Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Almost Gluten-free?


JenM

Recommended Posts

JenM Apprentice

Just wondering, is there such a thing as almost gluten-free? Would being on a 80% gluten-free diet be of any benefit? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skoki-mom Explorer
Just wondering, is there such a thing as almost gluten-free?  Would being on a 80% gluten-free diet be of any benefit?  Thanks.

<{POST_SNAPBACK}>

Not if you have Celiac Disease. If you have celiac disease, you must be 100% gluten-free. People with intolerances may have different thresholds, but the pathology is not the same as celiac disease. If you have celiac disease, you body will react to even the smallest amount of gluten. This is why you can't have cake on your birthday, for instance. So, for someone with celiac disease, if you don't give it 100%, I don't really know what the point would be. Trust me, it's hard enough to be gluten-free when you are really trying, and most of us with celiac disease wind up inadvertently ingesting it anyhow, which is why it is so hard for some people to control symptoms.

Hope that helps.

MySuicidalTurtle Enthusiast

No, 80% gluten-free would not be helpful to someone with Celiac Disease.

nettiebeads Apprentice
Just wondering, is there such a thing as almost gluten-free?  Would being on a 80% gluten-free diet be of any benefit?  Thanks.

<{POST_SNAPBACK}>

Sorry, no. It's almost like saying 80% pregnant or something like that. The body will react to a minute amount - someone in another post said to take one slice of bread, divide it into 48 pieces, and that 1/48 of a slice is enough to trigger a reaction. And remember, if you have celiac disease, when the body reacts to the offending protein, it also attacks itself, which is not a good thing.

tarnalberry Community Regular

Nope. It's a chemical reaction, so any gluten will cause the reaction in the intestines.

Carriefaith Enthusiast

Any amount of gluten can cause intestinal damage in celiacs, a crumb, a slice a bread, medication with gluten in it, ect. In order to feel better and heal the intestines you must be 100% gluten free.

If you are gluten free for other reasons, then you would also have to be 100% gluten free to notice improvment and get better.

KaitiUSA Enthusiast

Yep backing up what the others have said here....you have to be 100% gluten free to prevent damage.

Anything and everything needs to be checked...gluten can be in makeups, hair products, soaps, household products, medications,foods, etc... and the gluten containing ones all must be eliminated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JenM Apprentice
:huh: Your'e all making this very hard! :( What it all boils down to is that I need to go 100% gluten-free, assuming I have a gluten sensitivity. Is that correct?
aikiducky Apprentice

That's correct. Otherwise you might just as well not bother. It's an all or nothing thing.

It's worth it though, when you finally start to feel well. :)

Pauliina

skoki-mom Explorer

Jen, I was where you are less than 2 months ago. Well, the exception being that I have a conclusive diagnosis of celiac disease. The limitations of the diet are overwhelming. But, it's one of those things you just have to do. It gets a little easier every day. Is there stuff I wish I could have?? Oh yeah, but then I think of the risk factors, and remind myself it's just not worth it. I'm one of those freaks that has absoloutely no GI symptoms, so it's not like I'd even "get sick". Fact is, my gut is sick, so I need to take care of it. There are a lot of pretty good substitutes out there. I just had my first gluten-free Thanksgiving, complete with stuffing and gravy (it was great!), and today is my first gluten-free birthday. I just got home from a fab dinner at Tony Roma's and my kids and I had brownies that I made with gluten-free graham wafer crumbs. I am (was?) the hamburger queen, and if I can do it, so can you! About the only unforged territory left for me is gluten-free bread....as in to eat it like regular bread/toast. I find it a little intimidating looking and I'm scared to blow that much $$ on it, lol!!!

Keep coming here, it's a great place for info and you will also find that people can relate to what you are going through.

((hugs))

JenM Apprentice
Jen, I was where you are less than 2 months ago.  Well, the exception being that I have a conclusive diagnosis of celiac disease.  The limitations of the diet are overwhelming.  But, it's one of those things you just have to do.  It gets a little easier every day.  Is there stuff I wish I could have??  Oh yeah, but then I think of the risk factors, and remind myself it's just not worth it.  I'm one of those freaks that has absoloutely no GI symptoms, so it's not like I'd even "get sick".  Fact is, my gut is sick, so I need to take care of it.  There are a lot of pretty good substitutes out there.  I just had my first gluten-free Thanksgiving, complete with stuffing and gravy (it was great!), and today is my first gluten-free birthday.  I just got home from a fab dinner at Tony Roma's and my kids and I had brownies that I made with gluten-free graham wafer crumbs.  I am (was?) the hamburger queen, and if I can do it, so can you!  About the only unforged territory left for me is gluten-free bread....as in to eat it like regular bread/toast.  I find it a little intimidating looking and I'm scared to blow that much $$ on it, lol!!! 

Keep coming here, it's a great place for info and you will also find that people can relate to what you are going through.

((hugs))

<{POST_SNAPBACK}>

I have no GI symptoms either, just an autoimmune disease and a recommendation to go gluten-free. I'm glad to hear you can eat out. My husband and I do often (I hate to cook and am horrible at it.) Good luck with the bread. I just went to the store and bought some today. I've tried it before. I don't want to discourage you, so I'll say it wasn't bad. Thanks for the encouragement. I'm on my way to Outback now. :):)

ILOVEOMC Enthusiast
:D You can do it!! Just make the initial adjustment and you will feel better and that will be incentive enough. Good luck!
Carriefaith Enthusiast

You will feel overwhelmed at first, but you should quickly adjust. Once you know what you can and can't have, it gets a lot easier. Please ask us if you need gluten-free product lists, recipes, or meal ideas. That's what we are here for B)

Claire Collaborator

Plenty of reaction to this thread!

What can I say? Grrrrrrr! The question disturbs me that much! I am one of a few people on the forum who have the neurlogical damage done by gluten - see posts by tiredofdoctors. Gluten attacks your cells - any cells and promotes the development of autoimmune diseases - meaning that the body's immune system is attacking your body. If it attacks your brain cells - then you, like me, would be in big trouble.

Don't even consider a little bit of gluten. It's true that you might as well do nothing as do a little. It is an all or nothing situation. No compromises, no cheating. Because you may not feel the damage being done does not mean damage isn't being done. It sneaks up on you - and then it is too late. Claire

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    2. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    DJD
    Newest Member
    DJD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.