Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Completely Confused About My Toddler's Labs And Symptoms-Scoping In 1 Week

kendall9

Recommended Posts

kendall9 Newbie
kendall9
Posted

My 2.5 year old is in the process of being diagnosed with celiac.  I am so confused.

She has had recurrent frank blood in her stools off and on since she was about a year old.  We had a workup done with a pedi gi, who said she most likely had a milk protein intolerence that she would grow out of.  She was suffering from anemia at the time that resolved with iron supplementation.  He ran labs at that time for celiac to rule it out, and all came back normal.

 

3/7/12 reference ranges in parenthesis

Deamidated gliadin abs IgA 3 (0-19)

Deamidated gliadin abs IgG 11 (0-19)

t-Transglutaminase (tTG) IgA <2 (0-3)

t-Transglutaminase (tTG) IgG <2 (0-5)

Endomysial Antibody IgA-Negative (negative)

Immunoglobulin A, Qn Serum 52 (20-100)

 

Now, 3/28/13

tTg IgA >150 (<20)

Immunoglobulin A 113 (19-109)

 

Her Albumin, CBC and Auto sedimentation rate are all normal, but she is anemic again (previously resolved as of 9/12. 

 

She is getting a colonoscopy (originally to look for polyps as the source of the gi bleed), and endoscopy to rule out celiac, which now, with the labs back, looks more like to rule IN celiac. 

 

My daughter has been having blood in her stool daily since the begininng of the year, and the regular pedi kept blowing it off as a fissure.  When there was an increased amount of blood two weeks ago, I asked to be seen again by the gi pedi, who found these new results, including the bad anemia (Ferritin is less than 2 (11-307), and iron is less than 10 (35-180))  hematocrit is normal, hemoglobin is slightly low at 9.8 (10.5-13.5)

 

How can she have been negative a year ago and then double her values suddenly?  Can the elevated tTG be from anything other than celiac?  Wheat allergy? Intolerance?  I'm just totally confused.  Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

You might want to print these out and share with the doctor?

Open Original Shared Link

Young kids don't always make enough antibodies to show up in blood work. Looks like he is making enough now?

Open Original Shared Link

kendall9 Newbie
kendall9
Posted
  • Author

You might want to print these out and share with the doctor?

Open Original Shared Link

Young kids don't always make enough antibodies to show up in blood work. Looks like he is making enough now?

Open Original Shared Link

That makes sense about it not showing up a year ago, when she was only 18months old.  She didn't start eating solids until well after 6 months of age, and definitely no large quantities of gluten containing foods until more like a year.  Ok, that settles me a bit on that issue.   Thanks.  I'm still feeling totally lost about if I need to start accepting that she is most likely celiac.  Could anything else give a tTG off the charts?

kareng Grand Master
kareng
Posted

That makes sense about it not showing up a year ago, when she was only 18months old.  She didn't start eating solids until well after 6 months of age, and definitely no large quantities of gluten containing foods until more like a year.  Ok, that settles me a bit on that issue.   Thanks.  I'm still feeling totally lost about if I need to start accepting that she is most likely celiac.  Could anything else give a tTG off the charts?

I think Celiac is the preferable and most likely cause.

Open Original Shared Link

kendall9 Newbie
kendall9
Posted
  • Author

I think Celiac is the preferable and most likely cause.

Open Original Shared Link

Ok, that eases my mind a bit more again, thanks.  Next question.  :) If she isn't symptomatic in the typical ways of bloating, belly pain, diarrhea, etc... What happens once we go gluten free if she gets glutened?  Will she most likely show a reaction?  The only symptom she has is the anemia with blood in her stool- no growth or developmental issues.  No other apparent nutritional deficiencies. 

kareng Grand Master
kareng
Posted

Ok, that eases my mind a bit more again, thanks.  Next question.  :) If she isn't symptomatic in the typical ways of bloating, belly pain, diarrhea, etc... What happens once we go gluten free if she gets glutened?  Will she most likely show a reaction?  The only symptom she has is the anemia with blood in her stool- no growth or developmental issues.  No other apparent nutritional deficiencies. 

Who knows? It's different for everyone. I bet it will be different as she grows, too. It will be a " lovely" surprise. Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.