Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Shop Hungry


EmiPark210

Recommended Posts

EmiPark210 Contributor

Today my roommate and I went to the grocery store after a couple hours of walking around a museum so we were both shopping hungry. Everything I picked up had the coveted Austrian "gluteinfrei" symbol on it, until I got to the chips. I found one brand that based off the ingredients seemed safe, but then I found "Wild Tex Chili Chips" that looked delicious. A quick look over the ingredients yielded no warnings, the allergy listings didn't say anything about wheat or gluten, so I bought them. It wasn't until I was eating them in the elevator in my apartment building that I noticed the "wheat flour" in the English translation of the ingredients. I forgot that the allergin listings here don't include things that you can easily read in the ingredients, it's just traces that are listed. In my hungry state I didn't read the ingredients multiple times over, in every language I understand, until it was too late. I'm almost convinced that I shouldn't buy anything without that wonderful, government regulated, less than 20ppm label. Has this ever happened to anyone else?

 

Also, my short term coping method is a glass or two of wine because my initial reaction looks more like intoxication than anything else, and I'm really scared of mentally causing my reaction to become worse. So I have a drink, then I can't tell if it's the alcohol or the gluten that's making my head woosy and the world spin, and since I can't identify the source of my off-ness I feel like I won't accidentally psychologically make a mountain out of a mole-hill. But at the same time, I feel like this isn't a good coping mechanism. I never knowingly eat something with gluten and avoid CC at all costs, but when it does happen and I find out soon after, I get rid of the gluten food and triple check everything else in my kitchen.  Any other ideas on not psyching myself out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

I have heard about the wine thing, that some can avoid the worst of symptoms by drinking some wine!

 

About labeling, I have seen swedish labels where the wheat starch was not listed on top of the list.

 

Here the ingredients must be listed in falling order by weight, but not so over there I guess. (I do not tolerate wheat starch either, nor milk)  Also, it said lactose free on the package, and it actually contained milk (lactose free milk powder) so it did not help, since it was milk. (crazy bakers cookies)

 

here wheat is listed in the ingredients, not allergens

Pegleg84 Collaborator

I think we've all done that before, then are super incredibly careful afterwards. My best (er, worst) example is that I recently discovered I've been using shampoo with wheat protein in it for months! Like, I've bought it several times and never noticed. The conditioner has oat protein, which is fine, so I mustn't have read the shampoo label well enough... Coincidentally I've been feeling pretty great since I stopped using it.

 

Anyway, about the wine, it won't reduce your symptoms, but it will mask them with drunkeness. Maybe not a good regular coping mechanism, but i'm guilty of doing the same on occasion.

 

Also, don't freak out. It's just a reminder to always always (always always) read the labels! (this is our mantra). All of it. You never know what might be lurking.

It's great that you can read more than 1 language too. I've seen conflicting info on a few translated labels. For example, some Korean seaweed snacks that had "corn oil" listed in the english, but the french said "huile de soja" (soy oil), so I steered clear of those (soy intolerance).

 

I think here (canada) any major allergens should be (it isn't hugely enforced) listed below (contains: such and such) even if it's in the ingredients. It only needs to say "may contain" if not listed, and made in the same fascility.

Ingredients are usually listed by weight, so if it was just a little flour in the chip seasoning, it wouldn't have been listed first.

 

Hope the glutening doesn't last long.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    2. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    5. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,451
    • Most Online (within 30 mins)
      7,748

    emzie
    Newest Member
    emzie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.