Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Doctors Are Hard To Find...but I've Got One ! :)

VeggieGal

By VeggieGal
in Doctors

Recommended Posts

VeggieGal Contributor
VeggieGal
Posted

I'm sooo relieved and happy!

After having hospital appointments for over ten years for my Graves disease and a thyroidectomy ...to put it bluntly, Ive come across some arrogant, uncaring, ditsy doctors/consultants and a surgeon.....

however......

My coeliac Doctor/consulant from day one has been understanding, listens, knowledgeable, explains, is on the ball making sure Im having extra blood tests, vitamins, Dexa, diet etc and is a great advocate for trying to get me prescriptions plus hes incredibly honest saying its all about money and says how he has to fight for his patients to get prescriptions etc, and to top it off he's smilely and respectful!

Finally, my faith in Doctors is being restored!

:) :) :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Oh, that's a blessing!

Gemini Experienced
Gemini
Posted

I'm sooo relieved and happy!

After having hospital appointments for over ten years for my Graves disease and a thyroidectomy ...to put it bluntly, Ive come across some arrogant, uncaring, ditsy doctors/consultants and a surgeon.....

however......

My coeliac Doctor/consulant from day one has been understanding, listens, knowledgeable, explains, is on the ball making sure Im having extra blood tests, vitamins, Dexa, diet etc and is a great advocate for trying to get me prescriptions plus hes incredibly honest saying its all about money and says how he has to fight for his patients to get prescriptions etc, and to top it off he's smilely and respectful!

Finally, my faith in Doctors is being restored!

:) :) :)

 

So what you are telling me is that I need to fly across the Pond to find a good doctor?  ;)

 

It is all about money and it really is the same here in the States and is only going to get worse.  I'm happy that you found someone good because I refuse to go to GI docs for anything.  They insulted me for too many years trying to get diagnosed and I haven't found one I can trust.  Pretty sad, huh?

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Brilliant news :)

While the NHS has its problems, sometimes it comes up trumps. Great you will be getting some decent support.

Mw

PS Gemini, it is pretty cool here sometimes :), and it looks like you pop by every now and again..

VeggieGal Contributor
VeggieGal
Posted
  • Author

awww thank you all...

Gemini, ive been in the same position with drs in the past so I fully understand which is why im holding onto this one but youre welcome to fly across the pond!

Got my Dexa scan tomorrow; just nervous now about the radiation cos over the years ive had a few xrays plus I had radioactive iodine two yrs ago ...does it create a build up in the body as an extra risk ?

VeggieGal Contributor
VeggieGal
Posted
  • Author

I had the Dexa scan and think I was worrying over nothing..apparentely its such a small amount of radiation which we'd normally get in half hour being outside! Anyway, they just scanned my back and hips...just awaiting results now.

Gemini Experienced
Gemini
Posted

I understand your concern about radiation but it's  important to get the Dexa done because bone health is crucial to aging well.  You need strong bones so I think the amount of radiation that you will get hit with is minimal.  It's not like the x-ray machines of the past....like when I was a kid.  What I do myself is base radiation exposure to importance of testing.  I do not allow the dentist to just randomly take x-rays anymore of my teeth.  If all looks well at the dentist and I am having no issues with my teeth, I don't allow x-rays.  But I will have the Dexa done because I am working hard at the gym to reverse my osteoporosis in  my spine. No meds for me!  Good luck on your scan results....let us know what happens!  :)

I had the Dexa scan and think I was worrying over nothing..apparentely its such a small amount of radiation which we'd normally get in half hour being outside! Anyway, they just scanned my back and hips...just awaiting results now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

I love Great Britain.  My family heritage is English, Scottish and Irish so I have all bases covered.  That's probably why I have Celiac too!  I am coming over again this Sept./October for a 2 week trip and can't wait.  I love the history and find the people always welcoming and friendly. We will be returning to the Lakes District to hike.  It is a gorgeous area and we enjoyed ourselves so much the last time we were there.  Then we head off to London for a week because I will never be able to get enough of that city.  I think we have walked over the entire city, collectively, and it's always amazing to see stuff that is a thousand years old!  Every country has their problems but the positive outweighs the negative.....like the US too!

 

 

 

Brilliant news :)
 

 


While the NHS has its problems, sometimes it comes up trumps. Great you will be getting some decent support.

Mw

PS Gemini, it is pretty cool here sometimes :), and it looks like you pop by every now and again..

 

  • 4 weeks later...
solitaire-master Rookie
solitaire-master
Posted

Congrats, way to go on the find

VeggieGal Contributor
VeggieGal
Posted
  • Author

thanks soitaire master.

i never got results of my dexa scan so take it no news is good news! Just awaiting genetic results now.

Gemini...my heritage is also English, Irish and Scottish too. Is there something in it being celiac then?

Gemini Experienced
Gemini
Posted

Northern Europeans have a very high genetic susceptability to Celiac Disease.  Ireland, I believe, has the highest rates in Europe, although Italy comes in at a close second.  Ditto for Scandinavia.  Almost everyone I know with Celiac comes from one of the three area's.  Aren't we lucky?  ;)

VeggieGal Contributor
VeggieGal
Posted
  • Author

Northern Europeans have a very high genetic susceptability to Celiac Disease. Ireland, I believe, has the highest rates in Europe, although Italy comes in at a close second. Ditto for Scandinavia. Almost everyone I know with Celiac comes from one of the three area's. Aren't we lucky? ;)

Hmmm, aren't we just !! pffft !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which...
    2. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I had both the genetic genes for celiac. My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report. I also had polyps in 3 places throughout my large...
    3. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
    4. pweidema
      - pweidema commented on Scott Adams's article in Autumn 2025 Issue
      1

      The Unexpected Gluten Traps in International Snacks: What Not to Bring Back From Vacation

      Very informative. Thank you!
    5. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,333
    • Most Online (within 30 mins)
      7,748
    BeitAryeh
    Newest Member
    BeitAryeh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...