Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long And How Much Gluten Needed For Gi Test?

sisterlynr

By sisterlynr
in Dermatitis Herpetiformis

Recommended Posts

sisterlynr Explorer
sisterlynr
Posted

I have a diagnosis of DH and Lupus but none of my doctors agree as to what is causing 'the rash'. One biopsy indicated a pointer to Lupus and none of the 8 biopsies showed DH although only 2 were done properly for DH.

 

I am scheduled to meet a new GI in December and hopefully she will combine a Colonoscopy and EGD procedure, the same day.  I will ask the GI to biopsy via EGD and maybe that will settle the Celiac DH issue.

 

 I have not been lesion free since Feb 2012 although I have been gluten-free since Oct 2012.  I have had minor relief but then all symptoms renew.  I'm on mega histamine blockers so that is helping me keep my sanity.

 

If the procedures are scheduled in mid December, when should I add gluten back to my diet?  How much should I intake?  

 

Thanks for any information.  I'm sure someone has been in this same situation.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

See page 2, the last paragraph in the right column.

Open Original Shared Link

 

In other words..... you're already too late to start glutening yourself.

sisterlynr Explorer
sisterlynr
Posted
  • Author

See page 2, the last paragraph in the right column.

Open Original Shared Link

 

In other words..... you're already too late to start glutening yourself.

 

:(   Well . . . I will discuss this with the GI and see what goes.  I had a polyp removed and my esophagus stretched in 2010 so this isn't an elective procedure.  My iron is low again and my PCP is adamant that I have both procedures.

 

Thanks for pointing me to the information.  

kareng Grand Master
kareng
Posted

I doubt they will decide to do a colonoscopy at a doctor appt. with all the prep you have to do. You should have time to gluten up.

Open Original Shared Link

However, if you are diagnosed with DH that is an automatic diagnosis of Celiac.

Open Original Shared Link

Open Original Shared Link

sisterlynr Explorer
sisterlynr
Posted
  • Author

I doubt they will decide to do a colonoscopy at a doctor appt. with all the prep you have to do. You should have time to gluten up.

Open Original Shared Link

However, if you are diagnosed with DH that is an automatic diagnosis of Celiac.

Open Original Shared Link

Open Original Shared Link

 

 

 

I have had colon issues for years and family hx (1 uncle 3 aunts deceased) with colon cancer.  Cousins with Celiac per biopsy.  I have had a colonoscopy every other year since I was in my 30's.  One year I had 3 colonoscopies and one that year included the EGD at the same time.  They were always looking for cancer but only found red patches of inflammation.  

 

I was scheduled for a colonoscopy and EGD this summer but the GI wanted to do separate procedures and my co-pay would be over $500.00, which I do not have. . . on my limited disability income.  Since he wouldn't do as I asked, I cancelled the appointment.

 

I am going to see a GI that will do both procedures at the same time.  They will schedule the procedures on my first visit, due to my history and I have my med recs to give her.  The prep is worse than the procedure, in my opinion.

 

 I have had 3 EGD's that I remember and was never told I had Celiac.  One was because the GI said my stomach was way too tender and thought it was cancer.  One was to check the duct after gallbladder removal, thinking I had developed another stone.  The stone finally passed as they saw the damage to the duct, this one resulted in Pancreatitis which was horrid and lasted several months.  The other EGD was in 2010 and although I asked the GI to biopsy for Celiac, he failed to do so. . . I wasn't very happy when I woke up.  He did stretch my esophagus during the procedure.

 

Will see what December holds for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748
    MARYANN RICHARDS
    Newest Member
    MARYANN RICHARDS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.