Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stay Puffed, Ever Growing Michelin Woman Here

rene83

By rene83
in Related Issues & Disorders

Recommended Posts

rene83 Rookie
rene83
Posted

Hey everyone,

I am coming to you to see what your experiences have been in weight gain with celiac.

I am one of those who only found out about my celiac after a 35 lb weight gain despite proper diet and exercise. I am a normally very tiny female. I am 30 y/o now 5'0" and until the past 2 years have never been over 110. I am now 142 and keep expanding which I am not happy with to say the least.

I have been gluten free for 4 months now minus 2 unintentional glutenations early on. My thyroid has been fine except reverse t3 was slightly elevated. Cortisol is relatively normal. Gaba and glutamate are super high. Nutritional labs showed me to have been only absorbing 3 amino acids despite eating 150g protein a day and only traces of 3 B vitamins, I was severely malnourished at time of diagnosis. After diagnosis I decided to give myself a couple months of a break and not work out but recently started again (6 weeks ago) in hopes that all this weight would go away. I was working out 6 days a week for at least an hour each day and in 6 weeks I gained 4 lbs and an inch on my waist, 1.5" on my hips and 0.5" on my thighs. 

 

I am currently on the following supplements: dipan 9 pancreatic enzymes, co q 10, DHA, multivitamins high dose, fish oil, r-lipoic acid, super b complex, l-carnitine, NAC,  vitamin D.

 

I did an HCl challenge to make sure my stomach acid was acid enough for me to break down protein before it hits the small intestine and we confirmed I do have enough. 

 

I currently am eating around 1500-1600 cals a day and aiming for 40% protein 40% carbs 20% fats and trying to eat nothing but whole foods, organic fruit and veggies and lean protein. Minus the big plate of cheese fries I had last night for an emotional eating episode lol. This is very hard for me to be pretty much eating paleo as I am semi-vegetarian and hate eating as much meat as I am.

 

Any advice? How long did it take you to lose the weight and what did you have to do?

 

Thank you for your time and thought in this matter. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

What are you doing for exercise?

rene83 Rookie
rene83
Posted
  • Author

What are you doing for exercise?

I have done insanity, P90X, Tapout XT, plus working out with a personal trainer. 

1desperateladysaved Proficient
1desperateladysaved
Posted

My weight was water as I had a fluid/adrenal gland problem.  I lost 30 lbs with proper nutrients and am still waiting for the water balance to return in full.  I am 5/7 and 155 lbs and began 6 years ago at 190.  I should note that I only went gluten free 18 months ago and the other came off with supplements.  I still have some swelling issues and we are working on hormones and nutrient balance and adrenal support.

 

Ha!  Michilen woman!  Sometimes, I do feel like a have an innertube around my waist!  It puts pressure on, so it is hard to breath.

 

  I said I feel like the Pillsbury Dough Boy!  Only a girl.

 

Get well,

 

D

rene83 Rookie
rene83
Posted
  • Author

My weight was water as I had a fluid/adrenal gland problem.  I lost 30 lbs with proper nutrients and am still waiting for the water balance to return in full.  I am 5/7 and 155 lbs and began 6 years ago at 190.  I should note that I only went gluten free 18 months ago and the other came off with supplements.  I still have some swelling issues and we are working on hormones and nutrient balance and adrenal support.

 

Ha!  Michilen woman!  Sometimes, I do feel like a have an innertube around my waist!  It puts pressure on, so it is hard to breath.

 

  I said I feel like the Pillsbury Dough Boy!  Only a girl.

 

Get well,

 

D

lol. Thanks. Based on body impedance I am about as much water as I should be, I just stored a sh*t ton of fat on my waist and abdomen and hips. My body needs to quit being dumb and realize all is good in the neighborhood. 

1desperateladysaved Proficient
1desperateladysaved
Posted

lol. Thanks. Based on body impedance I am about as much water as I should be, I just stored a sh*t ton of fat on my waist and abdomen and hips. My body needs to quit being dumb and realize all is good in the neighborhood. 

I don't know what body impedance is, can you clarify?

 

It is possible you can't process fat, so your body is just storing it. 

 

lol. Thanks. Based on body impedance I am about as much water as I should be, I just stored a sh*t ton of fat on my waist and abdomen and hips. My body needs to quit being dumb and realize all is good in the neighborhood. 

rene83 Rookie
rene83
Posted
  • Author

I don't know what body impedance is, can you clarify?

 

It is possible you can't process fat, so your body is just storing it. 

Where you measure your body fat %, bone mass% and water mass %....

 

When we checked my stools there was not fat in them so it does not seem that I can't process fat... idk. What would one do to find out more about if they can't process fat? The fats I eat are almost completely healthy, like avocados, olive oil, fish... but cheese is my love lol. 

 

I know that I have heard that for those who are the weight gainers as myself and not the waster aways that sometimes you may gain more as your body adjusts to having nutrients available so it kinda hoards them?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
    2. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    4. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    5. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748
    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.