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6 Months...finally Feeling A Little Better

tka

By tka
in Coping with Celiac Disease

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tka Apprentice
tka
Posted

6 months from diagnosis and starting my gluten free diet. Since then, have also realized I need to stay away from oats and dairy as well. Have changed my makeup and hair products too. I am finally seeing a little difference. I have some energy a few days out of the week. Usually by the end of the work week I am exhausted, but have some energy through about Thursday morning. Have not had a flu bug yet this school year! Have been gluttened twice recently. Even after cooking gluten free ham, green bean casserole, corn bread stuffing muffins, cranberry jello, pecan pie, and pumpkin pie, I was gluttened by a salad dressing my friend made that she assured me was gluten free. I did not eat the salad, but had it on my plate before not feeling comfortable with it and took it off. The other time, it was a salad dressing too.

I seem to have a cycle to my reactions when I get gluttened. First, he initial stomach stuff: diahrrea, incredible gas, bloating (I can gain 7 to 8 pounds over night), for first day and a half or two. Then, baaad headache, muscle an joint pain and fogginess, irritability for another couple of days. Finally, extreme exhaustion...to the point that when it hits, I better be close to home or I feel like I might fold and sleep right where I am. Along with this, I have a depression that causes me to want to cry at the drop of a hat. I just want to curl up and wait for it to pass. I also noticed that this last time, I seemed to have sinus problems more.

Does anybody else have a sort of cycle like this that their reactions tend to follow? Is this about the number or days reactions last? (6 to 8 days...sometimes more for the achiness and fog?)

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SkyBlue4 Apprentice
SkyBlue4
Posted

Glad to hear you're feeling some improvements but sorry to hear of the glutenings.  

 

I'll let others speak to the their experience with being glutened. I haven't been at this long enough to recognize any patterns yet with regards to symptoms. I was glutened early on and had immediate and unmistakable GI symptoms in response. It's only been a month and I am still exhausted and weak. I can't wait to have a little increased energy.

nvsmom Community Regular
nvsmom
Posted

It really varies from person to person. Some people don't feel it at all and others are knocked back by a few weeks.

 

I was only glutened in the first few months of the diet so I honestly don't know what it's like to take a hit while feeling good... but it did take over 6 months for me to get to feeling good. At 3-6 months in, my immune system was acting up on it's own and attacking my... everything. It still does it to a lesser extent where I start to get fatigues and a bit achey, but I'm sure it's not gluten. It's just a bonkers immune system.  LOL

 

Best wishes. I hope others are of more help.

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