Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lab & Colonoscopy Results?


mcdonald.khadijah

Recommended Posts

mcdonald.khadijah Newbie

So I had a colonoscopy today (I still fee odd from it) and the doctor took a biopsy, but everything was looking good.

 

 

TTG IGA RESULT: 0.4 U/mL

 

IMMUNOGLOBULIN A 155 mg/dL 66-433 mg/dL

GASTRIN 27 pg/mL 13-115 pg/mL

SED RATE 2 MM/HR <20 MM/HR

CALCITONIN: <2 pg/mL < 12.0 pg/mL

 

 

I feel everything is saying I'm fine, my doctor and I agreed that if I see health changes when I go gluten-free then that's proof enough. With gluten I get tons of symptoms such as bloating, a terribly twisting pain in my lower stomach, back pain, constipation, inconsistent stool (BADLY), fatigue (I'll sleep all day for a few days) and a few times even vomiting.  When I cut it all I feel like a million bucks! It also doesn't help that I'm lactose intolerant either. That gives me even more powerful symptoms.

 

Any one experience this? The tests say no but your daily pain begs to differ? I know my blood tests are eh because I was somewhat gluten free at the time, but I'm not sure of anything :P I giving up gluten, but I'm sure none of this will confirm to my school that I cannot eat their food. I was sick every time I ate in the caf.

 

Also, I am on allergy shots for pretty much everything outside (not an exaggeration) I'm extremely allergic to rye, barley and many things that get mixed in. I also have a lot of cross allergies so that could be it too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



niese Explorer

DId u have an upper scope done where they go down ur throat?  That is the biopsy that you need. 

mcdonald.khadijah Newbie

I'm actually having that done at 6am tomorrow. I suppose we'll see after that.

powerofpositivethinking Community Regular

welcome!

 

make sure they take at least 6 samples from the small intestine itself.  good luck!

 

EDIT: You said you were somewhat gluten free?  Have you at least been eating a few slices of bread a day?

nvsmom Community Regular

As PofPT mentioned, you need to be eating gluten for the tests to be accurate. If you are not eating gluten, or extremely small amounts, it could give a false negative test result.

 

There are many people around here who have symptoms but have negative blood tests, or negative biopsy, or both. It's possible that they have celiac or it could be non-celiac gluten intolerance (NCGI) which has all of the same symptoms except the villi damage (which is what the blood tests look for).  Villi damage does not cause most of our symptoms though, so a person with NCGI will feel every bit as bad as a celiac and need to stay gluten-free in order to feel better.

 

Good luck with the endoscopy and welcome to the forum.  :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.