Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Still Healing Or Is It Cc


niese

Recommended Posts

niese Explorer

That friend I mentioned above also had C.difficile and after taking all the antibiotics, then the MC raged and she was a mess. My intestinal tract was inflamed from mouth to rectum and I believe the probiotics helped reduce the inflammation and get the bowels regulated. I had bowel issues for my entire life. Not any more.

Again, just a suggestion.

 

Maybe this will shed more light?

 

 

Open Original Shared Link

thank you I learned alot from that, running out to get some probiotics  :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

thank you I learned alot from that, running out to get some probiotics  :)

check them for gluten-free, DF status....and multi-strains! 

niese Explorer

check them for gluten-free, DF status....and multi-strains! 

confused what is DF status and multi strains mean?

IrishHeart Veteran

DF means dairy free (you may see that a lot on this site ) 

 

You want a probiotic that has multi-strains of "good guy" bacteria because there are many that live in our gut and we want to replenish them.

They all have different jobs. For example, Lactobacillus GG is good for diarrhea.

 

Like this one-- Culturelle:

 

Open Original Shared Link

 

 

 

or this one Jarro -Dophilis AF which has several strains

Open Original Shared Link

 

 

 

or this  one adult Multi strain

 

Open Original Shared Link

 

I have used all these and they are all good, IMHO

niese Explorer

DF means dairy free (you may see that a lot on this site ) 

 

You want a probiotic that has multi-strains of "good guy" bacteria because there are many that live in our gut and we want to replenish them.

They all have different jobs. For example, Lactobacillus GG is good for diarrhea.

 

Like this one-- Culturelle:

 

Open Original Shared Link

 

 

 

or this one Jarro -Dophilis AF which has several strains

Open Original Shared Link

 

 

 

or this  one adult Multi strain

 

Open Original Shared Link

 

I have used all these and they are all good, IMHO

duhh on the DF I just couldn't figure that one out.  Culturelle is the one I had my eye on, only one our Walmart has and it just right on package gluten free so I was happy.

Gemini Experienced

No seperate toaster yet but then again I haven't had bread in over 2 months, refuse to pay those high prices and I haven't had the energy to bake but when I do yes I will be getting one.  My thought is to get a toaster oven however I just know it will be used for gluten food but I figured its easier to clean it out before I use it, any thoughts on that

On, no, no, no, no!!!!!!!!!!  Make sure everyone knows that it is your toaster, can only accommodate gluten-free food and if they violate your gluten-free space, they will suffer pain of death.  :ph34r:

 

OK..that does sound a bit dramatic, doesn't it?  You really need to explain to them that they just cannot use your toaster because you will get sick.  Put a little sign near to it so they won't forget...maybe with a cute little skull and cross bones.  :P   I use a toaster oven myself and like them very much.  I have a gluten-free household to it's easier for me.

niese Explorer

On, no, no, no, no!!!!!!!!!!  Make sure everyone knows that it is your toaster, can only accommodate gluten-free food and if they violate your gluten-free space, they will suffer pain of death.  :ph34r:

 

OK..that does sound a bit dramatic, doesn't it?  You really need to explain to them that they just cannot use your toaster because you will get sick.  Put a little sign near to it so they won't forget...maybe with a cute little skull and cross bones.  :P   I use a toaster ooven myself and like them very much.  I have a gluten-free household to it's easier for me.

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

 

This is for the rest of your life. You need your own toaster. They cost 7 bucks at walmart's.

Toast it bags cost a lot more.

Your MIL better get used to you needing some things that are YOURS--safe and totally dedicated, hon. And she better not

do anything to put your life in danger. You cannot afford to keep glutening yourself through cc and living in the bathroom all day long.

You may need to set some rules down. ;)

niese Explorer

This is for the rest of your life. You need your own toaster. They cost 7 bucks at walmart's.

Toast it bags cost a lot more.

Your MIL better get used to you needing some things that are YOURS--safe and totally dedicated, hon. And she better not

do anything to put your life in danger. You cannot afford to keep glutening yourself through cc and living in the bathroom all day long.

You may need to set some rules down. ;)

I hear that

frieze Community Regular

I hear that

Do you live with her, or does she live with you?  Not trying to split hairs here.  If you live with her, she is the alpha female, the other way around you are and need to make that point.  if it is the first, take your toaster into your bedroom and leave it there when not in use, or even toast  your bread there and bring it out the kitchen/dining room.  Should you have to go to these lengths, hell no.  But mother-in-law sounds like it may be nec.  good luck

IrishHeart Veteran

I hear that

 

I know it may be difficult considering you live together, but honestly, she will have to take your diagnosis seriously or risk having you ill

indefinitely. Your husband surely must realize this?

