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Possible Gluten Sensitivity?

viper

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viper Newbie
viper
Posted

I'll try and keep this short.  I was diagnosed with IBS a long time ago and several things were always tried with little to no success.

 

About 3 months ago I started having lots of visible shaking and feeling fluish all over, with nausea and the usual ibs diareah.  Including some sweating episodes where I would just sweat profously mainly on my face.

 

After several visits to the ER and multiple rounds of Psychicatric drugs, we started doing some tests.  One of the thoughts was Celiac.  So I went gluten free.  The Drs did the blood test with not much to show for it.  I'm still trying to get a copy.  After about 3 weeks I finally got an endoscopy done.  I had been gluten free at this point for that period of time if not longer.  The response I got was Mast cells were slightly elevated in my intestinal tract and that the villi didnt show signs of damage.  The GI tells me that I can start eating gluten again when I feel up to it.  I tried eating gluten this thanksgiving with my family (stuffing and apple pie).  after about 3 to 4 hours of eating I "crashed" started flushing, sweating, and shaking all over again.  3 days later I felt good this morning but feel very run down and "shaky" like i have low blood sugar tonight.  Even though I know if I test it I wont have low blood sugar.  I've tried to keep eating healthy foods I havent touched glueten again for those days.

 

Do you guys feel like this could be Gluten Sensitivity?  Is it usual for the effects to linger around so much and treat you like a roller coaster where part of the day you feel good then part of the day you fell like your going to pass out?

 

Vip.

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cyclinglady Grand Master
cyclinglady
Posted

The only sure way is to stick to the diet for more than six months.

I am formally diagnosed but my husband is not. He has been gluten free for 12 years at the advice of his GP and my allergist.

Yes. You can feel good and then feel awful in just a few minutes. Getting glutened, for me, can last a week or so.

I hope you find relief! This forum has tons of information.

viper Newbie
viper
Posted
  • Author

So Sunday night 72 hours after ingestion of gluten i developed a hives type of rash.  It got worse last night and started lightening up this morning a bit?  Has anyone had this latent of symptoms of a rash or should I be looking for another antagonist of my symptoms.

cyclinglady Grand Master
cyclinglady
Posted

Was it insanely itchy?  It could be DH, but I'll defer to those who have DH.  They are the experts.  

WestCoastGirl Apprentice
WestCoastGirl
Posted

A rash to me usually says "allergy," or possibly hives, unless it's DH. Is it both intensely itchy and painful?

 

I think you know you're having some reaction to gluten - you've just proved that to yourself. Whether or not it's specifically celiac, it seems gluten and you don't get along. So even without a DX, personally, I'd remove gluten from my diet.

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