Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone Please Help With My Blood Results

niese

Recommended Posts

niese Explorer
niese
Posted

Here are my blood results, my GI dr said I am boarderline Celiac, ok whatever doc.  I have found a new GI dr that is suppose to be a specialist in Celiac but I don't see him till Aug 20th.

 

 

IgA Serum        248

Reference range 81 to 463

 

Gliadin Antbody, IgG    23

Reference range <20

 

Gliadin Antibody, IgA  6

Reference range <20

 

tTG IgA Antibody   1

Reference range <4

 

The biopsy suggest I have Celiac as well.

 

can anyone please tell me what my blood work means?

 

I was still eating gluten at the time of my test but I am now gluten free for almost 2 months.  

 

Thanks

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

The total serum IgA is the control test to make sure you make enough immunoglobulin A for the othet tests to be accurate (5% of celiacs don't). Yours is in the middle of normal and perfect.

 

The Gliadin antibody tests are most likely the anti-gliadin antibodies (AGA Iga and AGA IgG) tests. That's an older test and not usesd as often anymore partially due to it's unreliability. That test indicates gliadin sensitivity. It is the only test that does not test for damage being done to the intestinal villi, and for those reasons it is thought by some to test for celiac disease and for NCGS (non-celiac gluten sensitivity).  A positive AGA IgG indicates celiac disease or even possibly NCGS.

 

It's a shame that they did not test your tTG IgG, you could be one of those people whose serological tests tend to be positive in the immunoglobulin G's instead of IgA's. The IgA and IgG's are just parts of the immune response that are made in different parts of the body. IgA is used more proabably because it is made in the mucosal areas of the body like the gut, whereas the IgG is more ssytemic (as I understand it). You might want to ask for the tTG IgG test.

 

They did not run the DGP (deaminated gliadin peptide) tests which are the newest tests around. These tests seem to catch a lot of the early cases like in young kids. You might want to request them too. They did not run the EMA IgA, but if your tTG IgA was negative, chances are that it would be too.

 

To me, your blood work says celiac disease, or possibly NCGS but because your biopsy suggests celiac disease, then that positive AGA must be from celiac disease. You are in the gluten-free for life club.  ;)

niese Explorer
niese
Posted
  • Author

The total serum IgA is the control test to make sure you make enough immunoglobulin A for the othet tests to be accurate (5% of celiacs don't). Yours is in the middle of normal and perfect.

 

The Gliadin antibody tests are most likely the anti-gliadin antibodies (AGA Iga and AGA IgG) tests. That's an older test and not usesd as often anymore partially due to it's unreliability. That test indicates gliadin sensitivity. It is the only test that does not test for damage being done to the intestinal villi, and for those reasons it is thought by some to test for celiac disease and for NCGS (non-celiac gluten sensitivity).  A positive AGA IgG indicates celiac disease or even possibly NCGS.

 

It's a shame that they did not test your tTG IgG, you could be one of those people whose serological tests tend to be positive in the immunoglobulin G's instead of IgA's. The IgA and IgG's are just parts of the immune response that are made in different parts of the body. IgA is used more proabably because it is made in the mucosal areas of the body like the gut, whereas the IgG is more ssytemic (as I understand it). You might want to ask for the tTG IgG test.

 

They did not run the DGP (deaminated gliadin peptide) tests which are the newest tests around. These tests seem to catch a lot of the early cases like in young kids. You might want to request them too. They did not run the EMA IgA, but if your tTG IgA was negative, chances are that it would be too.

 

To me, your blood work says celiac disease, or possibly NCGS but because your biopsy suggests celiac disease, then that positive AGA must be from celiac disease. You are in the gluten-free for life club.  ;)

Thanks Nicole, so when I request these other test you suggested do I have to go back to eating gluten for them? I pray not cause I feel about 75% better now that I have gone gluten-free.  If dr can just get my bowels under control life would be great. 

GottaSki Mentor
GottaSki
Posted

Thanks Nicole, so when I request these other test you suggested do I have to go back to eating gluten for them? I pray not cause I feel about 75% better now that I have gone gluten-free.  If dr can just get my bowels under control life would be great. 

 

Welcome Niese!

 

I agree that both a tTG IgG and DGP IgG should have been run before gluten was removed.  I suggest you still have them done just so your chart has the full antibody panel as close to removing gluten as possible. 

