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My Baby Is Covered In Blisters! Celiacs?

eggiesmommy

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eggiesmommy Newbie
eggiesmommy
Posted

Please help me. If you post your email I will send you photos of her rash. Our pediatrician is clueless and the GI doctor doenst have any appt till December.

Want to know if this rash is indeed the celiac rash.

details:

My sister and niece have tested positive for celiacs

my baby is 11 months old

Through trial and error I realized while breastfeeding if I ate gluten she would be cranky that night, constipated for a few days, and a rash around her neck and behind ears.

Last monday she had a bite of breaded GLUTEN fish..... all the next day she eas miserable. Thursday she developed a rash over her neck and trunk and now Monday its on her face and all over. Looks like zits or tiny blisters. She has not pooped since Monday.

does it sound like celiac? Can I emakl syou a picture please???

Im very worried. She seems hapoy and comfortable but scratches at her neck.

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WinterSong Community Regular
WinterSong
Posted

I'm not an expert in skin conditions related to Celiac, but it does sound like Celiac could be a possibility, especially since there is a family history of it. The best you can do is wait until December or try to get seen by another doctor sooner. Good luck!

kareng Grand Master
kareng
Posted

While this is not against the rules, I would caution people about giving out emails addresses, phone numbers, etc  to someone that is new to a forum community. 

 

You can post pictures to sites like photobucket and then post them here.

 

A dermatologist can biopsy next to a new blister and check for DH.  A diagnosis of DH is a diagnosis of Celiac.

 

Open Original Shared Link

StephanieL Enthusiast
StephanieL
Posted

I would think eczema before DH. 

eggiesmommy Newbie
eggiesmommy
Posted
  • Author

********* HERE ARE PICS *********

(Thanks for photobucket idea!)

Open Original Shared Link

kareng Grand Master
kareng
Posted

********* HERE ARE PICS *********

(Thanks for photobucket idea!)

Open Original Shared Link

Can you take a really close one of a blister? This will also help you if you need to show a doctor.

mommy2krj Explorer
mommy2krj
Posted

I would ask your pediatrician for a referral to a dermatologist and see if you can get in there sooner than you can the GI doc. If you can get to see the dermatologist sooner and they do things properly she can be diagnosed with Celiac just from DH rash.

 

Good luck mama! Hope you can get in to one soon....that rash does not look fun, poor thing!

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StephanieL Enthusiast
StephanieL
Posted

Have you changed detergents or soap lately?  Thats what I would think.  If your ped doesn't know get a referral for sure!

mommida Enthusiast
mommida
Posted

Unfortunately the childhood illness schedule has varied rashes.  These viruses like roseola, fifth's disease, measles, german measle's, rubella, and sometimes just undetermined virus produce a rash.

 

You may be brushed off about Celiac testing and testing is still not as accurate for patients under 24 months.  Make sure if the Celiac blood panel is drawn, it is a full accurate panel.  Request a written copy of the results.  If the panel is positive, the next step for a Celiac diagnoses is an endoscopy with biopsy.

mommy2krj Explorer
mommy2krj
Posted

Unfortunately the childhood illness schedule has varied rashes.  These viruses like roseola, fifth's disease, measles, german measle's, rubella, and sometimes just undetermined virus produce a rash.

 

You may be brushed off about Celiac testing and testing is still not as accurate for patients under 24 months.  Make sure if the Celiac blood panel is drawn, it is a full accurate panel.  Request a written copy of the results.  If the panel is positive, the next step for a Celiac diagnoses is an endoscopy with biopsy.

Unless the little one has dermititis herpeteformis (I'm fairly certain I messed that up!) or DH which is directly linked to Celiac and can be used to diagnose it. So long as she finds a dermatologist that knows what they're doing.

 

But I'd be stressed too if my little one had a rash like that and the pedi has no clue! You'd think if the pedi didn't know what it was they'd automatically give you a referral to a dermatologist!

mommida Enthusiast
mommida
Posted

I chickened out on trying to spell out DH.  It has been called the "sister disease" for Celiac.  If a DH patient has an endoscopy with biopsy, the same Celiac damage is found in the small intestine.

