Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kaiser Patients - Help With See Note

aimless75

Recommended Posts

aimless75 Rookie
aimless75
Posted

Hi,

I have been having my kids tested for a bunch of things including celiac and I just got back my 7 year old's son's tests and it says SEE NOTE for both tTG IgG and tTg IgA.  When my daughter and I had ours done the numbers were shown, but they were both negative.  My daughter was close (.87) when Kaiser reference range is >.90.  So, of course now it's 9pm and I can't called and I'm a little bit freaking out because I'm assuming it's only bad results that they won't show on the automatic lab emails (now I have to wait to talk to the doctor to get the results).  Did this happen to anyone else with kaiser or did your positive results also come up on your lab email???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Hang in there Mom.

 

Forgive me...but if you are all being tested for Celiac Antibodies...do you suspect a gluten issue?

 

Again...sorry if I miss understood.

 

Welcome to the Forum...feel free to read as much as you like, hang out a bit and ask questions..always someone hanging out here :)

aimless75 Rookie
aimless75
Posted
  • Author

Hang in there Mom.

 

Forgive me...but if you are all being tested for Celiac Antibodies...do you suspect a gluten issue?

 

Again...sorry if I miss understood.

 

Welcome to the Forum...feel free to read as much as you like, hang out a bit and ask questions..always someone hanging out here :)

Yes, I have been undergoing tests for a few months and am in the middle of a gluten challenge and am scheduled for a endoscopy/colonoscopy on Wednesday to rule out Celiac, Chrohn's and eosinophilic gastritis.  I had my daughter tested because she is so small and fell off her curves but she was negative, but borderline.  My son has a lot of stomachaches, foul and yucky BM, joint pain (told growing pains), and a lot of allergy issues that he ended up being on prednisone last year and now is on Singulair daily.  I finally asked to have him checked for a bunch of stuff because I planned on taking them both off gluten and dairy for a month to see if things got better, but I wanted a baseline before.  I'm still waiting til they open so I can call but our pediatrician of course is out of office all week so hopefully someone else will tell me.

GottaSki Mentor
GottaSki
Posted

Yes, I have been undergoing tests for a few months and am in the middle of a gluten challenge and am scheduled for a endoscopy/colonoscopy on Wednesday to rule out Celiac, Chrohn's and eosinophilic gastritis.  I had my daughter tested because she is so small and fell off her curves but she was negative, but borderline.  My son has a lot of stomachaches, foul and yucky BM, joint pain (told growing pains), and a lot of allergy issues that he ended up being on prednisone last year and now is on Singulair daily.  I finally asked to have him checked for a bunch of stuff because I planned on taking them both off gluten and dairy for a month to see if things got better, but I wanted a baseline before.  I'm still waiting til they open so I can call but our pediatrician of course is out of office all week so hopefully someone else will tell me.

 

Sounds like a great plan to remove all gluten to monitor symptom changes/improvement.  Kids often improve more quickly than adults, but it still can take some time to reverse the autoimmune type symptoms...I strongly suggest removing gluten for a minimum of three months - six is better.

 

I can tell you my teens tested negative but have both improved gluten-free.  One of which had "growing pains" consistently for years -- when gluten had been removed for some time -- no more joint/muscle pain and he grew about a foot that first year gluten-free with no "growing pains".

  • 3 years later...
Bina Newbie
Bina
Posted

@aimless75 so I was wondering what did "see note" mean. I'm in the situation you were in and am curious of what that result means. 

cyclinglady Grand Master
cyclinglady
Posted
9 hours ago, Bina said:

@aimless75 so I was wondering what did "see note" mean. I'm in the situation you were in and am curious of what that result means. 

This is an older posting, so I am not sure the original OP will respond.   Kaiser is great, but they are all about keeping the costs down.  So, they do not allow their first-line doctors to order anything but the TTG tests for celiac screening.   Only a GI (or perhaps a higher up specialist) can order an entire panel.  If you tested negative on the TTG, and are still struggling with celiac-like symptoms, I recommend asking for a GI referral.  Ask for the complete panel and document in writing (be nice).  

Why do I know this?  I test negative always to the TTG.  When family members went to Kaiser to get celiac testing, their PCP doctor could only order the TTG.  

So, do not give up on a celiac disease diagnosis without getting the complete panel.  

  • 1 month later...
confused23 Newbie
confused23
Posted
On 10/20/2016 at 1:05 AM, Bina said:

@aimless75 so I was wondering what did "see note" mean. I'm in the situation you were in and am curious of what that result means. 

I have a result with see note by it as well. Was your outcome good or bad :( I'm anxiously awaiting a call from my doctor now

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748
    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.