Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh On Face?

Porcelina

By Porcelina
in Dermatitis Herpetiformis

Recommended Posts

Porcelina Contributor
Porcelina
Posted

Is that possible? I'm getting this crazy itchy, red and blotchy rash on my jawline and cheek area. Its starting to peel and just looks disgusting.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WestCoastGirl Apprentice
WestCoastGirl
Posted

Yup.

 

I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful.

 

I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back and once in a very blue moon, my upper arms.

nora-n Rookie
nora-n
Posted

Hairline behind ears and in the back here.

 

By the way, Hidradenitis suppurativa is gluten-related too. But there probably has been no reseach verifying this.

MGR Apprentice
MGR
Posted

Hi again, I think DH mainly appears around the neck and scull area in the upper body, but I have seen photos of a lady in the celiac.com photo bank who had it in the face I think.... Especially during the second part of the challenge ( w 5- 9) I also constantly had herpes-like ulcers in and around my mouth.. Charming!! But I get something like DH on my upper back legs ... For years I though I was getting chicken pocks constantly...

nora-n Rookie
nora-n
Posted

There are also some posting on DH forums who have i inside the mouth. Ouch.

mendylou Rookie
mendylou
Posted

Yup.

 

I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful.

 

I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back and once in a very blue moon, my upper arms.

It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas.  Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we ate out which I rarely do due to CC. Of course I was assured it was gluten free but you know that is never 100% true.  I am going thru a terrible breakout right now.  By the way I have been gluten free for 3 years and as time goes on the littlest bit of gluten causes a DH outbreak. For me It takes a long time to clear up.

WestCoastGirl Apprentice
WestCoastGirl
Posted

It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas.  Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we ate out which I rarely do due to CC. Of course I was assured it was gluten free but you know that is never 100% true.  I am going thru a terrible breakout right now.  By the way I have been gluten free for 3 years and as time goes on the littlest bit of gluten causes a DH outbreak. For me It takes a long time to clear up.

 

For me, too. I've actually had DH lesions last a couple of months on occasion. Typically, though, they last about a week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MGR Apprentice
MGR
Posted

There are also some posting on DH forums who have i inside the mouth. Ouch.

Thanks so much for pointing this out to me, I actually get them inside my mouth too, especially all over my front and middle palate... Extremely painful when eating...

squirmingitch Veteran
squirmingitch
Posted

DH can present anywhere on the body. Just ask me. I've had it everywhere except mucus membranes. Bottom of my feet, hands, fingers, upper legs, lower legs, knees, elbows, neck, scalp, in my ears, in my belly button, on my nipples, collar bone, chest, breasts, stomach & pubic area, shoulders, any area of the back, any area of the arms, armpits, ankles, toes, upper feet & some on my face.

  • 4 years later...
EChip Newbie
EChip
Posted

I get DH on my face, always on my top lip- which makes it look like cold sores. I adhere to a very strict gluten free diet, but on the odd occasion I still get “glutened “ there are a few things I have found that help. Stomach enzymes DPP-IV help hugely if I think I may have eaten some gluten (at the time of eating, I take the enzymes). I’m currently having quite a bad outbreak that was actually triggered by some medication I took- I find sudacrem helps to dry out the blisters, I also try a cold compress to reduce swelling, then once healing I use hydrocortisone cream. Green concealer can help cover the redness & then dermablend concealer. 

Hope it helps!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    3. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    5. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748
    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.