I couldn't see the picture very clearly and honest to God I have a hard time looking at a sick little one.  It just tears my heart out.

 

Get to an experienced Dermatologist, that is key for diagnoses.

 

Talk about doctor's not having a clue.  My 12 year old son had Fifth disease and the doctor had me freaked out that it was West Nile.  If it is one of the rash producing Viruses, think back for the initial incubation period of the illness.  Usually 2 weeks previous to the rash developing.  Take a look for any other signs/symptoms in the mouth and on the hands and feet.  If the tongue is very red ~ back to the doctor!

mommy2krj Explorer
mommy2krj
Posted

I chickened out on trying to spell out DH.  It has been called the "sister disease" for Celiac.  If a DH patient has an endoscopy with biopsy, the same Celiac damage is found in the small intestine.

I couldn't see the picture very clearly and honest to God I have a hard time looking at a sick little one.  It just tears my heart out.

 

Get to an experienced Dermatologist, that is key for diagnoses.

 

Talk about doctor's not having a clue.  My 12 year old son had Fifth disease and the doctor had me freaked out that it was West Nile.  If it is one of the rash producing Viruses, think back for the initial incubation period of the illness.  Usually 2 weeks previous to the rash developing.  Take a look for any other signs/symptoms in the mouth and on the hands and feet.  If the tongue is very red ~ back to the doctor!

 

Showing me that he was wrong and willing to look something up is one of the reasons we've been with our current pediatrician for so long. My oldest son had a crazy rash on just his back. It didn't look familiar to either one of us and he asked me to wait while he got his "rash book" (let me tell you....that book is not very small!) and it ended up being athlete's foot that moved up his back. We got that taken care of and then just this last summer he had a similar issue but the athlete's foot was on his hands, arms and shoulders. It's weird! I've never heard of that happening with anyone else (even though I'm sure it does). The first one was when he was a toddler...the second one, his sophomore year of high school. Oy.

 

Yeah....I took the challenge of spelling DH out and I'm pretty sure I failed that challenge! :)

mommida Enthusiast
mommida
Posted

Well you spelled out DH the way I was going to spell it!

 

Really stupid odd thing, right now I have a rash.  (lacey on the body trunk, not itchy, and facial cheeks are very red)  I went in to make sure it wasn't Strep, and it's going on my chart as "non-specific".

mommy2krj Explorer
mommy2krj
Posted

Medical words are such a pain. ;)

 

Rashes are just weird. At least it isn't itchy. Hope it goes away soon! And I swear I'm the only person that didn't know Strep could give you a rash! I had it every time I turned around when I was a kid and never ever had a rash. My kids have all had it....no rashes for them either. Oy.

mommida Enthusiast
mommida
Posted

Strep A bacteria waste can cause the rash. 

eggiesmommy Newbie
eggiesmommy
Posted
  • Author

Update.... it was hand foot mouth disease

mommida Enthusiast
mommida
Posted

Glad you found a diagnoses!  Poor kiddo hand, foot, mouth is no fun at all.

mommy2krj Explorer
mommy2krj
Posted

Glad you got it diagnosed! If your pedi dropped the ball on that one I would definitely find a new pedi!

 

Hand, foot and mouth is no fun and is super contagious. And pretty common in little kids.

mommida Enthusiast
mommida
Posted

Hand, foot, mouth usually doesn't have such a body trunk rash.  The rash is usually just like the name~ in the mouth, and hands and feet.

 

I had it when I was pregnant with my second, and at the same time with my 3 year old.  It can hurt to eat, so I would suggest splurging on popsicles and Slurpees.

mmcc54 Contributor
mmcc54
Posted

Hey!! SEND ME A PIC Open Original Shared Link My daughter now 17 months was diagnosed celiac at 12months she would (before diagnoses) get a rash that was localized on her back always looked like little pimples...Drs always said heat rash, viral rash ect...she stopped growing with constant dia. blood work came back pos for celiac she went to GI who confirmed she went gluten-free for 4 months her GI said lets do a gluten challenge to see what happens...sure enough within 2 hours that same rash came back but 100 times worse along with a bout of other syptoms...a RASH is my babies first sign she has been gluten poisoned! I can also send you a pic so you can compare if you email me

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