Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hives?

anti-soprano

By anti-soprano
in Coping with Celiac Disease

Recommended Posts

anti-soprano Apprentice
anti-soprano
Posted

Have any of you experienced hives that don't seem to be related to gluten?  

 

I've had environmental allergies all of my life- so I'm well versed in hives.  For the past few months, they have been popping up in the same place (the sides of my face and/or neck- yesterday underneath my bottom lip) and I can't seem to find one singular reason.  

 

It is definitely not gluten as I have not been bloated at the times when this happens.  I have also recently removed large amounts of corn and dairy when I realized they contributed to my bloating and digestive misery, but can handle small amounts.  The hives have popped up when all I was drinking for hours was wine and then not appeared when I had wine (both times it was white).  The same goes for other foods- they show up and then they don't. They have reared their ugly heads when I haven't eaten for hours.  I'm guessing it is more connected to stress, but was interested in what the experience of others have been.  Sometimes I don't feel particularly stressed when they appear, so I'm at a loss.  Has anyone experiences stress hives??? 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Urticaria can appear with high histamine foods.

I get these crazy spots on my face and scalp when I indulge in too many of them at once.

Check this out and see if it applies?

 

High histamine level foods:

  • Alcohol--esp. wine and beer
  • Pickled or canned foods – sauerkrauts
  • Matured cheeses
  • Smoked meat products – salami, ham, sausages….
  • Shellfish
  • Beans and pulses – chickpeas, soy beans, peanuts
  • Nuts – walnuts, cashew nuts
  • Chocolates and other cocoa based products
  • Most citric fruits
  • Vinegar
  • Ready meals
  • Salty snacks, sweets with preservatives and artificial colourings

Histamine liberators:

  • Most citric fruits – kiwi, lemon, lime, pineapple, plums…
  • Cocoa and chocolate
  • Nuts
  • Papaya
  • Beans and pulses
  • Tomatoes
  • Additives – benzoate, sulphites, nitrites, glutamate, food dyes
eers03 Explorer
eers03
Posted

 

Urticaria can appear with high histamine foods.

I get these crazy spots on my face and scalp when I indulge in too many of them at once.

Check this out and see if it applies?

 

High histamine level foods:

  • Alcohol--esp. wine and beer
  • Pickled or canned foods – sauerkrauts
  • Matured cheeses
  • Smoked meat products – salami, ham, sausages….
  • Shellfish
  • Beans and pulses – chickpeas, soy beans, peanuts
  • Nuts – walnuts, cashew nuts
  • Chocolates and other cocoa based products
  • Most citric fruits
  • Vinegar
  • Ready meals
  • Salty snacks, sweets with preservatives and artificial colourings

Histamine liberators:

  • Most citric fruits – kiwi, lemon, lime, pineapple, plums…
  • Cocoa and chocolate
  • Nuts
  • Papaya
  • Beans and pulses
  • Tomatoes
  • Additives – benzoate, sulphites, nitrites, glutamate, food dyes

 

Irish, forget Ode to Celiac I am about to have an Ode to Yule!  Oops!  I meant you...  (It's Christmas, ya know)  So, I was reading your above post and it may be the answer to the spots that arrived and grow irritated in the shower.  I had started taking Osteo-Biflex and I think some of its main ingredients are derived from shellfish.  I am most likely reacting to that concentrated dose.  The spots started around the same time I began taking it.  It makes so much sense but never put 2 and 2 together until I read the above.  It's still present but doesn't seem to be getting worse and actually seemed a little better one morning after I went to bed on a bowl of frozen rasperries and blueberries.  Hmm.  We'll see.

 

I was taking the Osteo in helps of helping to mend some soft tissues.  Oh well.

 

Merry Christmas!

eers03 Explorer
eers03
Posted

Irish, forget Ode to Celiac I am about to have an Ode to Yule!  Oops!  I meant you...  (It's Christmas, ya know)  So, I was reading your above post and it may be the answer to the spots that arrived and grow irritated in the shower.  I had started taking Osteo-Biflex and I think some of its main ingredients are derived from shellfish.  I am most likely reacting to that concentrated dose.  The spots started around the same time I began taking it.  It makes so much sense but never put 2 and 2 together until I read the above.  It's still present but doesn't seem to be getting worse and actually seemed a little better one morning after I went to bed on a bowl of frozen rasperries and blueberries.  Hmm.  We'll see.

