Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice For My 2 Year Old Son...

stephanie86

Recommended Posts

stephanie86 Rookie
stephanie86
Posted

Hello! My son is turning 2 in april. Ever since he was a baby he has had severe mucousy stools. At about 15 months dr finally agreed to do restriction diet and we found improvement with eliminating milk and soy. His stools did not go solid, but had SOME consistency. After complaining again to his dr she sent us to a gi because he has not gained any weight in 9 months. He has develoental and speech delays also. The gi agreed something is amiss besides toddlers diarrhea and tested for celiac, fats and sugars in stool and did a blood work up. His serum iga was in range at 53 and his ttg and tga were 3 with a range of 0-19. All his stool tests came back negative so it appears he is absorbing fats and sugars and his only deficiency is a tiny low on iron. His bun and creatinine are low which shows low muscle which we knew lol. I have not fully discussed what to do next with gi but I really thought he would be positive for celiacs with his symptoms! Has anyone had a similar experience and done biopsy anyways? I am going to do more allergy testing but I fear it will be a waste since he never has skin reactions, only gi issues. I am getting so discouraged. My lil guy is miserable...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

It is very possible that he has NCGI (non-celiac gluten intolerance), which has no test outside of the elimination of gluten from diet.

 

I have also heard that young children are quite difficult to test for it.

 

Allergies don't always turn up on the skin. My tomato allergy for example causes me to have a harsh sunburn like feeling on my head, face, neck and shoulders. I did the skin prick test and it was one of the largest hives the allergist had ever seen. Safe to say, he agreed i was allergic.

 

I've also heard that they can occur in different forms as well.

 

You could also do the genetic test, as celiac is genetic. It may not get a diagnosis, but it will give you some sort of idea of whether or not he has the potential to develop it or not.

GottaSki Mentor
GottaSki
Posted

Welcome!

 

With his symptoms I would insist on a full celiac antibody panel:

 

tTG IgA and IgG

EMA IgA

DGP IgA and IgG

 

You have already had Total Serum IgA -- what was the range for the test you quoted?

 

Also...more nutrient testing besides iron:

 

B1, B2, B6, B12, D, K, Ferritin, Zinc, Copper

 

Once all the blood is drawn -- I strongly suggest removing ALL gluten for at least three months...many children test sero-negative for Celiac Disease.  My own grands had all negative...yet removing gluten improved or removed all their symptoms.

 

Hang in there and ask any questions :)

stephanie86 Rookie
stephanie86
Posted
  • Author

Thank you! The iga was pretty in the middle... not sure exact numbers. The past few days for some reason has been horrible. His stools are back to pure mucus, and he will barely eat which is weird for him! All he wants is milk... well rice milk. I am calling allergist today...

GottaSki Mentor
GottaSki
Posted

Oh goodness....I hope he is feeling better very soon.

nvsmom Community Regular
nvsmom
Posted

My boys all tested negative for celiac disease but because I am a celiac, and I suspected issues in a couple of them, I made them gluten-free as well.  I was right to do so. Two of my kids health had obvious improvements.  :) We didn't do the biopsy since it would not have changed the fact that they were going gluten-free.

 

I agree with Lisa (she gives great advice) and try the gluten-free diet when his testing is done. Hopefully he'll feel well soon.

  • 1 year later...
eebright Newbie
eebright
Posted

have you noticed a change in your child's speech delay since going gluten free? We are in that process right now as well with our 2 year old (25 mos).   Went gluten free and cow dairy free 10 days ago due to horrible constipation (and I was so tired of giving her miralax every day for over a year), and no improvement whatsoever on her speech.    I have seen huge improvement in her constipation, no longer having issues almost immediately and no miralax, but no changed in speech quite yet.   I am trying to be patient there.    So, we don't know if it is the gluten or the dairy, or both... but that's where we are today.   Any advice from anyone?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

have you noticed a change in your child's speech delay since going gluten free? We are in that process right now as well with our 2 year old (25 mos).   Went gluten free and cow dairy free 10 days ago due to horrible constipation (and I was so tired of giving her miralax every day for over a year), and no improvement whatsoever on her speech.    I have seen huge improvement in her constipation, no longer having issues almost immediately and no miralax, but no changed in speech quite yet.   I am trying to be patient there.    So, we don't know if it is the gluten or the dairy, or both... but that's where we are today.   Any advice from anyone?

 

 

You asked that question in your own, current thread here:

 

https://www.celiac.com/forums/topic/110684-food-allergies-and-speech-delay-in-toddlers/

 

Might be better to discuss your issues on your own new thread?

 

The original poster has not been on the forum for almost 2 years.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      I take both Benfotiamine and TTFD. You might want to start with the Benfotiamine for a few days and then add in the TTFD. You can look for NeuroMag (Magnesium Threonate). A magnesium glycinate is fine, too. Doctor's Best is a good brand. Don't take more than 300mg total per day of magnesium or it may have a laxative effect. Be sure...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for...
    3. Oliverg
      - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar. 2 hours later I was throwing up violently on my hands and knees over the loo. .horrendous stomach pains, My hair was wet fro...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      Yes, do take your B Complex with Benfotiamine or Thiamax. Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day. Taking them too close to bedtime can keep you too energetic to go to sleep. The Life Extension Benfotiamine with Thiamine is Benfotiamine and...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748
    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Glutened

      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.