Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Blood Tests


vrstruth

Recommended Posts

vrstruth Newbie

been nuaseaus for 3 months... have many other medical problems...take lots of meds... doc has been testing for lots of things... now she is testing for gluten something... Im nervous.... what do I want to see on the blood tests?

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
what do I want to see on the blood tests?
If you have celiac disease, than you would want them to be positive, so that your intestines can heal and so that you can start feeling better on the gluten free diet. The gluten free diet is hard at first, but it gets easier with time. I actually enjoy eating gluten free now and I find that I am very healthy and I'm feeling so much better than I was. Let us know how the tests go.
VydorScope Proficient
been nuaseaus for 3 months... have many other medical problems...take lots of meds... doc has been testing for lots of things... now she is testing for gluten something... Im nervous.... what do I want to see on the blood tests?

violet

<{POST_SNAPBACK}>

Your getting tested for celiac disease with in 3 months of onset of symptons??? WOW thats prbly a record!

floridanative Community Regular
Your getting tested for celiac disease with in 3 months of onset of symptons??? WOW thats prbly a record!

<{POST_SNAPBACK}>

You are right Vydorscope! I thought I was doing well to be this far along getting tested and I presented only with Anemia in March of this year. Didn't get told to see the GI until Sept. but on second trip there (to disuss test results) he mentioned I MAY have celiac disease. Just found out about someone in Chat. who took 13 years for her dx. I think insurance companies are completely ruining our health care system and in a few years we'll be trying to go overseas for serious help instead of the other way around. I'm sure many will disagree with me but we'll just have to agree to disagree.

vrstruth Newbie
Your getting tested for celiac disease with in 3 months of onset of symptons??? WOW thats prbly a record!

<{POST_SNAPBACK}>

i have a very good doc :) she is very through

violet

Carriefaith Enthusiast
i have a very good doc smile.gif she is very through
you are very lucky :)
VydorScope Proficient
you are very lucky  :)

<{POST_SNAPBACK}>

Lucky is not strong enough of a word for it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vrstruth Newbie
Lucky is not strong enough of a word for it!

<{POST_SNAPBACK}>

guess Ill just be gratfull for her... I really like her ...

but I am right now having a had time waiting til mon...not like I have a choice, but I want those tests... i see the gi docs assistant's partner... hope it goes well I have more faith in either my doc or the gi doc

thing is I hurt when i eat.... sometimse and other times I am fine... its like when I wsa diagnosed with fibromyalgia

Ive been mostly sugar free since jan05 and have lost 40 lbs ...not easy!

Im a very picky eater always have been...plus Im very poor and have a very limited income...wonder how Im going to afford gluten-free food.... can I be gluten-free and still eat well ... I love bread...I try so hard to eat healthy and still find food I like......sorry just a little scared

thankyou for youalls help and listening

violet

VydorScope Proficient
guess Ill just be gratfull for her... I really like her ...

but I  am right now having a had time waiting til mon...not like I have a choice, but I want those tests... i see the gi docs assistant's partner... hope it goes well I have more faith in either my doc  or the gi doc

thing is I hurt when i eat.... sometimse and other times I am fine... its like when I wsa diagnosed  with fibromyalgia

Ive been mostly sugar free since jan05 and have lost 40 lbs ...not easy!

Im a very picky eater always have been...plus Im very poor and have a very limited income...wonder how Im going to afford gluten-free food.... can I be gluten-free and still eat well ... I love bread...I try so hard to eat healthy and still find food I like......sorry just a little scared

thankyou for youalls help and listening

violet

<{POST_SNAPBACK}>

The gluten-free diet is hard to get started on. And is typically more expensive when you first start. How ever with time you get used to it, and with time you learn cost cutting ideas such as buying the gluten-free you like in bluk, finding offbrands of mainstream products taht are gluten-free. For exmpale we buy alot of fodd that happens to be gluten-free, thats Kroger brand (store brand). It will just take a little work to get there. And lots fo phone calls to companies, and lots of reading posts here. Once your used it, it becomes second nature and you just do it.

vrstruth Newbie

blood tests came back neg. dont know weither to be happy or sad-FRUSTRSATED .... what is wrong with me...!!!!???? sorry . i dont think I could get the g out of my diet anyway... looks hard....but......

violet

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.