 

I was taking the Osteo in helps of helping to mend some soft tissues.  Oh well.

 

Merry Christmas!

I am replying to myself to say that my punctuation and sentence structure in this post is disgusting.

anti-soprano Apprentice
anti-soprano
Posted
  • Author

I am replying to myself to say that my punctuation and sentence structure in this post is disgusting.

Hahaha!!  I didn't notice, honestly!

 

Irish Heart for the win....AGAIN!!  Thank you so very much.  I thought may be it was a combination of chocolate and the wine, but then they appeared without wine and I couldn't figure it out.  This should be it.  Today it must have been the two helpings of nutella and potato chips (almost worth the hives, really).  Are there certain times when you are more reactive than others.  If stress is another component, it would answer every "but what about...".  There have been a couple times when they appeared and I hadn't eaten in hours.

Glittersmith Newbie
Glittersmith
Posted

I get hives from topical gluten. Lotions, makeup, shampoo, etc... I used a natural wheat based cream on my sunburnt arms once and they swelled right up and looked like I had been attacked by a swarm of bees! Check your bottles ingredients

IrishHeart Veteran
IrishHeart
Posted

Irish, forget Ode to Celiac I am about to have an Ode to Yule!  Oops!  I meant you...  (It's Christmas, ya know)  So, I was reading your above post and it may be the answer to the spots that arrived and grow irritated in the shower.  I had started taking Osteo-Biflex and I think some of its main ingredients are derived from shellfish.  I am most likely reacting to that concentrated dose.  The spots started around the same time I began taking it.  It makes so much sense but never put 2 and 2 together until I read the above.  It's still present but doesn't seem to be getting worse and actually seemed a little better one morning after I went to bed on a bowl of frozen rasperries and blueberries.  Hmm.  We'll see.

 

I was taking the Osteo in helps of helping to mend some soft tissues.  Oh well.

 

Merry Christmas!

Merry Christmas to you! :)

I discovered I had a problem when I kept having weirdo symptoms like unexplained fatigue, GI wonky stuff, blisters on my lip and scalp, even what felt like chest congestion, yet I have no known allergies.

The worst symptoms are racy heart and insomnia, but I knew it wasn't gluten getting in.

I read a ton about histamine intolerance and how it could very well occur in celiacs because of course, the DAO enzyme that regulates histamine is produced in the gut. Impaired gut = impaired production of the enzyme. Made sense to me, so I asked my Gi doc who said "that's brilliant. That makes total sense!" The only thing to do is remove the offending foods for 2 weeks and then add them back in one at a time, slowly, to see what level your body can handle.

 

I am not the only one with this issue on here: GottaSki Lisa and Jebby have it and they even have anaphylaxis at times and carry epipens.

However, like me, they control it better with the use of probiotics and Quercetin (and I know that some people take a DAO supplement but I did not notice any benefit from that at all)

 

HIT is not really recognized in this country (yet) but the UK and many EURO docs are well aware of it. 

 

I am replying to myself to say that my punctuation and sentence structure in this post is disgusting.

 

I did not notice a thing! :)

Hahaha!!  I didn't notice, honestly!

 

Irish Heart for the win....AGAIN!!  Thank you so very much.  I thought may be it was a combination of chocolate and the wine, but then they appeared without wine and I couldn't figure it out.  This should be it.  Today it must have been the two helpings of nutella and potato chips (almost worth the hives, really).  Are there certain times when you are more reactive than others.  If stress is another component, it would answer every "but what about...".  There have been a couple times when they appeared and I hadn't eaten in hours.

 

It can be delayed. Like a day or so. It's not always immediate. 

Histamine accumulates in the body, so you may have wine one day and be fine, Then, chocolate and tomatoes and scallops the next day. Then, maybe some salami....

