Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pancreatitis


minamoe

Recommended Posts

minamoe Newbie

I was just recently diagnosed with Celiacs almost three weeks ago. As of yet, we cannot find any genetic history in our family. However, we did read some literature that said pancreatitis was common with Celiacs. My uncle almost died from this over the summer. Does anyone else have pancreatitis. I was also wondering if there is anyone with Turner's Syndrome with no genetic history of Celiacs with it, as I have Turner's as well. Just wondering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Turner's syndrome has to do with one of your x-chromosomes. Celiac disease is thought to be on a different chrom (if it was on x, or x-assoc, more males than females would likely have it). Someone correct me, but I think celiac disease is assoc with chrom 6 or 16 (I think there is a 6 in there somewhere). Anyway, I hope it helps.

bluelotus Contributor

Forgot to mention too - I hadn't heard about the pancreatitis assoc, although I would not be suprised, however, I know it is assoc with gall bladder issues too. Both of those organs are involved with digestion and processing various items, so if something is wrong with the dig. tract, it would easily follow that assoc organs would experience trouble.

Carriefaith Enthusiast

I did some research on the connection between pancreatitis and celiac disease:

Open Original Shared Link

I was getting really concerned that I wasn't getting better after like 11 months on the diet, so I started doing a lot of research on other possible problems that I could have. Turns out I just needed longer to get better. I am fine now, unless I get glutened.

jenvan Collaborator

i don't have pancreatitis, but a woman in my local support group does. it can be very difficult to get rid of. and yes, there can be a link between it and celiac.

Lauren M Explorer

Oh... my...!!!

I had NO idea there was a link. I had pancreatitis 2 months before I was diagnosed celiac disease. I almost died. It was the most painful experience of my LIFE. I always thought it might have triggered my celiac disease. Maybe it was the other way around....?

This is VERY interesting to me. Anyone else had pancreatitis?

- Lauren

minamoe Newbie

I know what chromosomes are affected by Turner's. My brother-in-law was tested for Celiacs in the spring and my sister says she saw some research saying there was a link between Celiacs and Turners, as in there is a high prevalance of Turner's girls and women having Celiacs. I do not recall seeing this in any of the lists of medical conditions common with Turners, but I was just wondering.

Thanks for the feedback on the pacreatitis. I have a co worker who also has Celiacs and she gave me Lifeline, from the Celiac Sprue Association, and there were two articles on the connection...in England, anyone with pancreatitis is automatically tested for Celiacs. Outside of Turner's, my uncle having Celiacs as well is the only link I can find. Thanks again for the input!

Turner's syndrome has to do with one of your x-chromosomes.  Celiac disease is thought to be on a different chrom (if it was on x, or x-assoc, more males than females would likely have it).  Someone correct me, but I think celiac disease is assoc with chrom 6 or 16 (I think there is a 6 in there somewhere).  Anyway, I hope it helps.

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
bluelotus Contributor

Hi again - didn't mean to offend by mentioning Turner's was an issue related to your x-chrom.

I am reading "Dangerous Grains" and they mention that people with Turner's should be tested for celiac disease. I am only half way through the book, and so far, they haven't elaborated any more then just that statement.

terri Contributor

My dad died from pancreatitis. He was always ill every night after eating and only 56 when he died. I wonder if he was an undiagnosed celiac? Guess I'll never know.

  • 1 month later...
tasha77 Newbie
Oh... my...!!!

I had NO idea there was a link. I had pancreatitis 2 months before I was diagnosed celiac disease. I almost died. It was the most painful experience of my LIFE. I always thought it might have triggered my celiac disease. Maybe it was the other way around....?

This is VERY interesting to me. Anyone else had pancreatitis?

- Lauren

Just joined. I had acute pancreatitis in 2001, then chronic all these years. Lots of doctors and tests and procedures. Told it was idiopathic (unknown origin). I never believed it was really pancreatitis. Had gall bladder out a long time ago. Recently read a book, Perricone Prescription. The initial two-week eating plan sounded sensible to me. Easy to do since I enjoy broccoli, spinach, sardines, apples, etc. Only eating organic fresh foods, nothing processed. Lo and behold, no more abdominal pain. None. For Thanksgiving, ate bread and pie. Pain. Tried pasta, more pain. Fortunately, organic food is nearby, and it's just me, so no temptation in the house. No doctor ever mentioned celiac but friends did. It's great to be pain free!

yaso Newbie

I'm curious about something. celiac disease and wheat intolerance has been showing up on my mother's side of the family for the last 8 years. She has recently been daignosed with pancreatic cancer and I was wondering if there was a possible connection. I know diet isn't going to turn this around but I wondered if it might help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748

    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.