Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pmdd Or Pms?


Marie1976

Recommended Posts

Marie1976 Enthusiast

Hi everybody, I haven't been on here in a while...

 

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

 

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be. 

 

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

First, the prescription problem. Don't just drop off a prescription then ask a pharmacist if they are safe. Go to the pharmacy, ask what brand they will use to fill the prescription with and for a phone number for that company if possible. (If they don't have a phone number you can get it easily from the internet.) Then, call yourself. Drop the prescription off only when you know it is safe. I do not bother with manufacturers whose exclusive contact information is either email or international phone. Thanks, I'll pass on the language barrier since we have enough problems getting people we share a first language with to understand our issue. This is a personal choice that not everyone makes, nor advocates, and I am sure that some have found success contacting companies in this way. Once you have verified that a pharmacy can fill your prescription from a safe manufacturer, drop it off. When you pick it up, verify the manufacturer before paying. This seems neurotic, but I always do.

 

As for do I have these issues? My husband would probably tell you I am a psychotic you know what for several days, and maybe a bit more than a week before my period. I have simply learned to deal with it by attempting to keep my mouth shut and not speak for a week. My Grammy taught me as a little girl that if I don't have anything nice to say, not to say anything at all. I try to apply that rule. This generally meets with alternating amounts of success, but I am not finding this disruptive enough in my life to medicate.

gfkikamonster Newbie

Not a doctor, of course. But I have been diagnosed with PMDD and it's a lot more than PMS. Not only are the symptoms more severe, but they also cover more of the month. I have problems while I'm ovulating and for at least a week before my period as well as during.

That being said, a doctor should be able to help whether it is bad PMS or PMDD. I have done anti-depressants but now have been having good luck with just birth control to balance my hormones.

As to the prescription question, I think the other poster had good suggestions. Any medication can have gluten (and I have found some by mistake) but few actually do. Still need to do the research on whatever is prescribed.

ravenwoodglass Mentor

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

Marie1976 Enthusiast

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

ravenwoodglass Mentor

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

pricklypear1971 Community Regular

Hi everybody, I haven't been on here in a while...

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be.

Thanks in advance.

I've been struggling mid-cycle lately. I am Hashis - and we're working on it, but this mid cycle thing feels hormonal - because it has happened days 9-18 for 3 months.

And it is horrid. I feel like I'm having a thyroid flare - and maybe my thyroid is going a bit nuts, but oh man, it's somehow linked to my cycles.

I am currently on progesterone the last 2 weeks of my cycle - when I generally feel better. We are considering extending it to full cycle but lower dose the first half.

So, if you haven't had your thyroid worked up, and hormones...these may be factors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

 

With prescriptions and OTC I simply say that in addition to celiac and needing gluten free I also have a wheat allergy and I need to know for sure that the starch and fillers are not wheat derived. I'm annoying like that. :lol: Drugs and foods are two whole different ballgames we deal with.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    731049
    Newest Member
    731049
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.