Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New With Questions :)


student314

Recommended Posts

student314 Rookie

I'm 19 years old and have had some weird symptoms recently. I was supposed to be a leader at a youth camp two weeks ago, but I became very ill with what everyone assumes was a stomach virus. My blood pressure was crazy and I couldn't stand or walk around for very long without almost passing out and I was suddenly unable to eat. My mouth would go bone dry and I'd gag on food. Anything besides fruit and rice made me nauseous. I was weirdly anxious during this time too--I was diagnosed with an anxiety disorder last year and it had gotten out of control the few weeks before I got sick and I was having panic attacks out of nowhere almost every day. While I was sick, I was very tense and just nervous. I was literally bed ridden for 3 days before they decided to send me back home because I wasn't getting better. It took the rest of the week, but my weakness got better. However, as I started being able to eat again, I started getting diarrhea. It's been two weeks and I have a normal appetite, but food makes me feel weird/anxious and my heart pounds or races. My diarrhea seemed better two days ago, but now it's back to weird loose stools (sorry...TMI). I had two bowls of strawberry toasters (like cinnamon toast crunch, but strawberry) this morning and the effects followed not too long after. My stomach started knotting up and my heart rate went up to 120 for a good half hour or more. These heart symptoms have been the most annoying...I have been eating a lot of whole grain and fiber to help with the stomach issues, but they didn't help and just made me nervous. The only thing I ate that didn't affect my heart rate was peach froyo with fruit. The dairy upset my stomach a couple of hours later of course, but that was it. I happened to mention to my mom that I had been having these heart rate problems and that the froyo wasn't doing it and she wondered if it had something to do with gluten since it was the only thing it didn't have that everything else I've had did. I've had upset stomach problems and everything before, but we've always chalked it up to stress (and it probably was). This just seems different somehow. I've never gotten to 100% since the stomach virus. I know there are a billion things that could cause all this, but it couldn't hurt to ask. The only thing that has come up in the past few years has been a pretty low Vitamin D level of 11 that won't get near normal despite high doses of Vitamin D, but other tests, such as thyroid, have been normal. I went to the doctor a few days ago and he said that the digestive problems would probably resolve themselves eventually, so I haven't gotten to really talk to him about the other problems and was wondering if we should pursue this theory. Sorry this is so long!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

You may have a gluten problem.  The flu could trigger celiac.  You should do some tests for Celiac and see if they will help you to discover what is wrong.  You could have some other health problem.  There must be something at the root of your problem and I hope you will find it.  The heart problems do sound disconcerting, and certainly you should find out what is causing them.

 

I think I understand you to say that you have taken vitamin D supplements without low vitamin D levels resolving?  That would show a problem with absorption in my opinion.  Do you have a normal iron level?  My Functional Medicine Nurse mentioned that low to borderline iron level can be an early indicator of mal-absorption.

 

Get Well***,

I hope you get some definitive answers soon.

D

powerofpositivethinking Community Regular

welcome!

 

Vitamin D deficiency is commonly linked with celiac, and the fact that you said you've been taking large doses but that hasn't resolved the problem is even more suspicious of malabsroption problems.  Here is a link with common celiac associated deficieicies:

Open Original Shared Link

 

If you want to get tested, you MUST be consuming gluten prior and during testing or else it could yield false results.  In fact, don't stop eating gluten until you are done ALL testing, including the endoscopy if you get one.  The first steps are simple blood tests that either your GP or GI can order.

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

Open Original Shared Link

 

Also after a bout of stomach virus, it may be useful to take probiotics to help your good gut flora get back in balance.  Since you said you've been having diarrhea, it may be a good idea to try Culturelle which has the lacto strain of probiotics which is great for diarrhea.  You can pretty much pick up this brand at any Target or pharmacy.  Here is a link to the ones I have used in the past:

Open Original Shared Link

 

anxiety can be linked to gluten.  mine has gotten so much better since going gluten free.

  • 2 weeks later...
student314 Rookie

Thank you for your responses. Yes, I have been taking large amounts of Vitamin D. It was low to start with and I was put on 50,000 iU for 12 weeks, which only brought it up from 13 (I think) to 18. Then about a year later, it had plummeted back down to 11. I was put on 50,000 iU again and then told to supplement with 2500 per day after that. I haven't been tested since. I was borderline anemic about 4 years ago, but I haven't been tested for that either. I'm starting to suspect that again though because I've been getting exhausted from exercise easily and my heart races and my hands tingle sometimes (though that could be my anxiety).

 

My digestive symptoms have improved somewhat--no more constant diarrhea--but I'm still not 100% and still have a lot of bloating and discomfort. I'm super anxious and foggy after eating. I had a voracious appetite for the past week or so and gained almost 10 lbs. back that I had lost over the summer, but cutting back a little for the past couple of days caused me to already lose 2 pounds (I usually struggle to lose weight). Something's just OFF. I can't put my finger on it. The worst part is I have to go back to university next week and I have to be able to function, not to mention be able to walk a couple miles a day. Since I haven't been able to see my doctor at home, would it be useful to find a specialist or something while I'm at school?

 

Thanks again.

AlwaysLearning Collaborator

When you return, have them test all of your vitamin levels again, not just the D and the iron. I know B12 deficiencies are also common and have some pretty horrendous symptoms (and are much easier to treat). 

I do hope you get the answers you need, and soon!

  • 4 months later...
brookevale Newbie

Student 314,

 

What ever became of your digestive issues. I have the identical thing going on. I had strep, was given antibiotics, and have had diarrhea, nausea, anxiety, no appetite for over 2 weeks. I too feel like something is off. Please let me know how things turned out. I need some hope!

 

Thanks,

Brooke

eers03 Explorer

Student 314,

 

What ever became of your digestive issues. I have the identical thing going on. I had strep, was given antibiotics, and have had diarrhea, nausea, anxiety, no appetite for over 2 weeks. I too feel like something is off. Please let me know how things turned out. I need some hope!

 

Thanks,

Brooke

Your antibiotic could absolutely be the source of your diarrhea.  If it persists you should go see your healthcare provider again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    davidvibezb
    Newest Member
    davidvibezb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.