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- RMJ posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Damage after 13 years gluten free
I’m frustrated with celiac disease and my current gastroenterologist (GI). I’ve been gluten free for almost 13 years, with normal antibodies for almost 8 years - except for one excursion of my DGP IgA 5 years ago which returned to normal when I changed brands of gluten free flour. All 4 celiac antibodies were positive 13 years ago but I didn’t h... -
- Pablohoyasaxa replied to Stephanie Wakeman's topic in Coping with Celiac Disease4Is it common to develop a wheat allergy in addition to Celiac Disease?
I was diagnosed with gluten sensitivity and a wheat allergy as a child in the early 1960s, . which I inherited from my father's DNA. My mom tried the best she could with both of us, but in those times health and allergies were kind of brushed aside. I grew out of it, or so we thought, but the rashes reared their ugly heads while I was in college. Keg parties... -
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- StuartJ replied to The Logician's topic in Related Issues & Disorders27Gluten Sensitivity
Unbranded - bought from a local Amish store -
- trents replied to The Logician's topic in Related Issues & Disorders27Gluten Sensitivity
@StuartJ, what brand of gluten-free flour did she use?
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I’m frustrated with celiac disease and my current gastroenterologist (GI). I’ve been gluten free for almost 13 years, with normal antibodies for almost 8 years - except for one excursion of my DGP IgA 5 years ago which returned to normal when I changed brands of gluten free flour. All 4 celiac antibodies were positive 13 years ago but I didn’t have an endoscopy for reasons unrelated to celiac disease. I did have one 9 years ago. The DGP IgA was still slightly elevated, GI saw some blunted villi visually, biopsy showed “patchy mild increase in intraepithelial lymphocytes” and “focal mild villous blunting” (Marsh 3A). For the past few years I’ve had intermittent trouble with nausea and stomach pain so my current GI suggested doing a repeat endoscopy. He saw nothing visually, but biopsy showed “focal mild intraepithelial lymphocytosis” and “minimal focal villous blunting”. All I got was a letter from the GI and his nurse that said there were mild changes consistent with celiac disease. I sent a message to the doctor asking where I go from here but just got an answer from a nurse saying it is better, less damage than 2016 so keep following the gluten free diet. So focal is better than patchy for increased lymphocytes and minimal focal is better than focal mild villi blunting? I feel this biopsy result after 13 years deserves some discussion, but this doctor never answers messages, his nurses just give out canned responses, it takes 6 months to get an appointment, and his only suggestion for nausea and pain was more soluble fiber. I’ve read that adults may not heal completely on a gluten free diet but with normal antibodies for years I was not expecting this result. I have made an appointment with a different GI who hopefully is more communicative. Rant over. Thanks for reading.
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By Pablohoyasaxa · Posted
I was diagnosed with gluten sensitivity and a wheat allergy as a child in the early 1960s, . which I inherited from my father's DNA. My mom tried the best she could with both of us, but in those times health and allergies were kind of brushed aside. I grew out of it, or so we thought, but the rashes reared their ugly heads while I was in college. Keg parties (wheat & gluten in beer and youthful reckess eating led to an outbreak. To the point, I am a 65 year old and now living with full blown celiac with dermatitis herpetiformis blisters that are just beginning to receed after being gluten-free for over 2 years at least. The lesions are so unsightly that I need to stay covered. Ive been living in South Florida and would love to wear shorts but people see the sores and thing I am a leper. Ive lost a lot of weigh from stomach cramps and frequent bowel movements. Will this ever end! -
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Well I'm pretty sure it was this one https://www.mamaknowsglutenfree.com/wprm_print/homemade-gluten-free-bread-bread-machine-dairy-free-option
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