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- DanteZaffar replied to DanteZaffar's topic in Related Issues & Disorders2Young celiac person looking for advice
I’ve been avoiding oats and dairy and simply been eating more Whole Foods but I somehow always have symptoms.. I tried eating different food for a week including eggs meats and veggies alongside gluten free brown pasta and somehow I still managed to wake up today with a headache, anxiety, and just gi distress. It’s very annoying but I’m trying to find a sui... -
- trents replied to Beagirl's topic in Coping with Celiac Disease5New to this diagnosis
That's the spirit Beagirl! -
- trents replied to DanteZaffar's topic in Related Issues & Disorders2
Young celiac person looking for advice
Welcome to the forum, @DanteZaffar! Are you still eating oats (even gluten free oats) and dairy? There are other foods besides those that contain gluten that can cause celiac-like reactions. We call this "cross reactivity" (not to be confused with cross contamination). Their proteins are similar enough in structure to gluten to trigger the same kind... -
- Beagirl replied to Beagirl's topic in Coping with Celiac Disease5New to this diagnosis
I thank all who have replied to my initial comment. After letting it sink in for a few days and since eliminating gluten I have to say I do feel some better so all is not lost. I have investigated and there are lots of gluten free choices I can make without giving up really anything. At some point I will attempt to make my own gluten free bread when I have... -
- Scott Adams replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2EGD with flatten mucosa
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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By DanteZaffar · Posted
I’ve been avoiding oats and dairy and simply been eating more Whole Foods but I somehow always have symptoms.. I tried eating different food for a week including eggs meats and veggies alongside gluten free brown pasta and somehow I still managed to wake up today with a headache, anxiety, and just gi distress. It’s very annoying but I’m trying to find a suitable diet since I’m so young and just want to heal my intestines before moving onto things like milk and oats. I had a fear for awhile that I may have refractory celiac but I’ve noticed it wasn’t very common amongst newly diagnosed people. -
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Welcome to the forum, @DanteZaffar! Are you still eating oats (even gluten free oats) and dairy? There are other foods besides those that contain gluten that can cause celiac-like reactions. We call this "cross reactivity" (not to be confused with cross contamination). Their proteins are similar enough in structure to gluten to trigger the same kind of reaction. Oats and dairy are perhaps the most common offenders. You might try eliminating these two from your diet for awhile and see if symptoms improve. With dairy, lactose intolerance can also be an issue but often resolves in time when sufficient healing in the small bowel lining has taken place.
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I thank all who have replied to my initial comment. After letting it sink in for a few days and since eliminating gluten I have to say I do feel some better so all is not lost. I have investigated and there are lots of gluten free choices I can make without giving up really anything. At some point I will attempt to make my own gluten free bread when I have nothing else to do and see how that works. I got to thinking even though annoying it's not the end of the world, this problem is manageable, and it can be a learning curve for sure. Maybe this is just another part of the aging process so I better get used to it. Thank you all again.
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By Scott Adams · Posted
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.
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