Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Guy From Tallahassee Fl


CeliacMe

Recommended Posts

CeliacMe Rookie

There is a brave man, known as "gluten guy" to the students at FSU's School of Hospitality Management. I would like to thank you for all that you have done to educate the resturants about gluten-free through your bravery. I bet you are a big part of the reason why chain resturants are offering gluten-free menus. If you are out there, Thank You.

  • 3 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



floridanative Community Regular

I too am in need of 'the gluten guy of Tallahassee's' help. I've never heard of him before reading this post but my Mother is getting tested for Celiac next week and if she has it, I need to point her in the direction of help down in FL. If no one knows 'the gluten guy' from Tall., do any of you know if there is a support group for Celiacs there? Or even in Panama City, FL?

  • 1 year later...
Guest KG in FL
I too am in need of 'the gluten guy of Tallahassee's' help. I've never heard of him before reading this post but my Mother is getting tested for Celiac next week and if she has it, I need to point her in the direction of help down in FL. If no one knows 'the gluten guy' from Tall., do any of you know if there is a support group for Celiacs there? Or even in Panama City, FL?

Hey floridanative, I am in Destin, FL. I've been hoping there would be anyone close to me posting but there hasn't yet. I know there are celiacs right around me by the new availability and sale of gluten-free products at the supermarkets and a the healthfood stores here. I don't know of glutenguy, but my son (not celiac) will be starting school at FSU soon so I'll be there a lot. Is there a group there? Hey, and I am a FL native too!!

floridanative Community Regular

Hi KG - as far as I know there still is not a group in Tall. The woman who ran one previously apparently moved. Very few people in town are dx'd with Celiac as far as we can tell. We rarely eat out when in Tall. but if we do, we go to Bonefish or Carrabas which at least offer decent gluten-free menus. Sorry not t be of more help but since you're in Destin, do you know of any places to eat in Orange Beach, FL? We're going down for a few days before heading to New Orleans, and we're hoping not to cook every dinner in the condo while at the beach.

ReneCox Contributor

im 19 and have lived in Tallahassee, FL my whole life. Ive never heard of gluten guy but I would def. like to meet him! The only places I eat out are at outback, bonefish, and Teds Montana Grill.

  • 6 months later...
GFinNC Newbie
im 19 and have lived in Tallahassee, FL my whole life. Ive never heard of gluten guy but I would def. like to meet him! The only places I eat out are at outback, bonefish, and Teds Montana Grill.

Where do you shop for gluten-free food? Do regular grocery stores (Albertson's and Publix) have gluten-free food? I've been spoiled with Whole Foods....

  • 3 months later...
Jeff Swartz Newbie

I am also a celaic in Tallahassee.I am 56 years old. I have found no group meeting in Tallahassee, but might be interested in helping one get started.

After fighting for almost 25 years and in failing health [before the dx if celiac], I was finally fired from state work about a year ago.I was a Professional Geologist. I would love to hear from other Celiacs in this area.

Jeff Swartz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
RockHammer Rookie

Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

  • 2 weeks later...
jparsick84 Rookie

Eating out in Tally:

* La Fiesta (on Appalachee Parkway) is safe for those with only Celiac. Stick to the corn stuff (chips, tortillas, etc). Ask if anything is breaded before you order it, they're up front with you. Tell them you're allergic to wheat, and that nothing you are served must have touched anything wheat. I've never had any problems there, and they do Happy Hour almost every night of the week, so even if you just want to go for drinks and chips/salsa, it's a great place to go.

That's the only non-chain restaurant I've been willing to try, but if you're looking for some GREAT Mexican food, it's the place to go. :)

RockHammer Rookie
Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

The next meeting of the still un-named Celiac Support Group serving Tallytown and Enviirons will meet Tuesday May 20 2008 again at the office of Dr John Ness. I hope to see you there.

To join or for info please contact Rockhammer, or email at jswartz.pg@gmail.com.

RH

  • 3 weeks later...
katifer Apprentice

i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.

  • 4 weeks later...
Celiac#8 Newbie
i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.

WOW! Did not see that coming when I started to post on here. I was going to ask if you all were still meeting in Tallahassee. That is awful. I just happened across Rock Hammer's posts on the web and was thrilled to see someone trying to get a group together. I'm sorry for your loss to all who knew him.

If there is still going to be a group, I am interested in meeting with you all.

My regards,

Celiac#8

mrsgarner_ela@yahoo.com

jparsick84 Rookie

Yes, I think there's still interest. It may be hard to rustle up people during the summer, but I know of at least 5 Celiac students at FSU, so maybe we should plan a date once the students come back to town?

And if anyone just wants to get together for dinner one night this summer, PLEASE contact me! (I'm dying for some Outback...)

~ Jennifer :)

taylor- Rookie
Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

Hey guys! so we are officially having a meeting tomorrow! 6:30, at Dr. John Ness' office (directions above) PLEASE come if you can, because we are going to try and make some definite plans for a monthly meeting. thanks so much! if you have any questions send me a message and ill try and check before tomorrow to respond!

  • 3 weeks later...
deb18 Newbie

I would be interested in something here. Let me know. deb

  • 2 weeks later...
katifer Apprentice

hey just want to update real quick there is a support being led Fall 2008 by a woman named Beverly

Beverly Vichich

bevnurse1@earthlink.net

next meeting 6:30pm Dr. John Ness' office waiting room

  • 1 month later...
rebkin Newbie

If we can help you all with any information regarding living gluten free, or setting up a group - please contact us at: birminghamceliac@hotmail.com, or at our blog site: birminghamceliac.spaces.live.com

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.