least one result that is outside the normal range in a healthy person leading to futile investigations. The pathogenesis of dermatitis herpetiformis makes it unlikely that someone would have raised IgA-tTG3 but not raised IgA-tTG2. Suspected dermatitis herpetiformis should be referred to a specialist for diagnosis. dermatitis herpetiformis causes a specific rash and symptoms - not merely hives. https://bestpractice.bmj.com/topics/en-gb/3000326
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