Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Symptoms Of Gluten Intolerance Story


kenlove

Recommended Posts

kenlove Rising Star

Open Original Shared Link

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VeggieGal Contributor

Open Original Shared Link

thank you for that link Kenlove, I've been looking for something like that to put on my facebook for celiac awareness month :)

GFinDC Veteran

Hmmm,  i liked the first part of the article about symptoms of gluten intolerance.  But advising people to start the gluten-free diet without testing for celiac disease is bad advice IMHO.

 

Also, I think this statement is false:

 

Please note that gluten is a very large protein and it can take months and even years to clear from your system

 

That doesn't sound true to me.  She is basically saying people are walking around with donuts and pizza in their guts years after eating them.  Sounds slightly off kilter to me.  At some point you would think people wouldn't want to eat any more donuts, pizza or bread is this were true. Even non-celiacs with guts full of donuts would be uncomfortable.  Maybe that's what happened to the Michelin man? :)

 

.......

.......

 

And this one, while sensational, is something I would much rather see a reference for, than take on good faith.

 

An article published in 2001 states that for those with celiac disease or gluten sensitivity eating gluten just once a month increased the relative risk of death by 600%.

 

 

I ate gluten for years before starting the gluten-free diet.  By that logic, I should have croaked many years ago.  Maybe logic isn't the appropriate word to describe her assertion though.

 

Otherwise she has the right idea, and probably plans to make lots of money on it.  I guess you can consider me skeptical of her motives and her article.

VeggieGal Contributor

Hmmm, i liked the first part of the article about symptoms of gluten intolerance. But advising people to start the gluten-free diet without testing for celiac disease is bad advice IMHO.

Also, I think this statement is false:

Please note that gluten is a very large protein and it can take months and even years to clear from your system

That doesn't sound true to me. She is basically saying people are walking around with donuts and pizza in their guts years after eating them. Sounds slightly off kilter to me. At some point you would think people wouldn't want to eat any more donuts, pizza or bread is this were true. Even non-celiacs with guts full of donuts would be uncomfortable. Maybe that's what happened to the Michelin man? :)

.......

.......

And this one, while sensational, is something I would much rather see a reference for, than take on good faith.

An article published in 2001 states that for those with celiac disease or gluten sensitivity eating gluten just once a month increased the relative risk of death by 600%.

I ate gluten for years before starting the gluten-free diet. By that logic, I should have croaked many years ago. Maybe logic isn't the appropriate word to describe her assertion though.

Otherwise she has the right idea, and probably plans to make lots of money on it. I guess you can consider me skeptical of her motives and her article.

yeah agreed; after further reading, I didnt agree on the testing side of it either :(

AmyMyersMD Newbie

Hmmm,  i liked the first part of the article about symptoms of gluten intolerance.  But advising people to start the gluten-free diet without testing for celiac disease is bad advice IMHO.

 

 

The article is about gluten sensitivity not Celiac--- and as you likely know --- most Celiac testing is inaccurate anyway.  Which is why it's such a HUGE problem and many people are UNDER diagnosed.  I take gluten sensitivity very seriously and I have my patients who are sensitive to avoid it at all cost.  So as far as I am concerned it's the same treatment. I certainly test my patients for Celiac and as of yet no one has come up positive however almost 100% of my patients are gluten intolerant.

 

 

Also, I think this statement is false:

 

Please note that gluten is a very large protein and it can take months and even years to clear from your system

 

That doesn't sound true to me.  She is basically saying people are walking around with donuts and pizza in their guts years after eating them.  Sounds slightly off kilter to me.  At some point you would think people wouldn't want to eat any more donuts, pizza or bread is this were true. Even non-celiacs with guts full of donuts would be uncomfortable.  Maybe that's what happened to the Michelin man? :)

 

.......

.......

 

Actually it not false.  I see patients who have been gluten-free for months to years and their markers for gluten sensitivity are still very high.  And of course their guts are still a mess and leaky.  When I say 'clear' I mean to clear the antibodies.  I can certainly send you a list of references.

 

 

 

And this one, while sensational, is something I would much rather see a reference for, than take on good faith.

 

An article published in 2001 states that for those with celiac disease or gluten sensitivity eating gluten just once a month increased the relative risk of death by 600%.

 

 

That article source is: Lancet 2001 Aug; (Vol 358)

 

I ate gluten for years before starting the gluten-free diet.  By that logic, I should have croaked many years ago.  Maybe logic isn't the appropriate word to describe her assertion though.

 

Otherwise she has the right idea, and probably plans to make lots of money on it.  I guess you can consider me skeptical of her motives and her article.

 

 

Wow that's really disappointing!  I suffer from an autoimmune disease and gluten played a huge role in that.  I no longer have a thyroid and if my writing can prevent even one person from having to go through what I went through --- I have been successful.  Thankfully this article has reached millions and i have been able to help a lot of people.  MY goal is to educate and prevent others from ever being in my shoes. 

 

 

 

 

Hmmm,  i liked the first part of the article about symptoms of gluten intolerance.  But advising people to start the gluten-free diet without testing for celiac disease is bad advice IMHO.

 

Also, I think this statement is false:

 

Please note that gluten is a very large protein and it can take months and even years to clear from your system

 

That doesn't sound true to me.  She is basically saying people are walking around with donuts and pizza in their guts years after eating them.  Sounds slightly off kilter to me.  At some point you would think people wouldn't want to eat any more donuts, pizza or bread is this were true. Even non-celiacs with guts full of donuts would be uncomfortable.  Maybe that's what happened to the Michelin man? :)

 

.......

.......

 

And this one, while sensational, is something I would much rather see a reference for, than take on good faith.

 

An article published in 2001 states that for those with celiac disease or gluten sensitivity eating gluten just once a month increased the relative risk of death by 600%.

 

 

I ate gluten for years before starting the gluten-free diet.  By that logic, I should have croaked many years ago.  Maybe logic isn't the appropriate word to describe her assertion though.

 

Otherwise she has the right idea, and probably plans to make lots of money on it.  I guess you can consider me skeptical of her motives and her article.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.