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Chronic Canker Sore Attacks

becksss

By becksss
in Related Issues & Disorders

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becksss Newbie
becksss
Posted

Hey i have been having horrible sores in my mouth...just horrible. They all start as blisters..so some sort of herpetiformis...it sucks. My doctor After having blood test said i came up positive for gluten antibodies so he said its best to stay away from gluten until i see a GI he has recommended they cant get me in for a biopsy until next month. So i have been gluten free for almost three weeks now...and i still have violent little bastardly ulcers in my mouth..has anyone who has delt with this tell me how long itll take before these symptoms go away? I would take stomach pains over this anyday..:(

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kareng Grand Master
kareng
Posted

Just an FYI - if you want any additional testing - like an endoscopy, you will need to continue eating gluten.

AlwaysLearning Collaborator
AlwaysLearning
Posted

If the canker sores are being caused by gluten, they may not heal at all until you go gluten free. A canker sore that just kept getting bigger and bigger over several weeks was what made me finally pinpoint gluten as the source of my problems.

But yeah, if you want to get a definitive confirmation of celiac rather than just knowing that you have a gluten allergy, go get the endoscopy now before going gluten free. The detox and retox processes can both be pretty awful so you definitely don't want to go through it more than once.

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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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