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Getting Tested Tomorrow


Allyana

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Allyana Newbie

I've been wondering if celiac disease or gluten sensitivity is my problem lately. I am 23 years old, diagnosed with silent reflux and Gilberts syndrome. Starting 4 years ago I started to get bad stomach cramps and diarrhea when I would go into my job on the stressful shifts. Before that I would have occasional diarrhea after eating things like chili. I thought that was fairly normal. After I had my daughter a year ago, I got extremely gassy and bloated after eating certain things. I also had increasingly more frequent diarrhea. I never took the time to notice what I ate when I had it. Lately I've been going from constipation to the opposite, and pretty bloated. I get a strange feeling at times which I can only describe as a brain fog? Like Im here but I'm not completely with it? Sort of feels like an alcohol buzz without drinking alcohol. So weird.  I notice it mostly after I eat.

I've been having a stabbing pain in my upper right side. It makes me cringe. I also get it sometimes in the upper left side.  It comes and goes. Had it about 5 times today.

I had an ultrasound done of my uterus, ovaries, liver, and gallbladder. Everything came back fine. Small cyst on my left ovary but they said that it nothing to worry about and is very common. Next they wanted to put me on Bentyl. So I've taken that a day so far. Dont notice any improvement. It is supposed to relax your stomach and intestines in the case of IBS. The last doctor I went to about these issues 2 years ago suggested I might have IBS, but then dropped me and didn't continue trying to actually figure out my problem. I'm an extremely anxious person. I had PPD after I had my daughter.

I pushed for a celiac blood test so Im getting one tomorrow. Does this sound likely, or does it sound like something else?


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nvsmom Community Regular

You have the symptoms so it could be celiac disease. It's good you are getting tested.  Try to have them run as many tests as possible. This is the full celiac lab panel:

  • tTG IgA and tTG IgG
  • DGP IgA and DGP IgG
  • EMA IgA
  • total serum IgA
  • AGA IgA and AGA IgG

The first three tests are celiac tests that show damage is being attempted on your intestines. Total serum IgA is a control test to make sure you make enough Immunoglobulin A for the other tests to be accurate; 5% of celiacs don't. The last is an older test that shows gliadin sensitivity and is thought by some to possibly work for both celiac disease and the more common non-celicac gluten intolerance (NCGI).

 

Get copies of your lab results and feel free to bring them back later.  :)

dotsdots Newbie

How long does it usually take for blood tests to come back?

nvsmom Community Regular

How long does it usually take for blood tests to come back?

Depends on the labs. It can be a day or so, up to many weeks. I would guess that a week is the norm.

Allyana Newbie

Well I got my blood drawn. Now just waiting on results. Another odd symptom that has popped up in the last 3 weeks: I feel like I have a pressure/pain on the inside of my rectum? Or cervix?? I had a pap smear like 2 months ago so everything checked out fine there. Particularly when I walk and sit down heavily I feel the pain/pressure. Its not super painful, just a little jab. Its irritating though. It felt like this right after I had my daughter a year ago and I didn't poo for 6 days. I had a tear all the way down to my rectum as well and things have always felt a bit strange down there, particularly when doing kegels. I just don't know if its related. I've been pooping fine lately, so im not constipated at the moment. Sorry, all that is like way TMI :/

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      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
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      alright thank your help! 🤍
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