By day 3, you've got spots.

 

Oddly, I can have vodka with soda and lemon--every day if I want and  no problem at all. Bacon and

maybe a bit of hard cheese...still okay..on the weekend, .

a few glasses of champagne and chocolate...and some pasta sauce.? ..bam...nice big honking lip sore. dang! got a doozy right now. geesh!

 

Accumulation is the problem...so go low histamine or no histamine if possible and see if they clear up.

 

I get hives from topical gluten. Lotions, makeup, shampoo, etc... I used a natural wheat based cream on my sunburnt arms once and they swelled right up and looked like I had been attacked by a swarm of bees! Check your bottles ingredients

 

Then, it sounds like you've got a wheat allergy on top of a gluten intolerance. Unless maybe the sunburn caused the bumps. That can happen, too.

Topical gluten would not spark a response in a celiac because we have to ingest it to cause the immune response.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

And, also meant to mention to EERSO3,

 

I had to stop taking a joint/bone/connective supp because of the shellfish too. It gave me burning skin sensations after taking it for months.

 

I finally had the light bulb moment ...(duh! shellfish in the supp, Dummy!) < that was my internal chatter. lol

 

I finally went with BioCell Collagen type II for joint and tissue repair, or you could take unflavored gelatin.

Both the hubs and I think the collagen has really helped with our ouchy joints (and a side benefit for me is stronger hair and less wrinkles!) lol

 

My hair was deeply affected by celiac--lost a lot of it before diagnosis --and it made me very sad, but it is coming back, thank goodness.

 

Just some thoughts! :) 

IrishHeart Veteran
IrishHeart
Posted

Guys

 

here is a very long, but thorough article on histamine intolerance if you feel like reading.

 

Open Original Shared Link

anti-soprano Apprentice
anti-soprano
Posted
  • Author

 

 

I am not the only one with this issue on here: GottaSki Lisa and Jebby have it and they even have anaphylaxis at times and carry epipens.

However, like me, they control it better with the use of probiotics and Quercetin (and I know that some people take a DAO supplement but I did not notice any benefit from that at all)

Looks like I'll be scheduling in some quality time with my allergist- who is very nice, but I swear thinks I'm nuts.  I thought yesterday that my larynx felt tight and I was getting hoarse- although no visible swelling in the neck or throat.  My breathing was not normal, but that also happens when I get panic-y. I kept telling myself it was all in my mind.  Thank you!  Thank you!  Thank you!!!

IrishHeart Veteran
IrishHeart
Posted

Looks like I'll be scheduling in some quality time with my allergist- who is very nice, but I swear thinks I'm nuts.  I thought yesterday that my larynx felt tight and I was getting hoarse- although no visible swelling in the neck or throat.  My breathing was not normal, but that also happens when I get panic-y. I kept telling myself it was all in my mind.  Thank you!  Thank you!  Thank you!!!

 

 

Do not be disappointed if she says there's  "no such thing"....or "we don't test for that". (insert eye -rolling emoticon thinger here)

 

PM Jebby (she's a doctor with celiac) and she's a real sweetheart and  can tell you which tests to ask for.

  • 3 weeks later...
IrishHeart Veteran
IrishHeart
Posted

anti soprano et al...check this out?

 

 

 

https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/

w8in4dave Community Regular
w8in4dave
Posted

I used to get hives that started out about 3 am in my warmest spots under arms thys by like 10 am my boudy would be covered. By noon they would be gone. I took pics tho to show the Dr. He put me on two zyrtec a day. I couldn't figure out what it was. Altho I did think it was smoked meat. But everyone told me it couldn't be. But Anywhoo if I stopped taking them then it ould start in a couple days , so I would just keep taking them , now I know I have Celiac and changed my diet , I stopped taking the zyrtec and I have not had hives since. (Knock on wood) LOL I have suffered with allergies all my life. So I figured it's just getting worse as I age. Good luck!! Hope you figure it out. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,552
    • Most Online (within 30 mins)
      7,748
    judytay080
    Newest Member
    judytay080
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.