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I Am Gluten And Dairy Free, What Am I Missing?


defeatwheat

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defeatwheat Rookie

       I have followed the gluten free diet strictly for about nine years after being diagnosed with Celiac and have been dairy free for about a year. I still get bouts 2-4 times a year where I bloat up, get constipated sometimes to a scary extreme and am exhausted and feel horrible. My gastro doctor has said every test that can be ran has been ran. I take Chlord to help with stomach spasms and Omeprozol to help with acid reflux. I stay away from things like tomatoes, corn, popcorn and nuts - anything that I think has been an issue I eliminate. I think it must be food related because nothing has shown on CT scans or x-rays or even a colonoscopy. Any ideas on medicine or diet?

      Also when my stomach is out of whack it affects me psychologically. I have tried several antidepressants/anxiety medicines but all seem to irritate my system. I take a herbal supplement St Johns Worts, that helps some.


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Juliebove Rising Star

Omeprazol can really do a number on your stomach!  It slows digestion.  That could cause constipation.

dilettantesteph Collaborator

You need to look at what you are ingesting when these events happen.  It could be another food intolerance, or it could be cc in your diet.  Does it happen at a certain time of year?  When you go to a certain restaurant?  During wheat harvest?  After you eat a certain brand of chips?  

 

What helps me keep track is to keep a food/symptom journal.  I keep my diet simple and with mainly produce and unprocessed meats.  I try to make only one change per week so that I can easily determine what is the cause of any problems that I have.

 

I hope that helps and you feel better soon.  I also get psychological issues from glutening.  It can be difficult.

neal Rookie

What is cc in a diet? 

notme Experienced

What is cc in a diet? 

cross-contamination :)  when all your ingredients are gluten-free and then it gets messed up by (croutons on a salad, cutting gluten-free sandwich on gluteny cutting board, cooking in a contaminated whatever, etc)  restaurants are good at cc lolz

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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