Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Almost Gluten-free?


JenM

Recommended Posts

JenM Apprentice

Just wondering, is there such a thing as almost gluten-free? Would being on a 80% gluten-free diet be of any benefit? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skoki-mom Explorer
Just wondering, is there such a thing as almost gluten-free?  Would being on a 80% gluten-free diet be of any benefit?  Thanks.

<{POST_SNAPBACK}>

Not if you have Celiac Disease. If you have celiac disease, you must be 100% gluten-free. People with intolerances may have different thresholds, but the pathology is not the same as celiac disease. If you have celiac disease, you body will react to even the smallest amount of gluten. This is why you can't have cake on your birthday, for instance. So, for someone with celiac disease, if you don't give it 100%, I don't really know what the point would be. Trust me, it's hard enough to be gluten-free when you are really trying, and most of us with celiac disease wind up inadvertently ingesting it anyhow, which is why it is so hard for some people to control symptoms.

Hope that helps.

MySuicidalTurtle Enthusiast

No, 80% gluten-free would not be helpful to someone with Celiac Disease.

nettiebeads Apprentice
Just wondering, is there such a thing as almost gluten-free?  Would being on a 80% gluten-free diet be of any benefit?  Thanks.

<{POST_SNAPBACK}>

Sorry, no. It's almost like saying 80% pregnant or something like that. The body will react to a minute amount - someone in another post said to take one slice of bread, divide it into 48 pieces, and that 1/48 of a slice is enough to trigger a reaction. And remember, if you have celiac disease, when the body reacts to the offending protein, it also attacks itself, which is not a good thing.

tarnalberry Community Regular

Nope. It's a chemical reaction, so any gluten will cause the reaction in the intestines.

Carriefaith Enthusiast

Any amount of gluten can cause intestinal damage in celiacs, a crumb, a slice a bread, medication with gluten in it, ect. In order to feel better and heal the intestines you must be 100% gluten free.

If you are gluten free for other reasons, then you would also have to be 100% gluten free to notice improvment and get better.

KaitiUSA Enthusiast

Yep backing up what the others have said here....you have to be 100% gluten free to prevent damage.

Anything and everything needs to be checked...gluten can be in makeups, hair products, soaps, household products, medications,foods, etc... and the gluten containing ones all must be eliminated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JenM Apprentice
:huh: Your'e all making this very hard! :( What it all boils down to is that I need to go 100% gluten-free, assuming I have a gluten sensitivity. Is that correct?
aikiducky Apprentice

That's correct. Otherwise you might just as well not bother. It's an all or nothing thing.

It's worth it though, when you finally start to feel well. :)

Pauliina

skoki-mom Explorer

Jen, I was where you are less than 2 months ago. Well, the exception being that I have a conclusive diagnosis of celiac disease. The limitations of the diet are overwhelming. But, it's one of those things you just have to do. It gets a little easier every day. Is there stuff I wish I could have?? Oh yeah, but then I think of the risk factors, and remind myself it's just not worth it. I'm one of those freaks that has absoloutely no GI symptoms, so it's not like I'd even "get sick". Fact is, my gut is sick, so I need to take care of it. There are a lot of pretty good substitutes out there. I just had my first gluten-free Thanksgiving, complete with stuffing and gravy (it was great!), and today is my first gluten-free birthday. I just got home from a fab dinner at Tony Roma's and my kids and I had brownies that I made with gluten-free graham wafer crumbs. I am (was?) the hamburger queen, and if I can do it, so can you! About the only unforged territory left for me is gluten-free bread....as in to eat it like regular bread/toast. I find it a little intimidating looking and I'm scared to blow that much $$ on it, lol!!!

Keep coming here, it's a great place for info and you will also find that people can relate to what you are going through.

((hugs))

JenM Apprentice
Jen, I was where you are less than 2 months ago.  Well, the exception being that I have a conclusive diagnosis of celiac disease.  The limitations of the diet are overwhelming.  But, it's one of those things you just have to do.  It gets a little easier every day.  Is there stuff I wish I could have??  Oh yeah, but then I think of the risk factors, and remind myself it's just not worth it.  I'm one of those freaks that has absoloutely no GI symptoms, so it's not like I'd even "get sick".  Fact is, my gut is sick, so I need to take care of it.  There are a lot of pretty good substitutes out there.  I just had my first gluten-free Thanksgiving, complete with stuffing and gravy (it was great!), and today is my first gluten-free birthday.  I just got home from a fab dinner at Tony Roma's and my kids and I had brownies that I made with gluten-free graham wafer crumbs.  I am (was?) the hamburger queen, and if I can do it, so can you!  About the only unforged territory left for me is gluten-free bread....as in to eat it like regular bread/toast.  I find it a little intimidating looking and I'm scared to blow that much $$ on it, lol!!! 

Keep coming here, it's a great place for info and you will also find that people can relate to what you are going through.

((hugs))

<{POST_SNAPBACK}>

I have no GI symptoms either, just an autoimmune disease and a recommendation to go gluten-free. I'm glad to hear you can eat out. My husband and I do often (I hate to cook and am horrible at it.) Good luck with the bread. I just went to the store and bought some today. I've tried it before. I don't want to discourage you, so I'll say it wasn't bad. Thanks for the encouragement. I'm on my way to Outback now. :):)

ILOVEOMC Enthusiast
:D You can do it!! Just make the initial adjustment and you will feel better and that will be incentive enough. Good luck!
Carriefaith Enthusiast

You will feel overwhelmed at first, but you should quickly adjust. Once you know what you can and can't have, it gets a lot easier. Please ask us if you need gluten-free product lists, recipes, or meal ideas. That's what we are here for B)

Claire Collaborator

Plenty of reaction to this thread!

What can I say? Grrrrrrr! The question disturbs me that much! I am one of a few people on the forum who have the neurlogical damage done by gluten - see posts by tiredofdoctors. Gluten attacks your cells - any cells and promotes the development of autoimmune diseases - meaning that the body's immune system is attacking your body. If it attacks your brain cells - then you, like me, would be in big trouble.

Don't even consider a little bit of gluten. It's true that you might as well do nothing as do a little. It is an all or nothing situation. No compromises, no cheating. Because you may not feel the damage being done does not mean damage isn't being done. It sneaks up on you - and then it is too late. Claire

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.