 

This can be done without causing a fight. You just need a little space for your things. You know best how to handle it, but many people on here co-exist with WEs (wheat eaters) without any trouble at all 

and if you need some assistance with that, they will come to your aid.  :)

Gemini Experienced

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

The toaster bags are great for traveling...I use them for that but this is everyday life and Irish's advice is spot on.  Your husband needs to have a talk with his mother and defend your needs.  It can be done nicely but it needs to be done.  There are only a few times when you have to take a step over that line that is being drawn in the sand but this is one of them.

Don't let this worry you.  Just make sure she understands, however the two of you have to go about it.

 

Make her an offer she can't refuse...... ;)   :)

niese Explorer

Do you live with her, or does she live with you?  Not trying to split hairs here.  If you live with her, she is the alpha female, the other way around you are and need to make that point.  if it is the first, take your toaster into your bedroom and leave it there when not in use, or even toast  your bread there and bring it out the kitchen/dining room.  Should you have to go to these lengths, hell no.  But mother-in-law sounds like it may be nec.  good luck

We live with my in-laws.  She has health issues and it was just easier to move in to help her, however since I got sick 11 wks ago I haven't been much of a help to her.  She thinks Celiac is all in my head and I am crazy for listening to the doc,  This morning she said there is something else wrong with you its been 11 wks you should be fine your gluten-free diet is not working just eat normal food you will be fine.  I replied with this is my body and since following gluten-free diet I have seen improvement in my health and I will NOT eat anything that is going to make me sick, if anyone has a problem with that too bad. Last night she was cutting an orange she lays a slice of the orange down in front of me on the counter says here have a slice, I said thanks but I will pass since you just laid that in all that gluten crumbs from your bread.  She freaked she said now your going crazy on me a little crumb or two isn't going to kill you, your going to end up being a mental person if you keep freaking out over a few crumbs on your food.  She just doesn't understand CC and won't listen when I try to educate her.  Grrrrrrr so frustrating. 

niese Explorer

The toaster bags are great for traveling...I use them for that but this is everyday life and Irish's advice is spot on.  Your husband needs to have a talk with his mother and defend your needs.  It can be done nicely but it needs to be done.  There are only a few times when you have to take a step over that line that is being drawn in the sand but this is one of them.

Don't let this worry you.  Just make sure she understands, however the two of you have to go about it.

 

Make her an offer she can't refuse...... ;)   :)

we both have tried to talk to her over and over.  The main problem is she thinks all doctors are stupid and don't know what they are talking about.  When I first told her I had Celiac she looked it up online and read some article that said gluten-free diet doesn't show much improvement for ADHD and said see this gluten-free diet won't work for you. Tried to point out they are referring to ADHD I don't have that plus the article was dated 2006 and so much has changed since then.  She's the type that knows everything about nothing.  Don't get me wrong I do love my mother-in-law we get along wonderful, but sometimes she gets something in her head and you can't get her to understand nor accept the facts.  I guess she feels this is her home and if I were to change anything she lost control of her castle, but I just have to find away to work this all out.  

frieze Community Regular

We live with my in-laws.  She has health issues and it was just easier to move in to help her, however since I got sick 11 wks ago I haven't been much of a help to her.  She thinks Celiac is all in my head and I am crazy for listening to the doc,  This morning she said there is something else wrong with you its been 11 wks you should be fine your gluten-free diet is not working just eat normal food you will be fine.  I replied with this is my body and since following gluten-free diet I have seen improvement in my health and I will NOT eat anything that is going to make me sick, if anyone has a problem with that too bad. Last night she was cutting an orange she lays a slice of the orange down in front of me on the counter says here have a slice, I said thanks but I will pass since you just laid that in all that gluten crumbs from your bread.  She freaked she said now your going crazy on me a little crumb or two isn't going to kill you, your going to end up being a mental person if you keep freaking out over a few crumbs on your food.  She just doesn't understand CC and won't listen when I try to educate her.  Grrrrrrr so frustrating. 

ah! yes, some of her behavior is probably motivated by denial of her own health issues, and the having to give up some of her independence.  If this is going to be a long term living arrangement, I would suggest investing in a separate, basic kitchen, for yourself.  I wouldn't trust her not to sabotage you.

IrishHeart Veteran

ah! yes, some of her behavior is probably motivated by denial of her own health issues, and the having to give up some of her independence.  If this is going to be a long term living arrangement, I would suggest investing in a separate, basic kitchen, for yourself.  I would trust her not to sabotage you.

 

 

This! I totally agree.

frieze Community Regular

This! I totally agree.

sometimes ya gotta work with what you're given, banging your head agin the wall, ain't gonna change 'er.  Y'all will gest end up with a soar hade!

1

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.