Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Guy From Tallahassee Fl

CeliacMe

Recommended Posts

CeliacMe Rookie
CeliacMe
Posted

There is a brave man, known as "gluten guy" to the students at FSU's School of Hospitality Management. I would like to thank you for all that you have done to educate the resturants about gluten-free through your bravery. I bet you are a big part of the reason why chain resturants are offering gluten-free menus. If you are out there, Thank You.

  • 3 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


floridanative Community Regular
floridanative
Posted

I too am in need of 'the gluten guy of Tallahassee's' help. I've never heard of him before reading this post but my Mother is getting tested for Celiac next week and if she has it, I need to point her in the direction of help down in FL. If no one knows 'the gluten guy' from Tall., do any of you know if there is a support group for Celiacs there? Or even in Panama City, FL?

  • 1 year later...
Guest KG in FL
Guest KG in FL
Posted
I too am in need of 'the gluten guy of Tallahassee's' help. I've never heard of him before reading this post but my Mother is getting tested for Celiac next week and if she has it, I need to point her in the direction of help down in FL. If no one knows 'the gluten guy' from Tall., do any of you know if there is a support group for Celiacs there? Or even in Panama City, FL?

Hey floridanative, I am in Destin, FL. I've been hoping there would be anyone close to me posting but there hasn't yet. I know there are celiacs right around me by the new availability and sale of gluten-free products at the supermarkets and a the healthfood stores here. I don't know of glutenguy, but my son (not celiac) will be starting school at FSU soon so I'll be there a lot. Is there a group there? Hey, and I am a FL native too!!

floridanative Community Regular
floridanative
Posted

Hi KG - as far as I know there still is not a group in Tall. The woman who ran one previously apparently moved. Very few people in town are dx'd with Celiac as far as we can tell. We rarely eat out when in Tall. but if we do, we go to Bonefish or Carrabas which at least offer decent gluten-free menus. Sorry not t be of more help but since you're in Destin, do you know of any places to eat in Orange Beach, FL? We're going down for a few days before heading to New Orleans, and we're hoping not to cook every dinner in the condo while at the beach.

ReneCox Contributor
ReneCox
Posted

im 19 and have lived in Tallahassee, FL my whole life. Ive never heard of gluten guy but I would def. like to meet him! The only places I eat out are at outback, bonefish, and Teds Montana Grill.

  • 6 months later...
GFinNC Newbie
GFinNC
Posted
im 19 and have lived in Tallahassee, FL my whole life. Ive never heard of gluten guy but I would def. like to meet him! The only places I eat out are at outback, bonefish, and Teds Montana Grill.

Where do you shop for gluten-free food? Do regular grocery stores (Albertson's and Publix) have gluten-free food? I've been spoiled with Whole Foods....

  • 3 months later...
Jeff Swartz Newbie
Jeff Swartz
Posted

I am also a celaic in Tallahassee.I am 56 years old. I have found no group meeting in Tallahassee, but might be interested in helping one get started.

After fighting for almost 25 years and in failing health [before the dx if celiac], I was finally fired from state work about a year ago.I was a Professional Geologist. I would love to hear from other Celiacs in this area.

Jeff Swartz

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
RockHammer Rookie
RockHammer
Posted

Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

  • 2 weeks later...
jparsick84 Rookie
jparsick84
Posted

Eating out in Tally:

* La Fiesta (on Appalachee Parkway) is safe for those with only Celiac. Stick to the corn stuff (chips, tortillas, etc). Ask if anything is breaded before you order it, they're up front with you. Tell them you're allergic to wheat, and that nothing you are served must have touched anything wheat. I've never had any problems there, and they do Happy Hour almost every night of the week, so even if you just want to go for drinks and chips/salsa, it's a great place to go.

That's the only non-chain restaurant I've been willing to try, but if you're looking for some GREAT Mexican food, it's the place to go. :)

RockHammer Rookie
RockHammer
Posted
Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

The next meeting of the still un-named Celiac Support Group serving Tallytown and Enviirons will meet Tuesday May 20 2008 again at the office of Dr John Ness. I hope to see you there.

To join or for info please contact Rockhammer, or email at jswartz.pg@gmail.com.

RH

  • 3 weeks later...
katifer Apprentice
katifer
Posted

i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.

  • 4 weeks later...
Celiac#8 Newbie
Celiac#8
Posted
i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.

WOW! Did not see that coming when I started to post on here. I was going to ask if you all were still meeting in Tallahassee. That is awful. I just happened across Rock Hammer's posts on the web and was thrilled to see someone trying to get a group together. I'm sorry for your loss to all who knew him.

If there is still going to be a group, I am interested in meeting with you all.

My regards,

Celiac#8

mrsgarner_ela@yahoo.com

jparsick84 Rookie
jparsick84
Posted

Yes, I think there's still interest. It may be hard to rustle up people during the summer, but I know of at least 5 Celiac students at FSU, so maybe we should plan a date once the students come back to town?

And if anyone just wants to get together for dinner one night this summer, PLEASE contact me! (I'm dying for some Outback...)

~ Jennifer :)

taylor- Rookie
taylor-
Posted
Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

Hey guys! so we are officially having a meeting tomorrow! 6:30, at Dr. John Ness' office (directions above) PLEASE come if you can, because we are going to try and make some definite plans for a monthly meeting. thanks so much! if you have any questions send me a message and ill try and check before tomorrow to respond!

  • 3 weeks later...
deb18 Newbie
deb18
Posted

I would be interested in something here. Let me know. deb

  • 2 weeks later...
katifer Apprentice
katifer
Posted

hey just want to update real quick there is a support being led Fall 2008 by a woman named Beverly

Beverly Vichich

bevnurse1@earthlink.net

next meeting 6:30pm Dr. John Ness' office waiting room

  • 1 month later...
rebkin Newbie
rebkin
Posted

If we can help you all with any information regarding living gluten free, or setting up a group - please contact us at: birminghamceliac@hotmail.com, or at our blog site: birminghamceliac.spaces.live.com

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,498
    • Most Online (within 30 mins)
      7,748
    HDM005
    Newest Member
    HDM005
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.