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Do I Need More Test?


niese

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niese Explorer

I was diagnose with Celiac through a biopsy about month ago.  My dr then ordered blood work the script said Celiac Panel.  I get the results from that next week when I see him.   I am requesting  he check if I have any vitamin and mineral deficiencies and I want a food allergy test.  What else should I request? 

 

Thanks

 


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nvsmom Community Regular

Thyroid disease is in over 10% of celiacs. If you want that checked request:

  • TSH - should be near a 1 ore you could be subclinical - and need treatment
  • Free T4 and Free T3 - should be in the 50-75% of your lab's normal reference range
  • TPO Ab - should be pretty low

Some like to get bone density checked too but it's usually not needed.

 

I can't remember, have you had your kids checked too?

niese Explorer

Thyroid disease is in over 10% of celiacs. If you want that checked request:

  • TSH - should be near a 1 ore you could be subclinical - and need treatment
  • Free T4 and Free T3 - should be in the 50-75% of your lab's normal reference range
  • TPO Ab - should be pretty low

Some like to get bone density checked too but it's usually not needed.

 

I can't remember, have you had your kids checked too?

Thanks for the info, my kids are adults I advised them to be checked especially my daughter I see so many symptoms in her.  My son doesn't want tested.  I can't make them but I wish they would get tested. 

1desperateladysaved Proficient

Thanks for the info, my kids are adults I advised them to be checked especially my daughter I see so many symptoms in her.  My son doesn't want tested.  I can't make them but I wish they would get tested. 

Hang in there.  Some of mine are now being tested.  I just hope they had enough gluten to be positive if they need be!

nvsmom Community Regular

Thanks for the info, my kids are adults I advised them to be checked especially my daughter I see so many symptoms in her.  My son doesn't want tested.  I can't make them but I wish they would get tested. 

 Ah, I thought the little cuties in your avatar were your kids... if they are grandkids, they should be tested too. Chances are evryone is fine but it's good to check it out.  :)

 

Good luck with your appointment.

niese Explorer

 Ah, I thought the little cuties in your avatar were your kids... if they are grandkids, they should be tested too. Chances are evryone is fine but it's good to check it out.  :)

 

Good luck with your appointment.

Yes those are my grandchildren my oldest 7 and my youngest 1 month.  I advised both their parents to have them tested especially the oldest grandchild she complains alot about her belly hurting and she is a very picky eater eats alot of pasta and gets lots of headaches.  

notme Experienced

i finally convinced my son to get my grandson tested (and figured if he had it, convince my son to eat gluten-free as well because he has digestive issues) and i have no idea what test they did or what the numbers were but the pediatrician told them feeding him gluten-free would actually be detrimental :(  they will probably never get him tested again and the poor kid has been to the emergency room twice already b/c he is so constipated.  it was sooooo sooo so hard to potty train him when his body gives him zero lead time....  :(  

 

i had a heck of a time learning not to lick my fingers and i have a shared kitchen, too.  i did it without even thinking i had done it ("did i just lick my fingers?  while making a gluten sandwich for somebody else?  surely i didn't......"  lolz)  

 

but you seem like you have a good idea what you're doing - hope you feel better soon :)  


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niese Explorer

i finally convinced my son to get my grandson tested (and figured if he had it, convince my son to eat gluten-free as well because he has digestive issues) and i have no idea what test they did or what the numbers were but the pediatrician told them feeding him gluten-free would actually be detrimental :(  they will probably never get him tested again and the poor kid has been to the emergency room twice already b/c he is so constipated.  it was sooooo sooo so hard to potty train him when his body gives him zero lead time....   :(

 

i had a heck of a time learning not to lick my fingers and i have a shared kitchen, too.  i did it without even thinking i had done it ("did i just lick my fingers?  while making a gluten sandwich for somebody else?  surely i didn't......"  lolz)  

 

but you seem like you have a good idea what you're doing - hope you feel better soon :)

I know what you mean about licking your fingers, I have done that myself but I am getting more conscious of it.  Sorry to hear about your grandson pray he gets well. wow sounds like he had a terrible dr hope they get a second option.  

notme Experienced

I know what you mean about licking your fingers, I have done that myself but I am getting more conscious of it.  Sorry to hear about your grandson pray he gets well. wow sounds like he had a terrible dr hope they get a second option.  

i doubt they will - my son and the kid's mother are not together and i'm sure she doesn't regard my opinion as relevant - the best i may be able to do is get a copy of the test results (but i have asked and not gotten them.  i'm sure she doesn't want to 'fool' with it)  

 

(i know, right?  liiiick!   oops!!!  spit spit spit spit spit lolz)  <my husband always walks in and says something like, "oh, THAT'S ladylike...."  

 

here's another one - setting your napkin on the table (in crumbs when sharing a meal with gluten eaters) i always hold my napkin if it's going to wipe my mouth.  or set it in my lap.  or hold it with my elbow.  or put it on my head lolz anything but put it on the (OMGOSH IS THAT CRUMBS??) table. 

niese Explorer

i doubt they will - my son and the kid's mother are not together and i'm sure she doesn't regard my opinion as relevant - the best i may be able to do is get a copy of the test results (but i have asked and not gotten them.  i'm sure she doesn't want to 'fool' with it)  

 

(i know, right?  liiiick!   oops!!!  spit spit spit spit spit lolz)  <my husband always walks in and says something like, "oh, THAT'S ladylike...."  

 

here's another one - setting your napkin on the table (in crumbs when sharing a meal with gluten eaters) i always hold my napkin if it's going to wipe my mouth.  or set it in my lap.  or hold it with my elbow.  or put it on my head lolz anything but put it on the (OMGOSH IS THAT CRUMBS??) table. 

Oh my I never gave the napkin a thought, usually it is on my lap.  I did stop putting my fork on the table when I set it.  

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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