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Energy Boosting, Mind Clearing


Lisa

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Lisa Mentor

Hey every one that has helped me through Celiacland:

I am posting this because I feel it can help some of the new people (not that I am not one, but think it can help someone).

I have been two month gluten free (as always, as best as I am able). My energy is creaping back, I have more positive thoughts, I can tackle more tasks and basically have a far better outlook on the future and most importantly TODAY.

I big D issue, a few weeks ago was an issue daily, then every other day, now it is about every three days. I am not sure at this point whether it is a gluten issue or the ongoing healing process. It took a long time do the damage and I cant expect healing to be over night. The B-12 shots help alot. Since the big D has subsided, I have started taking Oil of Olay vit's (read somewhere they are gluten free) and feel that will help now that absorbtion is beginning.

I will treck on as best that I am able. But I have a question. I know that many people have different levels of tolerances, when you feel totally healthy, do you ever thing that you are "cured". I DO know the fact, that this is for life. But when you totally feel healthy what keeps you from eating a piece of pecan pie for Thanksgiving. I DO know the answer, but when symptoms keep you motivated and the symptoms are gone how do you deal.

I also wanted to thank all the people who have supported me during the early stages of this creepy disease. Hear, hear to all of you. I'm still here with ya'll and I intend to stick with you.

Lisa B.


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nettiebeads Apprentice
Hey every one that has helped me through Celiacland:

I will treck on as best that I am able.  But I have a question.  I know that many people have different levels of tolerances, when you feel totally healthy, do you ever thing that you are "cured".  I DO know the fact, that this is for life.  But when you totally feel healthy what keeps you from eating a piece of pecan pie for Thanksgiving.  I DO know the answer, but when symptoms keep you motivated and the symptoms are gone how do you deal.

ILisa B.

<{POST_SNAPBACK}>

The longer you are gluten-free, and the better you feel, the easier it is to ignore "goodies", especially at holiday times. Several things go into play here for me. 1. After awhile, your tastebuds "forget" how things taste. 2. IT'S POISON to me. 3. I DO NOT WANT TO BE SICK. It's more or less negative association. What you can do is make yourself your own little goodies so you don't feel deprived. Pumpkin pie is really a custard. So when I make the pies, I put some of the filling into a custard dish and cook it that way. Same with other fillings - just cook them a little differently so you can eat them since they are the best part of the pie anyhow. You will learn your own little tricks to keep yourself satisfied and healthy.

floridanative Community Regular

Hi Lisa - what a great question. I am having my biopsy in Jan. just so I can get through the holidays and eat holiday foods. I am expected to make pecan pies for family both at Thanksgiving and Christmas. I may or may not have to go on the gluten-free diet but I don't think it's an option to start it during the holidays. My work load is heaviest this time of year so there's no time to turn my kitchen upside down and read a million labels.

But speaking of pie, aren't there some type of pie crusts/mixes out there that are gluten-free? I already thought about how I'd still be able to make my pies on the gluten-free diet, as long as I use gluten-free crust.

I'm glad you are feeling better and having positive thoughts. That is very good news indeed! Take care.

Tiffany M.

  • 3 weeks later...
Judyin Philly Enthusiast

Tiffany M...I wrote you a reply but don't know where it went????? Lost part of your pie post I was including...Geeze....

Anyway, I just bought 2 gluten-free pie shells and one pumpkin pie gluten-free. They were new products at the Martindale's Health food store. I could go and find the names of the products if you want me to and you can see if you can find them near you. Havent' used them so don't know if they are tasty or not

let me know, ok?

Judy

Pardon my stepping all over your Oprah posting..don't know how I did that either.

Still new to this posting on the forum.

Lisa Mentor

My plans for T-day is to cook Libby's Pie Mix (gluten-free) with evap. milk and egg as it says on the direction and use no crust. Home made whipped cream made with brown sugar and cinnimon. (sp)? Hmmmmmmmmmmm

I am odd having Celiac as that I have never liked bread, pasta, donuts, or pie shells. It suits me just find. --- it's the additives.

We share T-day with other and they will bring the pecan pie with crust for the others.

On the personal side, which started this thread. After 3-months, best I can gluten-free, I am bouncing back and forth from D to C. Is this common? :unsure:

Lisa B.

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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
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    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
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