Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Vomitting For Over 24-Hours


crick3t

Recommended Posts

crick3t Newbie

I have not yet been officially diagnosed with Celiac, but am currently researching due to several doctors' recommendations.  About a month ago I started feeling extremely nauseas and sometimes vomiting directly after a meal.  I visited my primary care physician, and she suggested I try an exclusionary diet.  Silly me, two days ago I went out for McDonald's and had a beer.  About an hour after the beer I started feeling sick.  I vomited between seven and ten times that night, then woke up and immediately began vomiting again, nonstop, for hours.  I had to go to the ER.  Several people are now very convinced this indicates Celiac and that I need to switch to Gluen-free.  I am completely fine with this if it stops me from ever having to live though yesterday again!

 

I don't know anyone with Celiac, but do know one person with a gluten intolerance who said he feels lethargic and just "wrong" after ingesting gluten products.  That sounds much to mild to be what I experienced over the last 24+ hours.

 

Here is my question.  Has anyone else experienced severe symptoms like this before?  Or heard of someone who did?  I am at a loss here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brandiwine Contributor

I had what was like the stomach bug on steroids before I went gluten free, it was horrible! Have you had any tests done? How where you feeling before all the vomiting? What other symptoms do you have?

kareng Grand Master

Sounds like it could be food poisoning. Extreme vomiting isn't a common symptom of Celiac. I assume, since you went to the ER, they did a pregnancy test?

shadowicewolf Proficient

Yes, one of my symptoms was vomiting before i was diagnosed, but mine wasn't as bad as yours is. It was regardless of what i ate and it would happen at least once a day, not long after i ate.

crick3t Newbie

It started as vomiting after meals, for over a month, and then suddenly this happened.  I was feeling just fine before I started getting sick, just like all the other times.  It shouldn't be food poisoning, or else it's the most extreme case ever, since I've been having these symptoms for a month.  I'm not pregnant because I've had three pregnancy tests done since the symptoms started.  A stomach bug on steroids certainly sounds right.  I know it's not a common symptom, but is it a symptom at all?  

 

As I said before, I too was getting nauseated after ever meal (unless the meal was gluten-free, like veggies and hummus).  The vomiting was after eating things like pasta, tacos, drinking beer, or eating fast food.

 

This bout of vomiting was also accompanied by severe stomach pain, to the point where the ER had to give me an anti-nausea and then a painkiller.  What kind of symptoms did you all get?  Really, has anyone at all ever experienced symptoms like this?  Usually it was just a few hours of nausea and vomiting and then I was fine.

psawyer Proficient

Nausea and vomiting were among my symptoms prior to dx, but never like what you describe. I am thinking along the same line as Karen--this sounds more like food poisoning than a gluten reaction.

Brandiwine Contributor

Everybody does react differently and if you don't get sick while eating gluten-free sound like a the best reason to stay on a GFD. No two Celiacs are the same, we all have different reactions and different diets and food sensitivities and allergies. I had chronic D before, I kept myself from vomiting as much as possible, your case sounds extreme but I don't feel like you could mark it off the list of possible symptom at all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ollie's Mom Apprentice

I used to have what I called my days from hell where I'd have a terrible migraine, and I'd vomit almost continually all day long. It was not food poisoning, but it was always coupled with a migraine and a weird kind if diarrhea. The first few times I had that reaction, it was after I had had a beer or two the night before. Then it started happening more frequently, and seemingly rabdomly (although I now know the culprit was gluten).

I've also had food poisoning in my time, and the town are totally different feeling, although on the surface the symptoms sound similar (headache, vomiting, diarrhea). With food poisoning, I just prayed for it to be over quickly. With the gluten induced days from hell, I remember thinking to myself a few times that dying probably wouldn't be so bad, I actually felt that bad.

Brandiwine Contributor

I too can remember getting so sick that I felt like dying might not be so bad compared, that's just how bad it gets plus the mental and emotional effects gluten has. Thank God we know better know!!! There is a light at the end of the tunnel just hang in there!

  • 5 months later...
crick3t Newbie

I know this is an old post now, but I wanted to share this in case someone else comes to this forum for help with similar symptoms.  It turns out that you folks were both right, and wrong.  My case was too severe to be Celiac, because it wasn't.  It also wasn't food poisoning.  I had a benign tumor called Focal Nodular Hyperplasia.  It's a tumor on the liver, and usually causes no symptoms.  However, since mine was large (6-7 cm) and in the exact right spot, it pressed on my stomach and caused "false satiety," meaning that I'd eat once slice of pizza and feel so full it was disgusting and painful.  That would be followed by nausea and eventually vomiting.  Shortly after I posted this question, I was admitted to the hospital for a week because I literally could not stop vomiting.  They figured out what was wrong, thank God, and I have since had surgery to remove the tumor.  I am fully recovered and feeling better than ever.  Thank you everyone for your help, and thank you for continuing to insist that my symptoms were too severe to be Celiac, because you were right!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.