Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fundoplication Surgery For Gerd?

jesimae

By jesimae
in Related Issues & Disorders

Recommended Posts

jesimae Apprentice
jesimae
Posted

Saw my GI doc yesterday, and he wants me to see a surgeon for fundoplication. I am doing very well with my diet. Scope was good. Markers down, but I still have horrible reflux! I sleep almost straight up, take 60 mg of prilosec and many tums throughout the day. I've tried prevacid, nexium, and carafate. They either did nothing or had really bad side effects.

At first I was excited at the prospect. Until I read the statistics, risks, etc. Inability to burp or vomit? That is really scary to me. Difficulty swallowing, paralytic pileus? 6 wk recovery? 10-20 lb weight loss (okay, that part I can deal with). Irreversible. May not work.

Anyone have this done? Advice, please.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

My GERD was not able to be controlled by medications. I became intolerent to them. So then, i stopped taking them. A year has passed and now its to the point where, while i get something every day, it is managable via tums, water or food. I cannot sleep without my incline pillow.

It was quite bad. Now it is mainly controlled by my diet. No greasy, fatty, rich, or spicey.

Have you had your gallbladder checked? I've heard that it can cause it. Another thing that might be causing it is you may have a low level of stomach acid. I've heard of that doing it as well.

I would explore other options at this point.

  • 2 months later...
Marlie Apprentice
Marlie
Posted

Have you had 24 hour impedence ph probe or a barium study?  These tests will tell you alot about your GERD.  My daughter had a Nissen and its a good thing she did.   She was refluxing all the time and it wasn't just acidic on all medications used to control GERD.  At the time she was Gluten free, Grain Free, and Dairy Free.  She only ate about five foods and still was vomiting every time something entered her stomach.  She had a structural abnormality and no medicine would work or would ever have.  She had it done robotically with very little scarring.  Would I make the same decision again?  Yes, absolutely.  

surviormom Rookie
surviormom
Posted

Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

  • 2 weeks later...
Marlie Apprentice
Marlie
Posted

Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

You might try getting a 24 hour PH impendence probe to check your refluxing.  Medications did not work for my child.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.