Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And Need Advice!


alib91

Recommended Posts

alib91 Newbie

Hello everyone,

 

I got diagnosed with coeliac disease about 2 weeks ago and have pretty much been gluten-free ever since, but I am still feeling really nauseous all the time, which gets a lot worse after eating/drinking anything. I also feel really bloated and after I eat, I look like I'm about 6 months pregnant, which isn't good for a 21 year old!

 

I was just wondering how long it should take before I start to feel better and if anyone has any advice to help with the discomfort in the meantime?

 

I have been eating less dairy since I was diagnosed, but haven't cut it out completely. I'm not sure if this is the right way to go in order to recover quicker?

 

Also, I gained a lot of weight before I was diagnosed and wondered how long before I starting losing and getting back to my old weight.

 

Finally, I am feeling really disorientated and my brain just feels like it isn't working at the moment, and I wasn't sure if this is normal!

 

I would ask my doctor these questions, but I'm in Spain for the next 5 months so unable to get much medical help!

 

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

You recover at the rate you recover. There is no way to really speed it up.

 

Some people have issues with dairy while healing, others do not.

 

More than likely is that you are still going through the withdrawl period from the Gluten.

nvsmom Community Regular

Yep, withdrawl can last a few weeks if you go through out... sounds like you are. Wait it out and then things should start getting better.

 

You might want to drop dairy or just lactose for a while in case it is causing you some issues. Try coconut or almon milk for a few weeks.

 

L-glutamine can help with intestinal healing and might speed up the process for you a bit. Others around here have found probiotics to be a great help. It is pretty generally accepted that eating whole foods, with as little processing as possible, also helps you feel better a bit sooner too.

 

Good luck... enjoy Spain. (I'm so jealous!)

alib91 Newbie

Ok, I will give L-glutamine a try and see if it helps!

 

Thank you both for your help! :)

LauraB0927 Apprentice

Welcome to the forum!  Expect to have your ups and downs before finally feeling better - it unfortunately doesn't happen overnight.  I was gaining a ton of weight too before my diagnosis, but sticking to a whole foods, low carb diet (read about the Primal diet) has helped me lose about 17-20lbs since my diagnosis.  It also helped my gut heal as I was adjusting to a gluten free diet.  Remember, the gluten free replacement foods (pasta, breads, cookies, etc) are actually loaded with more carbs/calories than the regular gluteny stuff.  Probiotics and digestive enzymes will help decrease the swelling and bloating in your tummy (which made me feel very self-conscious too in the beginning).  If you're going to Spain, they have these cards (I believe they're called Gluten Free Passports) that you can print out in Spanish so that you can take to restaurants and present it to your waiter (unless you speak Spanish).  It will let the chef know what foods in that culture you can and cannot eat.  I'm printing them out for my honeymoon in June.  

 

The brain fog (being disoriented) that you're also talking about will also clear up more as you stay gluten free.  Good luck and have fun in Spain!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.