 

Since your biopsy indicated Celiac Disease as well - I do not suggest returning to eating gluten for any tests now.  I do suggest you get a written or electronic copy of both the procedural and pathology reports of your endoscopy to find out exactly what type of damage was seen or revealed via biopsy.

 

I also suggest you call your primary's office and ask if they can order the missing tests from your Celiac Antibody Panel along with nutrient testing - as malabsorption of nutrients is another strong indicator of Celiac and this info is important if you need to be supplementing any nutrients while healing.  If your primary says no, try getting a message to the Celiac specialist that you are already gluten-free -- perhaps they can move the appt up or order the tests now so he/she will have the results for your appointment next month.

 

Below are the nutrient tests my Celiac Doc ran at diagnosis and annually - if you did not have these done during your diagnosis process - I would add them now so you have as close to starting data as possible.:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc

CMP

CBC

 

Hang in there :)

niese Explorer
niese
Posted
  • Author

Welcome Niese!

 

I agree that both a tTG IgG and DGP IgG should have been run before gluten was removed.  I suggest you still have them done just so your chart has the full antibody panel as close to removing gluten as possible. 

 

Since your biopsy indicated Celiac Disease as well - I do not suggest returning to eating gluten for any tests now.  I do suggest you get a written or electronic copy of both the procedural and pathology reports of your endoscopy to find out exactly what type of damage was seen or revealed via biopsy.

 

I also suggest you call your primary's office and ask if they can order the missing tests from your Celiac Antibody Panel along with nutrient testing - as malabsorption of nutrients is another strong indicator of Celiac and this info is important if you need to be supplementing any nutrients while healing.  If your primary says no, try getting a message to the Celiac specialist that you are already gluten-free -- perhaps they can move the appt up or order the tests now so he/she will have the results for your appointment next month.

 

Below are the nutrient tests my Celiac Doc ran at diagnosis and annually - if you did not have these done during your diagnosis process - I would add them now so you have as close to starting data as possible.:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc

CMP

CBC

 

Hang in there :)

Thanks for the info I do have these test on my list to ask my dr for.  I will call my old GI dr tomorrow to request the test results of my biopsy, thanks for being so helpful. I DO NOT want to return to eating gluten I was way too sick and in too much pain it was so bad no pain meds helped me I just had to deal with the pain  :(

GottaSki Mentor
GottaSki
Posted

Thanks for the info I do have these test on my list to ask my dr for.  I will call my old GI dr tomorrow to request the test results of my biopsy, thanks for being so helpful. I DO NOT want to return to eating gluten I was way too sick and in too much pain it was so bad no pain meds helped me I just had to deal with the pain  :(

 

Completely understand and agree....you seem to have enough for on official diagnosis -- but things can go a bit wonky with the process at times....the tests are not perfect and the system is far, far from perfect.

 

Your improvement gluten-free is another huge piece of the puzzle....happy to hear you have already had some :)

niese Explorer
niese
Posted
  • Author

Completely understand and agree....you seem to have enough for on official diagnosis -- but things can go a bit wonky with the process at times....the tests are not perfect and the system is far, far from perfect.

 

Your improvement gluten-free is another huge piece of the puzzle....happy to hear you have already had some :)

Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

I think you might as well get tested too, even if you have been gluten-free for a few months as sometimes the antibodies stay elevated for quite some time gluten-free. my tTG IgA was still elevated after a year so I know it can happen.

I hope you continue to feel better gluten-free.

niese Explorer
niese
Posted
  • Author

I think you might as well get tested too, even if you have been gluten-free for a few months as sometimes the antibodies stay elevated for quite some time gluten-free. my tTG IgA was still elevated after a year so I know it can happen.

I hope you continue to feel better gluten-free.

 

I think you might as well get tested too, even if you have been gluten-free for a few months as sometimes the antibodies stay elevated for quite some time gluten-free. my tTG IgA was still elevated after a year so I know it can happen.

I hope you continue to feel better gluten-free.

Thank you

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,180
    • Most Online (within 30 mins)
      7,748
    Ruby B
    Newest Member
    Ruby B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      Is Toblerone Gluten-Free?

      By Sheila mellors · Posted

      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...