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Gluten Intolerance Symptoms / Italy


ElfAditi

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ElfAditi Newbie

Hello All,

 

I have just joined the community, I'm in need of help.

 

I'm a 39 year old woman, who, over the years, developed the following symptoms;

 

1) exstasistolic beats

2) anxiety

3) aura migraines (without a headache, a ecography of the heart with "bubbles", with the probe inserted as if it were to be a gastroscopy, showed no signs of a PFO, no signs in a cat scan)

4) tendency to gain weight

5) tendency to retain fluids (mostly in my legs)

6) bloating

7) extreme tiredness after a meal with gluten (I fall asleep)

8) a rash on my fingers, compatible, I would say, with DH (could not find the pictures here to give you a more detailed reference). I start "feeling" little bumps. Then comes the itching. The redness and dry skin, which breaks. Then the bumps get filled with a transparen liquid (the itching is absurd at this point). Then the blisters develop a tiny dark mark on top. Then they "might" become red and paniful (very). Creams are of little help. Then they disappear for a few days (but I sitll feel the bumps ready to burst if I touch my fingers).

 

The most scary part, the part I think I need help with is number

9) I CRAVE gluten. Bread, toasts. It's crazy, it almost sounds as an addiction.

 

At some point my GP told me to eat without gluten for 15 days. The second day I was a new woman. 80% extrasystolic beats less. No anxiety. I lost 10 Kgs in 15 days.

 

Then, stupidly enough, I went to a Chinese restaurant to eat what I thought would be gluten free meals. 15 minutes later I had heartbeats like crazy, and a very bad anxiety attack. At that point I figured out (stupid me) that I did not have gluten intolerance. I've just discovered that the Chinese food prepared in Italian restaurants is FULL of gluten. Soy sauce is basically liquid grain.

 

 

Thus, I am about to start all over again. I've read some of your messages indicating that in the US you perform a biopsy near the blisters (never heard of such a thing in Italy) and my GP indicated that tests are not reliable.

 

I would love to hear from you. At this very moment I feel like a drug addict in need of a piece of bread. I think that what I need the most is sharing, communicating and as much helpful material as I can get.

 

I would so much appreciate your insights and help on reliable material to overcome the difficult time I'm going through. Hard for me to imagine a life without bread. The local gluten free bread has a taste that would go well for an unfortunate chicken.

 

Thank you in advance for the suggestions and help.

 

Have a sunny day :)


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    • sillyac58
      Thanks so much Scott. I would be incredibly grateful to the gluten gods if eliminating oats was the magic cure. In the meantime, it's nice to have moral support! 
    • trents
      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
    • Dema
      Ooh thanks for all the info I'll check them out, though I may not be functional after 6 slices for 6 weeks 😅
    • Dema
      alright thank your help! 🤍
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
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