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Biopsy Results For My 15 Yr Old Daughter

vicrn98

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vicrn98 Newbie
vicrn98
Posted

I am very new to this my 15 yr old daughter has had severe abd pain since 8/15 they did a biopsy last week and called the results to my husband last night. they found cells found in celiac disease and some signs of celiac disease on her endocopy but its not comfirmed until she gets lab work done which will be tomorrow. I had never heard of celiac disease prior to yesterday and the doctors i work with in the ER had heard of it but knew nothing about it. Needless to say i am extremley overwhelmed. Could she have these positive biopsy results and neg lab work. Would that mean she doesnt have it? I guess I am hoping at this point that there is some mistake

vic

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KaitiUSA Enthusiast
KaitiUSA
Posted

Sounds like she has it. Even if there is negative bloodwork I would say she has it. Obviously she has damage so even if negative bloodwork comes back she still has that damage. She would need to go gluten free then get a followup biopsy like 6 months later (after being 100% gluten free) to see how the progress is coming along with the damage. Most people can heal by 6 months gluten free but if it was extensive damage it can take alot longer.It can be overwhelming at first but there is alot we can still have and gluten free substitutes for other things that we can't have. It's really something to be thankful for because this is something that can easily be controlled with a gluten free diet. Going gluten free will heal the damage and prevent other damage from occuring. Not going gluten free with celiac will cause for more serious problems so it is important to follow it 100%.

This site is a invaluable resource that you will find so much information and support from.

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    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
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      By trents · Posted

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