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Celiac And Arthritis?


solarpower

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solarpower Rookie

I have been on a gluten free diet for just over a year now. However I have been experiencing joint pain in my neck, back and hips and feet. Over time it has been getting progressively worse. Last week my right knee swelled up and it was to painful to walk and caused me to miss work. This prompted me to go see a doctor even though I have very little faith in them. Fortunately this doctor really seemed genuine and wanted to help. He had me go in for several blood tests. Today I heard back about my rheumatoid test and that was negative (thank god). I was told that my imflammation was very high though. He gave me a prescibtion for Meloxicam which is a generic form of Mobic. I really hate using drugs. Is this drug safe? I really prefer natural sources of medicine. I haven't had any of my typical celiac symptoms and am unsure as to the cause of the arthritis type pain. I was hoping someone could offer some possible solutions or information.


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bartfull Rising Star

Have you been tested for lyme or other tick-borne diseases?

HumanDecency Contributor

How are all your other levels? Any abundant buildups or deficiencies?  I seem to get a lot of inflammation as well. I can't offer much help though as I haven't completely narrowed it down. I know when I move around a lot I get stiff joints and pain but that goes away in a day or two.

solarpower Rookie

I haven't been tested for lyme disease or anything related, doctors in my area are very ignorant of such things. I have had blood tests earlier this year to test for mineral/vitamin levels and deficiencies. I did have really low vitamin D and have been supplimenting for that but I was never alerted to anything else. I'm at a loss at the moment on what to try in regards to my joint pain. I want to feel my age again (31).

jhol Enthusiast

do you eat dairy,

 

a lot of celiacs find they have to give it up or become lactose intolerant. another thing is nightshade vegatables- potato,s, tomato,s, all peppers, aubergine- these can cause joint pain

hope you get an answer. :)

solarpower Rookie

Dairy is pretty rare in my daily diet. I do consume nightshades on a regular basis. I recall seeing some information on nightshades causing inflammation in some people. I suppose its worth a try to eliminate them for a while to test that theory. I'm kind of skeptical of food sensativity in regards to natural foods, but in the world of GMO, pesticides and whatever else is done to our food I wouldn't be surprised.

seezee Explorer

Last year I had awful joint pain and it turned out to be parvo virus and it got better. 


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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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