Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Experience, New Member, Gluten Intolerant And A Lot To Learn

anjacherry

Recommended Posts

anjacherry Newbie
anjacherry
Posted

Hi all, i am new to this forum. I have been gluten free for a week now. i have suffered from bad constipation (to a point of bleeding) with the occasional explosion when eating certain food, really itchy skin, headaches  and bizarre mood swings and extreme tiredness and brain fog ever since i was a child until last week someone said to me it sounds like you are gluten intolerant. So i did some research and wow i am amazed, this seems to be the answer to all my heath problems for the last 35 years i used to think i suffer from spouts of depression but after only one week of going gluten free i feel fantastic, no bloating, no tiredness, no headaches, no dizzy spells, no belly aches, no mood swing, no toilet-problems no brain fog and my skin is much better. I eat very healthy now fresh fruit, veg, salads, rice and potatoes, fresh meat and gluten free bread (and biscuits). not had anything processed all week and don't really miss it that much.   The only downside is the hunger, not found a lot of quick snack solutions yet as sometimes the fruit just don't hit the spot but its early days and i still have a lot to learn about it all. I am surprised as to how disciplined i am, and my family has noticed a big difference in me. I have always had a very low sex drive but even this has started to increase, i read gluten can kill your sex drive if intolerant and i would really like to hear other peoples experience with this problem in particular. thanks for taking the time to read this fellow sufferers xx 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Greetings and thanks for the well wishes,

Have you any desire to get an official diagnosis?

You have had a positive response to the diet it seems!  That is great.

I had 30+ years of it too but feel better.

 

All the best in your new trek,

D

anjacherry Newbie
anjacherry
Posted
  • Author

Hi, thanks for your reply. I am not sure if i want to go to the doctors with it. How is it diagnosed as i read somewhere its done by blood test and would mean going back to eating gluten in order for it to show up, is that right? I don't think i want to go back as i feel great now and cant wait for my body to properly heal itself . I think i will just carry on doing what i am doing for now and next time i am going to see my nurse to get my repeat for contraception i will mention it to her and see what she suggests. xx 

nvsmom Community Regular
nvsmom
Posted

You've only been gluten-free a week so if you test immediately, or add a couple of days of gluten eating, you should have an accurate test result - especially if multiple tests are run. The problem comes if you want to get tested a few months from now, then you would have to eat gluten for a couple of months for accurate testing... Nasty!

 

I'm glad you are feeling so much better already! Welcome to the board.  :)

anjacherry Newbie
anjacherry
Posted
  • Author

thank you x

GF Lover Rising Star
GF Lover
Posted

Regarding the sex drive, feeling not death-like will increase the response to sexual intimacy :P  I have never seen any research that specifically links sex drive to gluten.  On another note, un-diagnosed Celiac Disease can contribute to fertility problems when and if you do decide to have children. 

 

Hope you do well.

 

Colleen

anjacherry Newbie
anjacherry
Posted
  • Author

Hiya, and thanks for your reply, you are probably right its the way gluten made me feel that killed my sex drive. But that was one of the first things i found when i started researching gluten intolerance. On one  website some guy said how since going gluten free he cant stop flirting literally with any woman he speaks to lol and he even had gluten to test if it really is the gluten and the desire to flirt stopped.

I had no problem fallen pregnant, when we decided to try for a baby, but had trouble gaining weight throughout the pregnancy and she was born very small only 4lb8. perhaps that's why. :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mum in Norway Contributor
Mum in Norway
Posted

I have the same experience as you when it comes to the sex drive. For me, I think gluten has been effecting my hormons, and that has messed with my mood, my weight, my periods, skin, sexdrive and maybe some more things that I haven't noticed yet. I have never ever had  of totally regular periods where you know almost exactly the date in advance, and also I used to have about 4-6 weeks between them. But it was alwas like that, so I didn't think that much about it. But after going glutenfree, they became absolutly regular, to the date, with a normal 4 week cycle. And with that, my sexdrive showed up, and my husband is very happy :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,550
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.