Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks For The "duh" Moment

luvs2eat

By luvs2eat
in Coping with Celiac Disease

Recommended Posts

luvs2eat Collaborator
luvs2eat
Posted

I wasn't thinking... that's what. Of course you're all right. I was such a dolt to think that picking croutons off my salad was okay. I really was thinking that if I'm not having symptoms, I'm okay.

DUH... that's why I come here. For the good advice I always get.

Thanks for the wake-up call!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Well whats done is done...now you just have to make sure it doesn't happen so you don't do any more damage. Glad we all could help. :D

Guest Viola
Guest Viola
Posted

Good for you for taking this as a learning experience .. a lot of people would have got deffensive. We really are here to help each other out :D

luvs2eat Collaborator
luvs2eat
Posted
  • Author

Viola... have you been peeking into my brain?? Cause I totally got defensive!! But lucky for ME... I thought it through and realized that I'm not always as smart as I like to think I am... and it turned into a valuable learning experience.

Thanks for the support!

debbiewil Rookie
debbiewil
Posted

I read one study where they found MEASURABLE reactions to glutens in celiacs (ie. increased antibodies, etc.) with .1g of gluten. A slice of bread has about 4.8 grams of gluten, which means it's got 48 times the amount of gluten necessary to cause a celiac to have a measurable reaction. And with the size of the average crouton, one probably has at least 4 or 5 times the amount of gluten to cause a reaction. So even a few of those crumbs..... well, you get the picture.

Also, this is a good visual for people who try to tell you "Oh, a little won't hurt." Cut a piece of bread up into 48 pieces, and show them just how small an amount can cause a reaction.

Debbie

Claire Collaborator
Claire
Posted
Viola... have you been peeking into my brain?? Cause I totally got defensive!! But lucky for ME... I thought it through and realized that I'm not always as smart as I like to think I am... and it turned into a valuable learning experience.

Thanks for the support!

<{POST_SNAPBACK}>

Really glad you didn't get bent out of shape by the remarks. My own experience prompted my strong response. I live In PA and a few years back we had the nuclear accident at Three Mile Island. People actually went out there and stood around - just looking - not giving any thought to what radioactivity could be in the air they were breathing. They couldn't see it - so for all practical purposes it wasn't there. The gluten thing is a lot like that. Some people get very sick when exposed to even a small amount. Others do not, I personally can tolerate a small account - could eat a couple of cookies or a piece of pie without having any symptoms. But there is the unseen activity at the cell level that is doing the damage all the same. I am gluten free now. It is too soon to tell if "better late than never" holds true in this case.

Guest Viola
Guest Viola
Posted

Debbie, what a wonderful visual! And that would be for the average Celiac. A real sensitive one would react at less than that. Our big problems are very often caused by what we can't see. Such as a spice that has had starch added as a filler, and you certainly can't see the starch on Dry roasted peanuts, but it wil cause big damage. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted
  • Author

And I forgot my own favorite analogy... I might as well have said... "I can take off the big pieces of rat poison and blow any dust off."

Would I really eat that salad then??

debbiewil Rookie
debbiewil
Posted

Yes, it's all the small "hidden' gluten that I hate. I have no problem whatsoever staying away from bread, pasta, cookies, etc. But it's when you order the salad with grilled chicken breast, and make sure no croutons, you check or go without salad dressing, clean grill, etc. etc. then have a reaction anyway, because they used a commercial frozen chicken breast that has wheat actually in the chicken. Arggh!

And it's not just gluten. A co-worker who is allergic to tree nuts wanted a piece of cheesecake. I sat there and heard her ask the server about what was in it, telling the server she was allergic to nuts, asking that she check and make sure that there were no nuts on it or that it wasn't flavored with a nut extract, like almond, etc. After being assured several times that there weren't any nuts, she got a piece. One bite, and she said -"It's got nuts!" She ended up spending the afternoon in the hospital - there were almonds in the crust, and all the server could come up with was "you didn't ask about the crust, you asked about the filling and the topping!"

And nut allergies are quite common!

Debbie

Merika Contributor
Merika
Posted
And I forgot my own favorite analogy... I might as well have said... "I can take off the big pieces of rat poison and blow any dust off."

<{POST_SNAPBACK}>

LOL! that is funny :P

Merika

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,854
    • Most Online (within 30 mins)
      7,748
    Skijar
    Newest Member
    Skijar
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.