Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here, Not Officially Diagnosed


Neon rainbow

Recommended Posts

Neon rainbow Newbie

Hi all, I'm new to this forum (and most things gluten related).

I've been gluten free since Before Easter, after having numerous health problems. Most of them just got lumped under the "depression and anxiety" label, even when it was managed.

I went gluten free after googling my symptoms, it clicked. The rash, constant nausea, stomach pain, leg cramps, brain fog, hair loss ( at 23, not good), lethargic, migraines that felt like a stiletto through my temple..

I was also lactose intolerant but that seem to have cleared up too :).

Happy to say that I have none of these problems anymore. But I haven't seen my doctor yet, I don't like him, his answer was always its the depression and anxiety fault ( and give me pills which just made things worse) and I'm too chicken to get tested.. I don't want to have to eat gluten again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tommysmommy Newbie

Good for you, it sounds like you have your answer! Sadly, it is all too common for real problems to be overlooked by doctors (it's all in your head) & anxiety/depression to be "treated" instead of finding the root cause. If all of your health problems vanished with a gluten free diet, it is probable that celiac or gluten intolerance is the problem. Its a good idea to talk to a doctor & if you don't like your doctor - find a new one! For an official diagnosis you would need to go back on gluten for a while and there is value to testing because there may be other damage that you don't even know about - its worth talking to a doctor about it. But never forget, you are your own advocate & follow your insticts, they've gotten you better!

JustCricket Newbie

Years ago, I was on Zoloft, with hardly any issue. I never really experienced too many side effect. Went off it, after a while, and did "okay."  Then, I had insomnia that was causing problems in my daily life, oversleeping wake-up times for work and getting kids off to school. :( 

Doc put me on amitriptyline. It was THE worst. It was like all of the water had been sucked out of my body. I'll let your imaginations do the rest.

 

Later, I got switched back to Zoloft, but with the added benefit of Wellbutrin. OMG, talk about side effects. Wow! 

 

I had the hardest time staying on the meds, until I finally gave up.

Then, I went gluten-free. While I still experience some fatigue, I take vitamins for a few days and it passes. Anxiety and depression? It seems related to glutening. 

Neon rainbow Newbie

Thank you both for your replys.

I will be changing doctors eventually just can't afford too at the moment.

To be fair I do quite overwhelm my doctor, and I did/do have very bad depression (endogenous depression, with panic disorder, was agoraphobic and possible PTSD) and he did refer me to councling (which was great). It's a small government subsidised practice for those on little income. And the previous doctors practice called me a liar, claiming 14year olds don't get miagraines (only went back to them once after that).

I'm not longer on any medication, don't get me wrong I still have depression and anxiety (and will always, Runs in my family) it's just not as extreme.

I haven't tried that drug, I have been on Prozac, citelapram, nortripiline, Effexor, some gaint red pill, seraqel, lorazepam, codeine for pain since I was about 14.

:)

JustCricket Newbie

I've had blockbusting headaches since I was about 9. Maybe before. I used to "remember" that I was 7, but the earliest one I can remember now dates back to when I was at least 8. 

 

My daughter has had headaches for a very long time, as well, and she's 17. She's telling me they started for her when she was 7. My other two get headaches sometimes, too. I don't know if mine were migraines at that age (I definitely get them now), but I'm fairly certain that hers are and always seem to have been.

 

I hate when doctors don't believe us. :( I'm glad you're finding help from other practitioners. :)

bartfull Rising Star

"I'm not longer on any medication, don't get me wrong I still have depression and anxiety (and will always, Runs in my family) it's just not as extreme."

 

Celiac runs in families too, and one of the symptoms is depression and anxiety.Seratonin, which regulates mood, is priduced in the small intestine. If yours is damaged from celiac, there is your answer.  Maybe that is the cause for everyone in your family. Also, there have been studies done recently that say using probiotics might well help relieve depression and anxiety.

JustCricket Newbie

"I'm not longer on any medication, don't get me wrong I still have depression and anxiety (and will always, Runs in my family) it's just not as extreme."

 

Celiac runs in families too, and one of the symptoms is depression and anxiety.Seratonin, which regulates mood, is priduced in the small intestine. If yours is damaged from celiac, there is your answer.  Maybe that is the cause for everyone in your family. Also, there have been studies done recently that say using probiotics might well help relieve depression and anxiety.

 

I just found out about this study, too. Open Original Shared Link

 

I'm hoping that in time, my daughter and I will see beneficial effects in the mood category.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

For what it's worth... I have a family member who has Celiac.  Pre-diagnosis he was on anti-depressants.  After going gluten-free he no longer needs them and he's feeling fine.  I'm not sure how long he was gluten-free before being able to give up the meds, but it can happen.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,975
    • Most Online (within 30 mins)
      7,748

    Mel R
    Newest Member
    Mel R
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.