Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pmdd Or Pms?


Marie1976

Recommended Posts

Marie1976 Enthusiast

Hi everybody, I haven't been on here in a while...

 

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

 

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be. 

 

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

First, the prescription problem. Don't just drop off a prescription then ask a pharmacist if they are safe. Go to the pharmacy, ask what brand they will use to fill the prescription with and for a phone number for that company if possible. (If they don't have a phone number you can get it easily from the internet.) Then, call yourself. Drop the prescription off only when you know it is safe. I do not bother with manufacturers whose exclusive contact information is either email or international phone. Thanks, I'll pass on the language barrier since we have enough problems getting people we share a first language with to understand our issue. This is a personal choice that not everyone makes, nor advocates, and I am sure that some have found success contacting companies in this way. Once you have verified that a pharmacy can fill your prescription from a safe manufacturer, drop it off. When you pick it up, verify the manufacturer before paying. This seems neurotic, but I always do.

 

As for do I have these issues? My husband would probably tell you I am a psychotic you know what for several days, and maybe a bit more than a week before my period. I have simply learned to deal with it by attempting to keep my mouth shut and not speak for a week. My Grammy taught me as a little girl that if I don't have anything nice to say, not to say anything at all. I try to apply that rule. This generally meets with alternating amounts of success, but I am not finding this disruptive enough in my life to medicate.

gfkikamonster Newbie

Not a doctor, of course. But I have been diagnosed with PMDD and it's a lot more than PMS. Not only are the symptoms more severe, but they also cover more of the month. I have problems while I'm ovulating and for at least a week before my period as well as during.

That being said, a doctor should be able to help whether it is bad PMS or PMDD. I have done anti-depressants but now have been having good luck with just birth control to balance my hormones.

As to the prescription question, I think the other poster had good suggestions. Any medication can have gluten (and I have found some by mistake) but few actually do. Still need to do the research on whatever is prescribed.

ravenwoodglass Mentor

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

Marie1976 Enthusiast

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

ravenwoodglass Mentor

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

pricklypear1971 Community Regular

Hi everybody, I haven't been on here in a while...

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be.

Thanks in advance.

I've been struggling mid-cycle lately. I am Hashis - and we're working on it, but this mid cycle thing feels hormonal - because it has happened days 9-18 for 3 months.

And it is horrid. I feel like I'm having a thyroid flare - and maybe my thyroid is going a bit nuts, but oh man, it's somehow linked to my cycles.

I am currently on progesterone the last 2 weeks of my cycle - when I generally feel better. We are considering extending it to full cycle but lower dose the first half.

So, if you haven't had your thyroid worked up, and hormones...these may be factors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

 

With prescriptions and OTC I simply say that in addition to celiac and needing gluten free I also have a wheat allergy and I need to know for sure that the starch and fillers are not wheat derived. I'm annoying like that. :lol: Drugs and foods are two whole different ballgames we deal with.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,168
    • Most Online (within 30 mins)
      7,748

    watsonjennifer12
    Newest Member
    watsonjennifer12
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...