Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity? Opinions Are Appreciated!


kramery

Recommended Posts

kramery Newbie

This is my first post although I have lurked here in the past.  I recently found out that geographic tongue is associated with celiac disease, and as I have had this since childhood, I'm thinking maybe I do have it!

 

My Timeline:

-Geographic tongue (constant since young age, not bothersome)

 

-2008: IBS-constipation (colonoscopy to rule out Crohn's; diagnosed as post-infectious IBS, after Salmonella infection 2 years before)

-extreme gas and bloating after meals (especially after having a sandwich with wheat bread) 

 

-10/2012: iron-deficiency anemia diagnosis. began iron therapy.

-11/2012: Became unable to drink tea or alcohol. Both would now make me feel 'weird in my head' (alcohol - bad kind of weird. also felt like i could feel it in my muscles. it was very strange.)

-12/2012: Began having really weird feelings after eating. Felt light-headed, dizzy, foggy (however, these symptoms went away after 2 weeks when I went back to school.)

 

-01/2013: Doctor suggested testing for celiac disease in addition to gluten-free diet for 3 weeks

-IgA test was negative

-Within a few days of starting gluten-free diet, I suddenly became lactose intolerant. I also couldn't handle fructose, as apples would give me bad gas. About a week later I was able to tolerate these foods again in small amounts.

-I noticed I was pretty bloated still throughout my gluten-free diet, which was disappointing, because I seriously look pregnant sometimes. When I started eating gluten again, I didn't notice any changes, and assumed I was not sensitive to gluten.

 

Now I am still bloated 24/7.  I am wondering if I should have done the gluten-free diet for longer than 3 weeks? Also, are there other blood tests besides IgA to transglutaminase? 

 

Thanks!!

 

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deaminated Marcus Apprentice

Were you gluten free prior to the blood test?

That will give you a false negative result.

 

The other tests you asked about are:  DGP-IgA  and DGP-IgG

 

 

Later after you've done the Celiac blood test panel, you could try a digestive enzyme pill.

kramery Newbie

Thanks, I'll look into the other tests and this digestive enzyme.

 

And no, I was not gluten free prior to the test. However, my normal diet doesn't have a ton of gluten in it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748

    dalimoda
    Newest Member
    dalimoda
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.