Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stay Puffed, Ever Growing Michelin Woman Here

rene83

By rene83
in Related Issues & Disorders

Recommended Posts

rene83 Rookie
rene83
Posted

Hey everyone,

I am coming to you to see what your experiences have been in weight gain with celiac.

I am one of those who only found out about my celiac after a 35 lb weight gain despite proper diet and exercise. I am a normally very tiny female. I am 30 y/o now 5'0" and until the past 2 years have never been over 110. I am now 142 and keep expanding which I am not happy with to say the least.

I have been gluten free for 4 months now minus 2 unintentional glutenations early on. My thyroid has been fine except reverse t3 was slightly elevated. Cortisol is relatively normal. Gaba and glutamate are super high. Nutritional labs showed me to have been only absorbing 3 amino acids despite eating 150g protein a day and only traces of 3 B vitamins, I was severely malnourished at time of diagnosis. After diagnosis I decided to give myself a couple months of a break and not work out but recently started again (6 weeks ago) in hopes that all this weight would go away. I was working out 6 days a week for at least an hour each day and in 6 weeks I gained 4 lbs and an inch on my waist, 1.5" on my hips and 0.5" on my thighs. 

 

I am currently on the following supplements: dipan 9 pancreatic enzymes, co q 10, DHA, multivitamins high dose, fish oil, r-lipoic acid, super b complex, l-carnitine, NAC,  vitamin D.

 

I did an HCl challenge to make sure my stomach acid was acid enough for me to break down protein before it hits the small intestine and we confirmed I do have enough. 

 

I currently am eating around 1500-1600 cals a day and aiming for 40% protein 40% carbs 20% fats and trying to eat nothing but whole foods, organic fruit and veggies and lean protein. Minus the big plate of cheese fries I had last night for an emotional eating episode lol. This is very hard for me to be pretty much eating paleo as I am semi-vegetarian and hate eating as much meat as I am.

 

Any advice? How long did it take you to lose the weight and what did you have to do?

 

Thank you for your time and thought in this matter. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

What are you doing for exercise?

rene83 Rookie
rene83
Posted
  • Author

What are you doing for exercise?

I have done insanity, P90X, Tapout XT, plus working out with a personal trainer. 

1desperateladysaved Proficient
1desperateladysaved
Posted

My weight was water as I had a fluid/adrenal gland problem.  I lost 30 lbs with proper nutrients and am still waiting for the water balance to return in full.  I am 5/7 and 155 lbs and began 6 years ago at 190.  I should note that I only went gluten free 18 months ago and the other came off with supplements.  I still have some swelling issues and we are working on hormones and nutrient balance and adrenal support.

 

Ha!  Michilen woman!  Sometimes, I do feel like a have an innertube around my waist!  It puts pressure on, so it is hard to breath.

 

  I said I feel like the Pillsbury Dough Boy!  Only a girl.

 

Get well,

 

D

rene83 Rookie
rene83
Posted
  • Author

My weight was water as I had a fluid/adrenal gland problem.  I lost 30 lbs with proper nutrients and am still waiting for the water balance to return in full.  I am 5/7 and 155 lbs and began 6 years ago at 190.  I should note that I only went gluten free 18 months ago and the other came off with supplements.  I still have some swelling issues and we are working on hormones and nutrient balance and adrenal support.

 

Ha!  Michilen woman!  Sometimes, I do feel like a have an innertube around my waist!  It puts pressure on, so it is hard to breath.

 

  I said I feel like the Pillsbury Dough Boy!  Only a girl.

 

Get well,

 

D

lol. Thanks. Based on body impedance I am about as much water as I should be, I just stored a sh*t ton of fat on my waist and abdomen and hips. My body needs to quit being dumb and realize all is good in the neighborhood. 

1desperateladysaved Proficient
1desperateladysaved
Posted

lol. Thanks. Based on body impedance I am about as much water as I should be, I just stored a sh*t ton of fat on my waist and abdomen and hips. My body needs to quit being dumb and realize all is good in the neighborhood. 

I don't know what body impedance is, can you clarify?

 

It is possible you can't process fat, so your body is just storing it. 

 

lol. Thanks. Based on body impedance I am about as much water as I should be, I just stored a sh*t ton of fat on my waist and abdomen and hips. My body needs to quit being dumb and realize all is good in the neighborhood. 

rene83 Rookie
rene83
Posted
  • Author

I don't know what body impedance is, can you clarify?

 

It is possible you can't process fat, so your body is just storing it. 

Where you measure your body fat %, bone mass% and water mass %....

 

When we checked my stools there was not fat in them so it does not seem that I can't process fat... idk. What would one do to find out more about if they can't process fat? The fats I eat are almost completely healthy, like avocados, olive oil, fish... but cheese is my love lol. 

 

I know that I have heard that for those who are the weight gainers as myself and not the waster aways that sometimes you may gain more as your body adjusts to having nutrients available so it kinda hoards them?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748
    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.