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New Here...is Gluten My Problem?

Jake'sMom87

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Jake'sMom87 Newbie
Jake'sMom87
Posted
  • Author

That's interesting.  So you don't feel like that anymore?  Are you gluten-free?

 

Robin

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Rachel2writer Newbie
Rachel2writer
Posted

Yikes - a TSH that high is definitely too high IMO. The newer ranges ARE between .3 and 3.0, I agree.

 

I have thyroid disease for 18 years. I've learned through years of research and becoming my own champion that a TSH near 5.0 makes me feel miserable. Mine hovers (treated on armour thyroid) right around 1.0 for me to feel well. Check info on Open Original Shared Link for tons of great information about thyroid testing, optimal ranges, and treating for symptoms, not just a number on a lab test.

 

Good luck!

Jake'sMom87 Newbie
Jake'sMom87
Posted
  • Author

Yikes - a TSH that high is definitely too high IMO. The newer ranges ARE between .3 and 3.0, I agree.

 

I have thyroid disease for 18 years. I've learned through years of research and becoming my own champion that a TSH near 5.0 makes me feel miserable. Mine hovers (treated on armour thyroid) right around 1.0 for me to feel well. Check info on Open Original Shared Link for tons of great information about thyroid testing, optimal ranges, and treating for symptoms, not just a number on a lab test.

 

Good luck!

Hi! Yes I've heard the same things about the TSH range, but how do I get my doctor to understand this? It's so frustrating. I'm miserable everyday and they won't look past the result falling within the normal range. That site is great!

nvsmom Community Regular
nvsmom
Posted

I had to go in search of "alternative" doctors who were willing to prescribe natural dessicated thyroid before I found a doctor who "gets it". My current TSH is 0.01 (range is 0.20-6.00) and my free T3 is 5.6 (range 3.5-6.5) and I feel the best I have in years in spite of the fact that my TSH would freak out most doctors.  My family doctor said I was normal and healthy as soon as my TSH got below a 6; once I argued synthroid increases so my TSH got to a 3, my doctor refused to go any lower even though I felt no better. I went doctor hunting and I'm glad I did.

 

Good luck!

Jake'sMom87 Newbie
Jake'sMom87
Posted
  • Author

I had to go in search of "alternative" doctors who were willing to prescribe natural dessicated thyroid before I found a doctor who "gets it". My current TSH is 0.01 (range is 0.20-6.00) and my free T3 is 5.6 (range 3.5-6.5) and I feel the best I have in years in spite of the fact that my TSH would freak out most doctors.  My family doctor said I was normal and healthy as soon as my TSH got below a 6; once I argued synthroid increases so my TSH got to a 3, my doctor refused to go any lower even though I felt no better. I went doctor hunting and I'm glad I did.

 

Good luck!

 

Thanks for the reply.  Yeah I have been to numerous doctors for all of my issues.  But after talking to you guys I know I have identified at least one of the culprits (my thyroid).  I just need to keep working to find a doctor who will help.  It's discouraging because it takes so much time and money to keep seeing all these people with no help.  What do you think about holistic doctors?  I heard great things about one where I live, but I guess I'm under the impression that they don't run tests and diagnose people.  I could be completely wrong... 

nvsmom Community Regular
nvsmom
Posted

I think some are helpful. I have friends who see them and it works for them.   I've never been myself so it can't really comment.

Jake'sMom87 Newbie
Jake'sMom87
Posted
  • Author

Just an update if anyone is curious. I got the results for my SED rate and ANA. ANA was negative and SED was 11 with a range of 0-20 so normal. My doctor suspects now that I may have Fabry Disease. I had not heard of this one so I googled it and bam sounds like it could be true. So I go next week to have my petechiae reviewed and possibly the blood tests done. While this is definitely not what I hoped for I am anxious to have answers so I can cope and hopefully find ways to feel better. If anyone has heard of this or has anything to share I would love to hear it! If these tests come back negative I am going to more or less demand that they run the celiac tests on me.

Thanks for listening as always.

Robin

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w8in4dave Community Regular
w8in4dave
Posted

At least they don't think your crazy! 

w8in4dave Community Regular
w8in4dave
Posted

It sounds really complicated!! Have never heard of it before!!Good luck!! Hop you find your answers

Jake'sMom87 Newbie
Jake'sMom87
Posted
  • Author

Yes at least they don't think I'm crazy that's true!

w8in4dave Community Regular
w8in4dave
Posted

You know I have 1 doctor! I was going to him complaining about rest room problems and about no energy. Only time I have energy  is if I was running to the toilet. after that I had no energy to do anything eles. I mean really ??? Run to the restroom 10/20 times a day? not to urinate unless it was convenient ... and he says ... well I don't think you have Celiac.. What ever !! 

 

The moral is :) at least your doc is looking for other things .. not saying well .. um no I don't think so.. Making you lie to him to get a blood test!! I wish all the best!! Just keep pushing for what ever you have to, to find out your problem .. Never give up!! Good luck!! Huggs and prayer your way! :) 

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