Update On Son And Question About Thyroid With Celiac

[yogatwinmom]

I posted a few weeks back about my son who is 8. To summarize he doesn't have a clear cut diagnosis because his last GI dr several years ago did not run a celiac panel until after he was gluten free. He did test positive on IgG anti gliadin test. So anyway we saw a new GI yesterday that was GREAT. Unfortunately my son is still vomiting even though we are very very strict about his gluten-free diet. New GI thinks its dairy so he wants us to go dairy free( cows milk, whey and casein) as well for a month so we can reset his gut. He also wants us to up his probiotics and start with papaya enzymes. He thinks he's having an immune reaction to milk protein.

The other thing is he said his thyroid is off and his TSH is high. I know this all too well because I have auto immune thyroid disease. His Ped ran the labs back in may when I took him in because he was complaining of being tired. He's 8, he shouldn't be tired all of the time! Of course the ped said everything was fine and I didn't ask to see the labs. The GI yesterday mentioned it because I had his records faxed over.

So do any of your kiddos have thyroid issues as well? What's the course of treatment? I refuse to put him on T4 after the nightmare I encountered with synthroid and levoxyl.

Right now the GI wants him to heal his gut and eat foods that support the thyroid (brazil nuts, seaweed,etc)

Thanks for your help!

[StephanieL]

What issues did you have with synthroid?  If synthroid is what he needs, the issues you may have may not be the same for him.

 

We do deal with Celiac, Hashi's and food allergies. Until my son was on synthroid, his tTG's would NOT come down.  It took 6-9 months on synthroid to get his Celiac levels down to normal.  I know many here don't care for synthroid.  I know many use a natural variation.

[nvsmom]

 Until my son was on synthroid, his tTG's would NOT come down.  It took 6-9 months on synthroid to get his Celiac levels down to normal.  I know many here don't care for synthroid.  I know many use a natural variation.

Wow, I never thought about that for myself. My tTG is still mildly elevated after a year gluten-free but it started dropping faster after I switched from synthroid to Thyroid (like Armour).... Interesting!

 

My oldest is gluten intolerant (his tTG IgA was negative) and he has what I would consider to be a high TSH (above a 4) but the doctors won't do anything with it. He is also my child who tires the more easily, and his growth has slowed right down. We're doctor hopping a bit now trying to find anyone who will address his issues... not easy to do.

 

Tirosint is supposed to be very clear of additives and dyes and might be a good T4/levothyroxine option. I personally really like taking a natural desiccated thyroid called Erfa's Thyroid - I seem to need the T3,2,1 or whatever to make me feel well. I imagine you can get something like it (Armour) for your son if you can find a doctor to help.  Best wishes.

[Mizzo]

My 10 yr old DD is 3 yrs gluten-free with a dx of Celiac. This year she was also dx positive Hashimota's with elevated TSH levels. We started Levothyrozine 5 weeks ago. So far all is great. She is not as tired , no more leg pains, better attention span and less anxiety . In addition her 4wk followup shows perfect TSH levels. 

 

It all depends on the person and their reaction to the medication, for us it went great..